Author Topic: Fed up!!  (Read 943 times)

0 Members and 1 Guest are viewing this topic.

Offline april92

  • Novice
  • *
  • Posts: 3
  • Member of the Psoriasis Help Organisation
  • View Gallery
Fed up!!
« on: January 17, 2012, 01:23:49 PM »
Hi, I'm April, a 19 year old university student currently suffering with severe psoriasis.  I have had psoriasis for seven years now, however, it has never been this bad.  I have tried every ointment under the sun, as well has undergoing light treatment twice.  However, since starting university, I have had to move doctors and therefore, move hospital - hence my psoriasis getting worse.  I visited my consultant in July and she said that she wanted me to try another cream first and if that didn't work, she would 100% put me on a light course again.  I agreed and returned in August as my skin was a lot worse and she said she wouldn't be able to let me have light treatment as I was moving soon - although she did know this before - I felt deflated, the only thing getting me through the summer (covered up in long sleeved tops and leggings) was the thought of the UV treatment, however, this never happened.

My consultant did, however, write a letter to my GP asking her to directly refer me to the hospital in the area I was moving to (after a lot of persuasion!) but this took forever, as my consultant misinformed me again and I was told that the GP cannot refer me to another hospital in a different area, instead, writing a letter for me to give to a new surgery, asking them to refer me to a hospital.

Therefore, I joined university in September feeling very scared - most people couldn't wait to go out and party and wear their pretty dresses, however, I have to find long sleeved dresses and thick tights in order to look presentable - it really upsets me.

Finally, I joined a doctor last week (as the whole process took forever to get the letter etc) and they told me if I went there before 10AM today, they'd let me sign the registration form and I could see a doctor, however, the receptionist quickly and abruptly told me that they didn't register me correctly, thus me waiting LONGER for another appointment, and that i'd have to wait for my records to be sent over anyway if I need a referral.  I quickly let the doctors in a flood of tears.

Currently, I have no ointment, as I was using dovobet for years (when it is only meant to be used short-term) and it stopped working.  I do not know what to do anymore, doctors seem to keep letting me down and I am finding it so hard to enjoy my university experience as my skin plays a big part it in.   

I ended up going for a sun bed this morning.  Yes, I know it isn't great for my skin but I am so desperate to look better, that I will now do anything.  I have a holiday coming up in April and I really wanted to finally look nice and feel comfortable on a beach, rather than explaining my skin condition to everyone like previous years.

I would really appreciate any advice.. :(

Thanks for listening to my ramble!

April
« Last Edit: January 17, 2012, 01:36:39 PM by april92 »

Offline Crashed

Re: Fed up!!
« Reply #1 on: January 17, 2012, 01:36:13 PM »
Hi April,

Have you tried going walk in centre to explain your situation to get some ointment of some kind to see you through?

I moved last year and needed to see a GP quickly, not related to my P but to get some medication I needed. Took A LOT of persuasion but got to see a GP before they received my notes etc... from my previous GP.

Offline april92

  • Novice
  • *
  • Posts: 3
  • Member of the Psoriasis Help Organisation
  • View Gallery
Re: Fed up!!
« Reply #2 on: January 17, 2012, 01:47:49 PM »
Hi Crashed, I asked if they'd do that this morning when they said I hadn't been registered properly, however, she was very unhelpful and said until they received my notes they couldn't do anything - however, spoke to my Mum & she said that if it's an emergency (obviously not life/death but something that is causing problems) then they should see you at any surgery.  Therefore, I called my old doctors surgery and booked an appointment with them for this Friday as I'll be back in the area & they have my notes and know my condition.    Part of me wishes I'd put my university life on hold, just to sort this out as my skin has deteriorated a lot since moving due to the problems of new doctors etc.   I really hope that when I go on Friday, they'll give me a new ointment as I know that not using an ointment for so long isn't heping!  Just not sure what they'll be able to give me as I have tried anything.   Do you have any recommendations regarding treatment that has worked? 

Offline SallyD

Re: Fed up!!
« Reply #3 on: January 17, 2012, 04:29:44 PM »
Sorry your having a rough time at the moment, I know its hard but be as positive as you can. Not sure what area you are in, but most areas have walk in centres, where you can see a doctor without being registered, if you don't get any success on Friday, look for one in your uni area.
Good luck....S x

Offline Crashed

Re: Fed up!!
« Reply #4 on: January 18, 2012, 01:17:10 PM »
You are not allowed to view links. Register or Login
Hi Crashed, I asked if they'd do that this morning when they said I hadn't been registered properly, however, she was very unhelpful and said until they received my notes they couldn't do anything - however, spoke to my Mum & she said that if it's an emergency (obviously not life/death but something that is causing problems) then they should see you at any surgery.  Therefore, I called my old doctors surgery and booked an appointment with them for this Friday as I'll be back in the area & they have my notes and know my condition.    Part of me wishes I'd put my university life on hold, just to sort this out as my skin has deteriorated a lot since moving due to the problems of new doctors etc.   I really hope that when I go on Friday, they'll give me a new ointment as I know that not using an ointment for so long isn't heping!  Just not sure what they'll be able to give me as I have tried anything.   Do you have any recommendations regarding treatment that has worked?

