glad i found this site.....

[hels]

  I've just read some of the new posts on here and as a someone who has had psoriasis for the around 14 years i feel like I've found a home...for too long I have tried to "cope" and get on with it, letting it slowly destroy my confidence and any chance of relationships... I have pushed people away and buried my head for so long that it started to feel like the norm... until I realise how much I'm missing out on.. and I don't know what to do...  my biggest downfall is not wanting to feel like a burden or a moaner which i know is v. self destructive. I'm great at giving advice bit dreadful at taking it. Does anyone else have the guilt I  feel that it's somehow myfault and I'm missing something - my friends are married with lovely children and I'm wondering if that is ever going to happen. not every day is bad.. I'm sure lots of people here relate to this.... in tears but glad to have found a voice.....

[Fred Hoggin]

Hi Hels, welcome along.

You will find lot's of people here who understand, wipe away the tears 

All the best.

Fred. 

[hels]

thank-you!

I've been meaning to do something positive for so long, and while I'm upset I realise from all the posts here I'm not on my own, talk is good and that's my biggest problem... will strive not to bottle it up, finding this is my way forward  I  know there's no cure, but people who understand what it's like is a great tonic!!
thanks again
x

[Kate_]

Hello Hels and welcome


Think youve found the first thing thats gonna help you .....this place .....should be handed out on prescription .....

Everyone here understands and its nice to be able to freely have a rant or a moan ,lol

All the very best look forward to seeing you around 

[Michael]

Welcome to PHO...

[Noelo5]

I've just read some of the new posts on here and as a someone who has had psoriasis for the around 14 years i feel like I've found a home...for too long I have tried to "cope" and get on with it, letting it slowly destroy my confidence and any chance of relationships... I have pushed people away and buried my head for so long that it started to feel like the norm... until I realise how much I'm missing out on.. and I don't know what to do...  my biggest downfall is not wanting to feel like a burden or a moaner which i know is v. self destructive. I'm great at giving advice bit dreadful at taking it. Does anyone else have the guilt I  feel that it's somehow myfault and I'm missing something - my friends are married with lovely children and I'm wondering if that is ever going to happen. not every day is bad.. I'm sure lots of people here relate to this.... in tears but glad to have found a voice.....

Hi hels

I relate a lot to wot your saying i think all of us are not confint with the p, i thought id never settle down with a girl friend a few years ago, but now iv 2 kids and a lovely girlfriend. When the time is right it will happen. Lots of people respect ya for what ya are and not what ya look like..

welcome to this great site...

[Scaled Down]

Hello, and welcome from me too.

[hels]

 

thanks to everyone who sent such lovely replies, Having people who understand is a big relief and a definate starting point for me.....  I want to deal with this both on the inside and outside and at least now I know where to come to share how I'm feeling, good days and bad - you are all very kind xx

[babyblue]

I've just read some of the new posts on here and as a someone who has had psoriasis for the around 14 years i feel like I've found a home...for too long I have tried to "cope" and get on with it, letting it slowly destroy my confidence and any chance of relationships... I have pushed people away and buried my head for so long that it started to feel like the norm... until I realise how much I'm missing out on.. and I don't know what to do...  my biggest downfall is not wanting to feel like a burden or a moaner which i know is v. self destructive. I'm great at giving advice bit dreadful at taking it. Does anyone else have the guilt I  feel that it's somehow myfault and I'm missing something - my friends are married with lovely children and I'm wondering if that is ever going to happen. not every day is bad.. I'm sure lots of people here relate to this.... in tears but glad to have found a voice.....

hels, welcome to pho land.  Each of us share many similar experiences, we want to forget about having P., but its hard to escape from and others, even family members - if they don't suffer similarily don't know what its like.  This is a terrific resource, there's lots to read ... and more to learn, so make yourself at home, you're amongst new friends now ... 
Hugs
BB

[Jamie..]

Welcome along Hels, and good for getting your thoughts into writing. Many of us can relate to how your feeling and rest assured you are not alone to suffer. The amount of times something has gone wrong in my life and i've sat their alone, looking at my skin, thinking i must have done something really bad in a previous life to deserve all this .. . .   I thought i was alone with this and no one understood me till i found pho (well still not sure people understand me? ) It is not something you have to bottle up and there is lots of lovely people and advice here. Take care

[Brenton/oz]

welcome,

i just wish i'd found this site years ago

i'm still amazed how many have no idea what P is.


how many here have told friends/work colleagues etc that they have PSORIASIS ,
with the normal reply of  'WHAT ? OF THE LIVER ?

i get a laugh out of it now

almost feel inteligent

brent/oz

[hels]

 

amazing what a few days of coming on here has done for me,

Brenton, I have had the comment about cirrosis (spelling not my strong point!) more than once with a look of horror! only to explain and then get a look of concern and sometimes equal horror that I have  some kind of grim plague!

