Author Topic: First post from an old sufferer  (Read 653 times)

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Offline isitsnowing

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First post from an old sufferer
« on: March 08, 2010, 02:29:21 PM »
Hi

For the first time in 48 years I feel as though my psoriasis is properly under control and I want to share my experience with you in the hope that it will help.

It started when I was 7 - all over body but not face or scalp. Treatment in those days was coal tar bath and steroid cream. I was in my twenties when a doctor first mentioned that long-term use of the steroid creams they kept prescribing was not a good idea. They didn't seem to work for me anyway. I abandoned the doctors and their creams, scratched myself raw all winter and lived for the summer when the sunshine would clear it up.

In 1998 I discovered Exorex and for me it was a miracle cure. I was clear for a whole year. Then it just stopped working. I have no idea why.

Winter 2004 it was so bad I had to give the medical profession another chance. Ichthopaste bandages became my new best friends. Then someone (alarmed by how I was smelling no doubt) told me that she managed psoriasis on her feet with Epaderm. I ditched the bandages and went back to bathing morning and night, slapping Epaderm all over my wet skin when I got out the bath. My psoriasis was still angry but the Epaderm helped in that it didn't get so dry.

In 2007 I joined this site, I never posted anything but I read lots of posts and in particular the things being said about SLS. I was so stupid I'd been lying in my Radox baths thinking - 'God look at the state of my legs - this hot water is really aggravating them'. I now know it was the SLS in the Radox doing the damage. I started reading the ingredients and the only bath product I could find not having SLS was Palmolive bath milk.

I haven't looked back. I now bathe once a day in the non-aggravating Palmolive, slap loads of Epaderm on when I get out and let it soak in. My skin is clearer than it has ever been. Except last week I ran out of Palmolive and for two days I bathed, not thinking, in a bath foam I'd bought back from the Dead Sea. I woke up with my fingernails bloodied from scratching and my partner had to point out to me that I'd been bathing in SLS again.

That's my story, apologies for the length but if it helps someone then it's worth it.

Kate_

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Re: First post from an old sufferer
« Reply #1 on: March 08, 2010, 08:23:15 PM »
Hello and welcome to posting on pho ......Im glad youve found something that worksi......im a big fan of epaderm ,wonderful lardy greasy stuff lol,but works a treat .

I hope now youve started posting you continue ,its nice to have new people posting and adding their thoughts and ideas

Best wishes

Kate  :)

l

Offline Midge

Re: First post from an old sufferer
« Reply #2 on: March 08, 2010, 08:41:03 PM »
Hello! Yes, keep posting!!

I have a problem with SLS too - took me a long while to work it out, but I don't think that's rare from what I've gathered from posts on here!

Epaderm really is great stuff, I use it (and Dermol) instead of soap, although I've recently been given some olive oil soap by my Mum which seems pretty benign at the moment!

Nice to meet you!

~Midge  ;)

Offline JUDGE DREDD

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Re: First post from an old sufferer
« Reply #3 on: March 08, 2010, 10:46:09 PM »
Hello and Welcome.  8)

Offline Pieman

Re: First post from an old sufferer
« Reply #4 on: March 08, 2010, 10:49:47 PM »
hi from me too :D
pie ;)
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Offline flecksable_flyer

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Re: First post from an old sufferer
« Reply #5 on: March 09, 2010, 06:36:29 AM »
Waving from across the pond in the USA!!! :D :D :D

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Offline sjlmcookie

Re: First post from an old sufferer
« Reply #6 on: March 19, 2010, 11:26:43 PM »
I too am an old sufferer. I have guttate P which started when I was 7. I had bad flare ups at 14 and 21 and my GP just used to try to make me take Valium, even at 14!

I have tried many treatments over the years and took part in the trials of Dovonex at Kings college hospital. I try to avoid anything with SLS same as many of you but I also react badly to anything with Lanolin in as well.

UVB is the best treatment, but going to the hospital 3 time a week is so difficult to fit in with work.

I still go back to Dovonex as it doesnt contain any steroids, but for a quick clear I use Dermovate for 2 weeks followed by 2 weeks weaning by using Eumovate. I wouldnt recommend this very often tho as Dermovate is a bit vicious.

I have been taking vitamin D3 for the last 3 months and my P is slowly clearing, amazing not having to use creams. However I am not sure about the long term effect, can anyone advise me 
thanks

Offline jotee

Re: First post from an old sufferer
« Reply #7 on: March 20, 2010, 08:49:35 AM »
Hello and Welcome :)
 
I agree that SLS free stuff seems to work wonders. Although at the moment I'd like them to be a bit more effective!!! Regarding D3, I believe it's okay to take long term. It's part of a regime on the alternative forum, so maybe have a look there for more info. No doubt it depends on what kind of dose you are taking too.

Jotee
“We don't see things as they are, we see them as we are.”

Offline Scruff

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Re: First post from an old sufferer
« Reply #8 on: March 27, 2010, 11:33:52 AM »
Hello, and welcome along to the forum. A lot of us sufferers find that the miracle treatment suddenly stops working - ho hum! I'm glad that you've found something that is working for you. Long may it continue.

Scruff
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