Okay guys, now I have an idea as well, but I am not sure if it's a good one or not (so honest opinions are required).
There have been so many new ideas of new boards floating around recently that I almost lose track, but I will still take a chance and add a new one.
I have just read the post by Paul in the history room that has given me this idea:
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LoginHello everybody
My name is Paul and I have recently joined this group. I do not have PS myself but my girlfriend of nine years (Sue)has had it really bad for the last eight and a half years - we had six months together before she developed her condition. She has tried everthing available so far and not really had to much sucess apart from a good clearance a couple of years ago when we went to the dead sea for 2 weeks. We would like to go back but cannot afford to at the moment as we have just bought a new house together with a big mortgage The reason I wanted to join this forum is because I am hoping to pick up tips in how to carry on support her in a loving way - this may sound strange but from a partners point of view PS is such a stressor its hard to know what to do sometimes as it is so easy to say the wrong thing and get very hurt yourelf when the closeness you need yourself is not happening becaue of the PS - hope that doesn't read to selfish a thing to say here. I have read loads of posts from people on this site over the last couple of days and I have to say that I think that you are all wonderful supportive people and do a brilliant job keeping up morale and sharing the experiences you have on a daily basis. Sue is really down at the moment as she has just come of methotrxate and has flared up really badly. The strain on our relationship at the moment is pretty bad also so if anyone has any ideas to help her I would love to hear them. A friend of ours who has a daughter with PS has advised of a new treatment centre on France - has anyone heard of this and know much about it ?
(hope it's okay to quote his post on here - ifnot I will remove it a.s.a.p)
There are so many partners or parents (and maybe even friend?) of p sufferers on here. And obviously p does not only pose difficulties and strains on us, that are affected, but also on our loved ones, who might even face the situation more helpless (as they want to help, but sometimes cannot adn also have to take our bad and sad moods
etc.).
I wondered if it would be worthwile to have a corner for THEM where they can talk about the problems p causes for the ones not directly affected (whithout having to be afraid to get slaughtered when they actually voice THEIR worries, comlaints, angry or want to discuss their coping strategies and share tham with others).
Just a thought,
sheepz
