new to cyclosporin and need help!!!!

[NCU]

I had exactly the same thing, I was off to the loo every five seconds, maybe it's your body trying to flush it out, so probably very good advice to drink plenty of water, I don't but will start. It is scary going on it, I totally empathise. I had to give up breastfeeding my baby in order to take it which broke my heart andd made me all the more resentful of the stupid P.  But it's not so bad now, hardly notice I'm on it but I am definitely more hairy which I wrote about in my thread, sorry to repeat! Also, don't know if anyone else has had this but my periods stopped, no complaints there though!
I was told by my derm that I'm far too young to be on this for the rest of my life and he suggested homeopothy, shocking for an NHS doc. Think anything is worth a try.
Good luck to you. X

[squoink]

If a trained physician is recommending homeopathy then I'd recommend getting a new derm.

[NCU]

Really, why? 

[squoink]

Because homeopathy is quack medicine and has never proven itself superior to placebo in properly controlled clinical trials.
Psoriasis is a serious disease and your best bet is evidence based medicine

[NCU]

I used to be really cynical about things like that too, but even placebo can be effective. Mind over matter, I'm a firm believer in that. If psoriasis can be stress related than surely it's possible to control it with positive thinking along side everything else. I'm at the stage where I would literally try anything! 

[squoink]

Hi NCU,

It's not cynical about homeopathy- it's fact. Some but not all conditions are placebo responsive. If you get a placebo response to anything (however bizarre) then great. Placebo responses still tend to be small and not long lasting however - that's why conventional medicine has to prove it works well over and above a known placebo response.

Good luck with whatever you try though

[NCU]

Hi Squoink!
I hear what you are saying, I watched a programme once about homeopathy in which they explained that really there's nothing in it.
Do you not believe that if you believe something will work it could make a difference? I mean thaty have done tests with placebos on very real diseases like cancer and found amazing responses. And people on here talk about meditation and such like.
Do you mind if I ask how your p started?
Mine started because my life was going ..........rubbish. I got just a few little bits, elbows and hands, looking back don't know what I was moaning about, nothing bad at all and it wasn't sore and didn't itch, I suppose I was being a little vain really! But then in october some prat in a van drove into the side of me, I'd never had an accident before and was very shaken, about two days after that my P went mad, became sore and itchy and started to spread like mad. Then it was just one long round of it flaring more and more, I became EP, couldn't walk or use my hands and ended up in hospital. I know lots of people have had theirs for years but I think mine flared up very quickly in a very short space of tie, that's why I'm not ready to accept this is for life. If it's stress that can start it then surely I can make my mind control it? Am I completely delusional?! 
 

[squoink]

Hi NCU!

You ask "Do you not believe that if you believe something will work it could make a difference?"

Absolutely. That IS the placebo effect - and can be invoked by any old rubbish that someone believes in.

The crucial thing to realise is that is is invariably short lived and not necessarily particularly effective. It's only a small percentage of people that get a placebo response as well.

Modern drugs have to prove themselves for a large percentage of patients and be more effective than drugs already out there that in turn have had to prove themselves effective over and above placebo.

I don't have P. I'm 42 and have lifelong, severe, full body atopic dermatitis. I'm 3 days into my first course of ciclosporin - no side effects so far Stress can be an exacerbating factor but it's not causal.

No, you're not delusional but I very much doubt that a reduction in stress will effect a psoriasis cure but anything you can do to reduce stress is gonna be a good thing. Sport is good, but my skin condition has precluded that for many years I've tried meditation but it wasn't for me. Laying on the sofa and listening to your favourite music is good.

Take care

Steve

[hayliex]

hi,
 my experience with it was not that good. i had bad side effects they made me violently sick, dizzy, thirsty also the worst was they made my gums swell which cost me a very large dentist bill.

i really hope u dont experience that, but they were all my side effects xx