Welcome to the Psoriasis Help Organisation, otherwise known as PHO. This is a web site dedicated to helping people suffering from the Chronic Skin Disease Psoriasis. This site contains information about Treatments, Handy Tips for living with the Psoriasis and other topics. This is a privately owned site (not a charity), run and administered by psoriasis sufferers, for psoriasis sufferers.
We are not medical professionals, just enthusiastic amateurs, with a goal to provide an informative and friendly environment to learn about Psoriasis and discuss topics with others in similar situations. The primary idea for this site is to provide a discussion forum. A place where fellow Psoriasis sufferers can exchange views and advice on how to live with and treat Psoriasis.
There are many types of psoriasis including Guttate, Plaque, Pustular, Psoriatic Arthritis and Flexural Psoriasis which can affect most areas of the body including the Scalp, Genitals and Nails, both fingernails and toenails. We have some Pictures of Psoriasis which show most of the different types of psoriasis and locations on the body which it can appear. See the menu link on the left.
We also have information on many different types of treatment, Including PUVA, UVA, UVB, Biological, Systemic, Steroid and Non-Steroid based psoriasis treatments. Many of these psoriasis treatments are discussed in greater detail in the Psoriasis Help Forum.
Click on "The Forum" Link to enter the forum
Please use the forum to ask questions about Psoriasis that you would like answered, express views that you have regarding Psoriasis and discuss treatments that you have used or are interested in using. We encourage you to talk about anything that you feel may be beneficial to others and to become part of the friendly community that we have created. Psoriasis can be an isolating, depressing disease and it often helps to discuss your feelings with others that really understand. You are not alone.
September 01, 2014, 10:50:45 PM by lxm | Views: 275 | Comments: 4
I've suffered plaque Psoriasis from the age of 15, moderate plaques cover various parts of my body. Around 5 years ago at the age of 18, I began to develop a range of symptoms which seemed to 'come and go'. I put up with these and soon they became normal and I got on with life. 2 years ago at the age of 21 I decided how I was feeling and living wasnt normal and decided to go to my GP. He ran basic tests and testosterone came back as borderline low.
I was desperate to label how I was feeling, and pushed the 'low testosterone route' with my doctor, I got refferals to Endocrinologists and had a varying success with hormone therapy trials over a year period, but ultimatley I was still getting various symptoms comming and going. Two years after starting consultation with an Endo for the hormone issue I am off TRT and back running off my own natural testosterone production. I still experience Varying symptoms.
I think that the low testosterone was a bit of a red herring - and was secondary. Could I have a developing auto immune disease?
My symptoms vary and I experience periods of total remission, periods of partial or full symptoms.
- Plaque Psoriasis
- red rash on cheeks, sides of nose - exercise brings it out as 'raised'
Pitting of nails, ridged.
- Geographic tounge
constant yeast infection (penis)
- Joint issues (pain,crunching/grinding, hot to touch)
Brain fog (mental confusion, memory loss, concentration issues)
tingling in scalp when eating foods
Sore eyes (pressure feeling, dry, sensitive)
Achey burning mucles (neck, shoulder blades, upper arms) -Arms feel very heavy
Non refreshed after sleep
nausea in mornings
no motivation, no drive, no goals, no enjoyment, no laughter, no excitment
not happy, not sad. feel 'baseline'
zero libido, sex drive, sex lust, sex fantasy for 5 years
little twitches which develop into whole body jolts
(rare) experienced manic like episodes after long PUVA/UVB exposure
Develop hives/raised blisters on sides reguarly
low testosterone, high estrogen, low shbg
white pigment patch developed on torso (recent develop)
raynaud's (recent develop)
Sensitive to sunlight (sore eyes, get extreme nausea and fatiuge with minimal sunbeds/uv) (recent develop)
Pressure headaches (recent develop)
generally feel 'off' and not right.
Does anyone think that I could have some sort of auto immune problem? Most of these symptoms I have kept to myself, because they make apperances at so many different intervals - they are managable.
I think I need to go to my GP and maybe get a refferal to the relevant dept?
September 01, 2014, 06:43:07 PM by 261257 | Views: 239 | Comments: 4
Hi everyone, from Gal,
Haven't posted for a while now, but have been keeping up with the forum. Lately been hitting the Humira posts, as that's my next option. Trawling through Humira-based posts last few weeks, including "Humira here we come" from Pie - WOW !! and many others.
(btw Pie, you still doing Humira, or moved on? would be interested to hear mate.)
Was taking cyclo from May 13 to May 14 with great results in 6 weeks, but bloods playing up so in the throws of a huge rebound at the moment (s##t summer)
Humira arriving on Thursday this week and then wait for nurse to contact a couple of days later for first injection.
(Also awaiting arrival of 1st Grandchild mid September, so interesting times ).
I am thinking of doing photo diary (before pics and then a few weeks down the line) if we think it's helpful, let me know, don't want to bore you folks.