With regards to treatments nothing works for me on the ointment side of things so I really couldn't help in that respect - but one thing I've found on this forum is that everybody is different and reacts differently to creams, tablets, uvb etc... To be honest, some people might disagree I dont know, but if going on the sunbed helps I'd do it until you get your doctors & referrals sorted if its causing you that much misery. Sunbeds do help me, but the minute I stop using them I flare up again so I use it constantly & just end up getting stupidly tanned; so I avoid doing it anymore. I't is bad for your skin, but then so is UVB, short term I cant see any harm. I'm kind of in the same boat as you atm, i'm waiting for an appointment to come through from the derm, having a bad flare up and the only creams I have is double base - I just plaster this on, then plaster more on top of that.

As SallyD said stay positive - I'm determined to find the right treatment for me this year and have clear skin for the first time - this is giving me a more positive mindset. I have to keep my elbows bent because it hurts so much to straighten them but im not letting this get me down too much because I have it in my head that I wont be in this boat by next year - try stay positive  - get what you can from the doctor and try and smile knowing that you will get the UVB and it may be a miricle at clearing your skin  ^-^

Offline MULLINDE

Re: Fed up!!
« Reply #5 on: January 18, 2012, 08:42:46 PM »
Hi April,

It sounds like you are really being given the "run around". You need to get to see a Derm, and  on a regular basis. And I had the same issue about 7 years ago. In desperation, I went to Accident and Emergency (A and E) at our local hospital and the doctor there gave me the mobile number of a consultant Derm. I don't know whether I was just lucky, but you could give it a try. My advice is just to keep banging at the door and don't take no for an answer.

At best you need some sort of light treatment, or some medics.

Let us know how you get on.


Regards,

Daryl

I used to have more flakes than Kellogg's

Offline Dev

Re: Fed up!!
« Reply #6 on: January 19, 2012, 11:59:00 AM »
If you go to A & E with a bad health issues they will usually refer you as an emergency so you should be seen quickly. I have done this a few times over the years but mostly for my daughter. The most recent was in September 2011 for a skin problem and we got to see the derm within 10 days.

Offline Scottishbill

  • Novice
  • *
  • Posts: 4
  • Member of the Psoriasis Help Organisation
  • View Gallery
Re: Fed up!!
« Reply #7 on: January 24, 2012, 02:59:10 PM »
Hi April

P is in my family and I've largely ignored mine as I know that there is no cure. However it recently flared and I stumbled across Exorex lotion on Amazon. A Google search turned it up on Oneclickpharmacy as well and I put in an order. Within 24 hours of first using it my P was less itchy and was smoothing. The improvement is amazing. A search of this site shows that it does not work for everyone but it has for me. Its expensive - and you are a student - but worth a try.

Bill

Offline leamarieuk

Re: Fed up!!
« Reply #8 on: January 24, 2012, 03:56:37 PM »
You are not allowed to view links. Register or Login
Hi April

P is in my family and I've largely ignored mine as I know that there is no cure. However it recently flared and I stumbled across Exorex lotion on Amazon. A Google search turned it up on Oneclickpharmacy as well and I put in an order. Within 24 hours of first using it my P was less itchy and was smoothing. The improvement is amazing. A search of this site shows that it does not work for everyone but it has for me. Its expensive - and you are a student - but worth a try.

Bill

exorex it available on prescription, works out a lot cheaper ;)
HELP...........................

Offline Scottishbill

  • Novice
  • *
  • Posts: 4
  • Member of the Psoriasis Help Organisation
  • View Gallery
Re: Fed up!!
« Reply #9 on: January 24, 2012, 05:50:32 PM »
Absolutely right, Leamarieuk and I should have said so. In fact, if I still lived in Scotland it would be absolutely free as there are no prescription charges there. As I live in the Algarve and Exorex is not prescribed in Portugal, I have to pay. The upside is that from May to September the P is controlled by lying in the sun - although in a tightly regulated way as I also have vitiligo.

Bill