Finally...to share my history!! :)

[tbrown]

Lets see, I was 11 when I got chicken pox. Which of course covered my body. And they never went away, every spot became the dreaded P. Im now 25 with one son who is 3. I am currently treating with a steroid cream. I have it from scalp to toe. Not huge ones (between pea and nickel size). Im sick...sick, sick, sick.....of putting on medicine!! GRRRR!! The skin on my face is so thin now I am constantly burned! Everyone thinks Im embarrassed all the time! Which I probably am! And the ointment is so greasy!! yuck! When exactly are you suppose to put this on twice a day?? Be greasy at work? shopping? sex?? Wait..WHAT SEX?? Im so     embarrassed about my appearance.....GRRRR!!!!  Sometimes I have to pretend they arent there and turn out the lights so I dont die of lack of sex (or so my hubby doesnt).....Whew!!! that felt gooood!!!!!!  Thanks to you all for listening! I love this place! Makes me feel normal or at least not so strange!  
kisses to you all!!!!           tonya

[Michael]

Hi Tonya

Welcome to the forum...

Having psoriasis as long as you have you must have seen a dermatologist on a number of occasions?

Have they ever recommended or have you considered light therapy, either PUVA or UVB???

I have had PUVA and it works really well, although being clear doesn't last for ever it feels good whilst it does..

Cheers
Michael
((*o

[Alison]

Having psoriasis as long as you have you must have seen a dermatologist on a number of occasions?

Have they ever recommended or have you considered light therapy, either PUVA or UVB???

 i think it all depends on what area u live in as 2 what treatment they offer :-/.   ive had this for just over 10yr now and have only just started puva .
where i lived b4 here all they ever offered was cream cream n more cream.


welcome tonya,
  you are so right when u say u feel part normal being here

[Dani]

Hey Tonya,

Thanks for sharing your story. If the steroids are burning your face, maybe you should have a break from them. I only use them 7 days at a time then leave it for a bout a month.

D

[Guy]

Hi Tonya

Thanks for telling us your P tales.

I too developed it at the age of 11 and its been with me ever since.  The sun tends to help me so I try to get away twice a year  - would love to go to the Dead Sea one day to get a longer lasting clearance - trouble is its so expensive.

I have used steroid creams a lot in the past and tend to agree with the above that its good to give the skin a break now and again. I use coal tar cream (overnight) and that helps as well as loads of moisturisers of course.  There is a cream sold in Boots called Kamisollan (sp??) which has camomile in it and its recommended for nursing mothers for chapped nipples - its very greasy but again I use it at night and its really good.

Putting on lotions and potions every day, twice a day is a real pain in the butt I know and every so often I just can't face it any more..........but then I relent and go back to slapping a bit more of something on..........well we have to really.

Keep posting Tonya, looking forward to them.
Guy  

[skreid]

Hi Tonya and welcome to the board from a fellow newbie..

I'm in the same boat as you too. Got P when I was 6 had it every single day since. Now 28.

I know what you mean about the creams n stuff I've tried loads of treatments with out what I would call success, so I basically gave up on all treatments. Most I do now is get out in the sun when I can, put on as much moisturiser as I can and relax, take each day at a time.

In general I actually forget its there most of the time, I think this is due to getting it so young, I can't remember not having P.. There are only a couple of occasions that the embaressment pushes through, this tends to be when females are involved..

but my philosophy: If someone's got in issue with my skin, thats their problem. I am who I am, and P has played a big part in making me that person.

Lifes to short to worry about it. If I worry it gets worse.. not a good situation.


Sometimes it pi**es you of, and we have to get over it. But you've come to the right place to vent your anger.

Cheers

Stu.

[tbrown]

  Aaahhh!!!!!! I can not begin to tell you how wonderfully normal all of your posts have made me feel!! Its not just me!! Until I found you all, I had never actually talked with anyone that had P!! I cant stop smiling!!

Hmmm...I have never been treated with light (self treating in the summer!)(Tennessee USA, lots of sun) But its not very good for my skin in the long run....dont wanna look like leather at 30!

Yes...Creams, Ointments, Tars.....Sometimes I would like to pick them up and throw them out the door!! But, alas....I must continue.

I pray every day I havent passed it on to my son....only time will tell. My father had it.

Thank you all so much! Your stories have helped me tremendously!! You are all wonderful!

kisses to you all!

 Tonya

[Dani]

I also got to a point where I was sick to death of lotions and potions. Now I tend to just use emolients in the shower and bath (aqueous cream and E45), as they're convienient and don't leave you feeling gooey!

As well as those I take Oil of Evening Primrose and Cod Liver Oil capsules to traet my skin and take aloe vera juice daily. I'm also tinkering with the Pagano diet (but emphasis on tinkering, I've never been good with diets!!)

I find these things to much more user friendly as they are quick and easy (with the exception of the diet) and mean I have to put very little on my skin.

However, I do exfoliate in the bath once a week. I hate doing this as I bleed and it stings like hell but it helps get rid of the scales.

Best of luck
Baby D

[skreid]

However, I do exfoliate in the bath once a week. I hate doing this as I bleed and it stings like hell but it helps get rid of the scales.

I do this too, but I tend to use a nail brush and just basically scrub like buggery till it stops feeling so good. Then the pain sets in. Mainly on my legs though, weird but once I start scratching I can't stop, but only while in the bath or just after I come out. All the other time it fine.

Stu.

[tbrown]

I have never exfoliated to the point of bleeding...on purpose anyway. Sounds rather painful. Im not big on pain. but then again Im not big on P spots either!  

Does anyone know if Flax seed oil helps Someone told me it did but....they dont have P!! And I'll be damned if Im gonna put on another oil that doesnt work! Ugh! Oil of Evening Primrose sounds very ladylike.... maybe I will try some of that!  (of course if you told me a used jock strap placed firmly on my nose for 24 hours helped ....i'd do that too)

Thanks again you guys!!!

kisses to you all!!!

Tonya