really looking forward to being part of the family here and catching up with you all and how you are getting on, I'm really passionate about a non drug therapy approach  as I've used steriod creams in the past and for me  they have stunning initial results only to damage your skin and for me personally the p comes back with force when you stop them ( I appreciate that my psoriasis is not severe and some of us need some really strong medication if our p is really bad)
so much info on here about diet and general  wellbeing
where  have i been for so long?!
thanks all for support and sending mine back to you all x

[Pieman]

hiya from me too hels

glad you found us...
pie

[Joan J]

Hello - I have only just seen this.  As everyone else has said, most of us have felt like you at some point in our lives, we all have different experiences, but the bit that caught my eye with your post is that your friends have children - I have suffered severe P since I was 7 - but I met my husband when I was 16 and scabby - fell head of heels and we have been married for 31 years next week.  We have 4 children and now 4 grandchildren.
Most of the time it is bearable, but we do miss out on things - I can never wear short sleeves, never learned to swim and a million other ' normal' things - What keeps me going is thinking about what I do have in my life, not what I don't have or can't do.
PHO is a good place to air your feelings and also learn about treatments and coping startegies - you can have a laugh at time too
All the best
Joan

[karen t]

Hi I feel exactly the same for year's Ive felt like that. reading peoples posts I have felt exactly the same as them at somtimes in my life.
It makes you feel like your not alone. xxxx


'

[JUDGE DREDD]

Hello & Welcome Hels. 

[karen t]

Hi Hels  I just want to agree with Joan Istared with P when I was 10 I'm now 44, met my husband when I was 21 been married 19 years
this year. I've got 2 teenagers (agh stress). I've had my ups and downs with p. But I always think of the good things I've got. My p is no where as bad as some people have it, but when it's worse for me I keep thinking of all the good things in life.
I am sure you will meet someone one day and personality is a good attractor you could be the best looking person, but be a horrible person.  You sound really nice keep smiling I know it's hard somtimes but I'm sure you'll be ok.


Love and best wishes Karenx

[paulmh]

I've just read some of the new posts on here and as a someone who has had psoriasis for the around 14 years i feel like I've found a home...for too long I have tried to "cope" and get on with it, letting it slowly destroy my confidence and any chance of relationships... I have pushed people away and buried my head for so long that it started to feel like the norm... until I realise how much I'm missing out on.. and I don't know what to do...  my biggest downfall is not wanting to feel like a burden or a moaner which i know is v. self destructive. I'm great at giving advice bit dreadful at taking it. Does anyone else have the guilt I  feel that it's somehow myfault and I'm missing something - my friends are married with lovely children and I'm wondering if that is ever going to happen. not every day is bad.. I'm sure lots of people here relate to this.... in tears but glad to have found a voice.....

She has never said it but I'm sure that my ex-girlfriend ended the relationship because she thought I looked ugly because of my P, thankfully for me I am a little self centred and don't let things like that bother me; her loss.

I'm sure that you'll find someone that is very understanding; maybe a P sufferer themselves.

[hels]

 
thanks paulmh  Karen t, Joan

thanks for your support, you are all  so right!!  since posting last week I have honestly never felt as positive as I do now, and having met such a  great group of like minds a weight has truly been lifted,

As is sometimes the way something else has happened this week that has sent the stress levels soaring....however I now  have somewhere to go and vent my thoughts..

will post a picture on here when I get my courage up!

catch up soon Hels x 

[Pieman]

that's the spirit!..
pie

[titch]

Hi Hels, welcome, i am new here too, wish i had found it 15 years ago, but now is good too - to be in one place where everyone gets it is such a comfort............and a laugh too

[hels]

thanks titch!!

Look forward to seeing you around on here!

found lots of reasons to smile since looking at the shared experiences on here, and glad that so many refuse to let P beat them into the ground whatever their approach is
hels x

[sadie]

hi all
   ive just joined ere tonight, cant believe i havent before now... thank you for bringing everyone a voice im loving all the posts at the mo.. im 41 wife and mother of three .. i  have lived with psoriasis since i was 7yrs old, i know nobody who also suffers personally , well not that im aware of..  but im so glad now i finally have somewere were i can speak, rant, rave and cry (knowing you all know why) lol hope to be able to strike a good relationship with you all and help were i can and vice versa.. ive had a very stressful day today.. im on an emotional rollercoaster at the mo ( to everyone else it looks ,more like a full nerveous breakdown lol.. just been reasigned to the hosp and awaiting dates to recieve light treatment and the true life of the vampire for 8 weeks hiding from natural light lol.. please feel free to let me know if you have had this treatment and please share with me some comforting thoughts as at the mo im terrified x