To be fair I only seem to come here when I am really fed up of this condition and don't know where else to turn and for that I'm sorry as I should be offering support to others as well.
Off all medications for both the PPP and the PA as they have discovered that any immune suppressants open me up to every infection going, so am now just supposed to be 'managing' the pain. First was told to up Tramadol to 8 a day, then after awful withdrawal one night when I ran out I was told 8 is too high, then tried matrifen patches with 3 Tramadol a day, no change in pain relief so upped matrifen to 25mcs and no Tramadol. After 4 days and nights on ceiling back to lower dose matrifen patch and 4 Tramadol a day.....that was 4 doctors in 2.5 weeks! Had enough, definitely had enough.