Look forward to catching up with you guys. Any advice and info greatly appreciated as always
Take care all
August 31, 2014, 02:49:29 PM by glynk | Views: 177 | Comments: 2
I'm new to this forum or any forums as it goes but I wanted to join to share my story and tell anyone battling with psoriasis. Youíre going to be alright.
Iím what some people may have called a jack the lad when I was younger, played competitive sports my whole life, generally a happy guy. Then in my prime at the age of 20, I started getting a weird rash forming on the trunks of my legs which I immediately dismissed as a heat rash. 1-2 weeks later the rash was now spreading and a silvery scale like skin now accompanied those sporadic pink blotches.
Okay, I think I best get a second opinion. ďHello Doctor, please have a look at the trunks of my legsĒ or something like that. Usual spiel and examination process, I donít particularly like visiting the doctors or hospitals of any kind, I just want my rash medication and to make a snappy exit. Then the words psoriasis were uttered, ďpardonĒ I said. ďPSORIASIS what is thatĒ? The doctor was very helpful and gave me some conventional no thrills moisturising cream and some information on psoriasis. I think he came to conclusion that it was guttate pretty quickly after walking in. I left the doctors still not completely sure what had just happened and feeling pretty low.
I did my own research when I got home, hoping that I was misdiagnosed and I could go back to my happy oblivious self. Well 2 weeks later I had the answer to that theory. SHIIIIIITTTT, Mum have a look at me, Iím covered. At this point I still lived at home (I was only 20 donít judge I was still under the spell of my Mumís bacon sandwich and bed making abilities) SHIIIIITTTT, I could see the look in my motherís eye, one of utter disbelief and sheer sadness that her son was suddenly struck with this disease.
This was the moment I realised that my oblivious ways had to stop, this wasnít just going to go away and I had to deal with it. It had spread all over my legs, my torso, front and back. I was working in retail at the time and my appearance was important to me being Mr Popularity and a typical 20 year old. Luckily it never spread onto my neck and forearms so my work clothes hid it pretty well, just a shame I f*cking stank of tar. (For anyone new to psoriasis, there is a tar based cream which I actually found slightly helpful but unfortunately they donít make a flower scented version yet).
Why me, I was angry I didn't deserve this, shamefully found myself praying, not that praying is a bad thing, just that It wasn't a habit of mine and selfishly began when something wasn't going my way. Iím quite a resilient young chap and I wasn't going to be beaten, I changed my lifestyle, eating habits and drank plenty of water thinking that I would somehow flush my body of bad toxins and help speed up my recovery, possibly the placebo effect but if it helps you stay positive then bullshit your way to recovery. I gained a new frame of mind, having a new sense of core values that still embody me four years later.
WINNING, I decided to take action, I read about the benefits of UV lights. Now Iím not saying copy me, everyone should find what works best for them. I ventured into a tanning salon/sunbed shop. I had a few sessions and immediately notice an improvement in my skin. Moisturiser was used like it was going out of fashion, constantly keeping my skin hydrated. Before my tanning salon revelation I did my best not to aggravate my skin, avoiding scratching. After my UV sessions I would go for a shower and I started exfoliating (basically rubbing something hanging in the shower like crazy on my silvery scales). Within 2 weeks of doing this my psoriasis all but vanished. Again, find your own methods as my way may not benefit you and could have adverse effects on your unique condition.
4 Years later and the beast returns.
I now work on super yacht and I canít tell you how much of an inconvenience this could have proved to be, sometimes not touching land for weeks, being difficult to get medical advice. Also having a set uniform of shorts and t-shirt, I would have nowhere to hide this time. I knew this beast and I have beaten it before and Iím sure not going to let it affect me like it did when I was first diagnosed. I hit it head on and rather than feel down and angry, I put it in to perspective and pulled the same method I used from the memory bank during my first experience. I took rapid action and my oblivious behaviour with my first encounter was a million miles away. I used the first opportunity I had to sunbathe, real UV sunlight opposed to the tanning salon. I did my exfoliating thingy and plastered on tons of moisturiser but most importantly I didn't let it affect my day to day life. I kept positive, I didn't know how long it was going to last but I did know that it wasn't bound to me forever and if I was going to deal with this again, more than anything I couldn't be bothered feeling c**p as that just takes up too much energy, just a small inconvenience that will pass soon.
WINNING, 2 weeks later it had all but disappeared.
And now Iím here writing on this forum to tell anyone suffering from psoriasis that it will be alright. PMA, PMA, PMA. Thatís what itís all about, having a Positive Mental Attitude is far more important than any research you do, anything your doctor, friends and family may say, all the treatments you try, behaviours you adopt, habits- good or bad and your general lifestyle. STAY HAPPY, STAY STRONG AND KEEP ON SMILING.
ďMake your optimism come trueĒ
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