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Author Topic: ** New Recruit **  (Read 2253 times)

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Offline Pieman

Re: ** New Recruit **
« Reply #10 on: February 28, 2010, 06:30:26 PM »
hi mosschops :D

sounds like you have a really good attitude 8)
good luck with the mtx.
pie ;)
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Offline babyblue

Re: ** New Recruit **
« Reply #11 on: February 28, 2010, 08:05:55 PM »
Hi mosschops,

Your posts reflect the way many of us feel, I can never feel comfortable with P and  will always hide it.  When summer comes, following my usual course of UVB, I'm ready to take on the world .. but then P begins to come back ... and my arthritis plays up .. and I count the days till summer comes round again.   

You are beautiful and I'm glad your girls remind you of that ... unconditional love brings out the best in all of us - and when you're having a bad day, your girls are the pick-me-up you need to be reminded of what truly is important.

Glad MTX is worthing for you and hope someday soon you get your wish and don't have to hide away any longer.   :)

Hugs
BB
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A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline mosschops

Re: ** New Recruit **
« Reply #12 on: February 28, 2010, 08:33:05 PM »
Thanks BB

This is the first summer I've had to deal with my skin being this way (which in many respects makes me vey lucky) but I'm dreading it! Like most people who don't have to care about their skin, my summer wardrobe consists of short or sleeveless things. This year there is no way I'd dream of wearing them & to most people my p prob isn't that bad!

I am hoping the privacy of my own garden & exposing as much of my skin as possible then will help it as at the moment my derm will not refer me for UVB treatment. I do have a small hand held UVB light but it seriously takes me hours a day to treat just my arms and chest & I can't go on doing it as it leaves me no time for my family. Am seriously considering standard sunbed sallons as I have read from other people that, in moderation, they can help & I'm feeling desperate again today  :'(
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Joan J

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Re: ** New Recruit **
« Reply #13 on: February 28, 2010, 08:38:58 PM »
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Thanks BB

This is the first summer I've had to deal with my skin being this way (which in many respects makes me vey lucky) but I'm dreading it! Like most people who don't have to care about their skin, my summer wardrobe consists of short or sleeveless things. This year there is no way I'd dream of wearing them & to most people my p prob isn't that bad!

I am hoping the privacy of my own garden & exposing as much of my skin as possible then will help it as at the moment my derm will not refer me for UVB treatment. I do have a small hand held UVB light but it seriously takes me hours a day to treat just my arms and chest & I can't go on doing it as it leaves me no time for my family. Am seriously considering standard sunbed sallons as I have read from other people that, in moderation, they can help & I'm feeling desperate again today  :'(

It always seems worse at the end of the day - don't use tanning beds - becaus ewhen you go to the derm and they prescribe UVB - they do it in measured doses - it is no good having clear skin now and end up with skin cancer when you are older - your skin is bad to you - so don't worry about  moaning - get your butt back to the Derm and ask for some UVB - I would never wear short sleeves when my skin is bad - but the more you stress the worse it will get, now chin up and think positive :)
Love
Joan
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Offline mosschops

Re: ** New Recruit **
« Reply #14 on: February 28, 2010, 08:50:37 PM »
I have a review with my derm next month but the MTX has made such a marked improvement since I saw her early Jan that I'm sure she will be quite pleased with herself & my improvement & UVB will be further away. Terrible that it seems you have to be really dire & on the brink before they give you the full force of what they have available to try & treat it.

UVB is top of my list to try but seems to be at the bottom of theirs. Looked at doing it privately but once i start that route I can't go back on NHS to have it  >:(

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Joan J

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Re: ** New Recruit **
« Reply #15 on: February 28, 2010, 09:00:36 PM »
I think different derms have different approaches.  When I was young and the kids were little they tried to talk me into taking oral meds - but Iwas in hospital with people taking it and the side effects were dreadful - this was 20 years ago - but it made me decide that I would never take them.  When I had the last but one bad outbreak - I was plastered - the derm mentioned drugs - and I told him categorically that I would not take them - he offered UVB and I have had two courses since.  I have had P since I was 7 and really feel for those who get it later in life, especially if they have PA as well - so my thoughts and ideals are my own - but the best advice I was ever given was from SJ on here - go to your derm with a list - tell them what you have researched and be firm with what treatments you can realistically manage to fit in with your life
Joan
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Offline JUDGE DREDD

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Re: ** New Recruit **
« Reply #16 on: February 28, 2010, 10:58:24 PM »
Hello & Welcome Mosschops.  8)
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Offline Scruff

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Re: ** New Recruit **
« Reply #17 on: March 21, 2010, 01:03:17 PM »
Hi Moss and welcome along to the forum. It is an unfortunate fact with p that the flare can continue long after the stress that originally cause it ::) Keep moisturising, it'll do your skin the world of good.

Scruff
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