Author Topic: Hello - please excuse the self pity!  (Read 5404 times)

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Offline 12345

Hello - please excuse the self pity!
« on: March 09, 2009, 09:35:27 PM »
Just trying this as an experiment. This weekend I wanted to speak to a close friend of mine about my psoriasis and how it makes me feel but... I just couldn't;t do it.  So, I'm telling my story to see if it helps (me!).  I'm 34 and have had psoriasis for around 9 years.  It was only last year that I was referred to a dermatologist.  I've had UVB therapy which was fantastic and cleared my psoriasis for around 4 months but now it's as bad as ever.  I'm waiting for another course.  I think it's pretty bad - guttate p everywhere - face, hands and just about everywhere else that I'd not care to mention.  But, I think I'm very close to giving up on life - I don't mean suicide- but I think that there will soon come a day when I can't go outside and face the world.  I am married and have young children and I think I go about my normal routine for them.  I feel like my marriage can't last even though my husband is nothing other than supportive.  I've realised that if I don't like myself or find myself attractive, I find it impossible that anyone else could think of me as such.

I've gone from  a very confident person to someone who can't see any good in themselves at all.  I can't speak to my friends about this - I don't know why but I just can't.  Psoriasis makes me feel so ashamed and I can't bear to utter the word. Every time I go to the doctors they suggest antidepressants even though I go to ask for something completely unrelated!  I'm at the stage now where I think they're right and I should take them, but I'm breastfeeding so can't even do that to help myself.

I did feel like I was the only person who felt like this and who suffered from psoriasis (by the way, I'm not stupid so I know this can't be factual, it just feels like it).  I'm astonished that so many people have their (attractive!) photos by their posts and that they sound so upbeat.  I realise that this is full of self-pity, and I apologise for that, but I am at a stage in my life where I am so unhappy and fear returning to work, meeting new people and even seeing old friends.

I'm not sure I'm asking anyone for advice or opinions, I'm just wondering if this substitute chat with a friend helps unburden things a bit.

Sorry!

Offline Fi.

Re: Hello - please excuse the self pity!
« Reply #1 on: March 09, 2009, 10:16:33 PM »
Hello 12345 :) welcome to PHO!

I very much hope that you find that posting this message proves to be a wonderful experience.

PHO is a great place for understanding and support, and there are alot of people who can give you advice too!

Many of us will be able to see ourselves in your post, so please don't be sorry about writing it.  Finding this place was a turning point for me, it really helps knowing that there are others out there who totally understand how you are feeling, physically and emotionally.  I have some brilliant firiends, but if I try to talk to them about my p I know that they don't get the full impact of the condition.

It is good that you can see that you are at risk of withdrawing; you have time to do something about it :)  Antidepressants have their place, and many people here have experience of depression and medication (myself included) but, maybe all you need is to spend a bit more time here, talk through your feelings etc. 

Fi xx

Offline Koala

Re: Hello - please excuse the self pity!
« Reply #2 on: March 09, 2009, 10:24:16 PM »
Hi and welcome along,

First of all - stop apologising! You have been very honest and there will be many people in the future who will read your post and feel grateful that someone has dared to say exactly how they feel - no doubt many of them will have felt the same.

Sometimes the hardest people to talk to are those closest to us. Like you, I think a lot of people think that their friends just won't understand. It is true to some extent, that a friend who has never had psoriasis will understand exactly how hard it can be to live with. I think a lot of us worry that they'll think we are just being vain, or complaining about something minor. But the reality is psoriasis can sometimes make us feel awful in so many ways.

Quote
But, I think I'm very close to giving up on life - I don't mean suicide- but I think that there will soon come a day when I can't go outside and face the world.  I am married and have young children and I think I go about my normal routine for them.  I feel like my marriage can't last even though my husband is nothing other than supportive.  I've realised that if I don't like myself or find myself attractive, I find it impossible that anyone else could think of me as such.

You sound full of despair, and that is a symptom of depression. You sound like a very intelligent and thoughtful woman - just the type who might think not think that they are depressed, but rather blame themselves in some way for they way they are feeling. It is not your fault - there is nothing 'wrong' with you as a person. You are not 'weak.' Doctors are probably used to people who are depressed presenting them with physical (or other) symptoms. I think you should take note that so many are offering anti depressants. Have you thought about asking for counselling? I recently had to swallow my pride, and ask for help. I have had some major problems - problems that I thought would never happen to 'someone like me.' But now I have an appointment with the Community Psychiatric Nurse lined up (it is for agoraphobia, though I'm not housebound and manage to get to work. It's amazing how many people seem to be coping just fine but inside they feel completely overwhelmed!). It is a big relief and was a bit of a surprise that people are actually taking me seriously.

I think most people who have psoriasis have struggled with feeling ashamed at times. I know I have. You sound very sad, and I am sad for you because I know how hard it must be. And you are so apologetic - saying that you are not asking for advice or opinions. It's almost like you think people will think badly of you - but they will only want to help I promise :-*

I really do think that you would benefit from asking for counselling, or CBT of some sort. You seem to have such low self-esteem, yet I can tell from your words that you are a good person. It's sad that you feel that way when you must have so much to offer. The fact that you have chosen such an anonymous username (most people don't use their real names, but just numbers!) shows me how deep your sense of shame is. I just wish I could talk to your family and friends and ask them to tell you how wonderful they undoubtedly think you are.

Post on here anytime you like, it is not self-pity, it is asking for help which is very courageous and admirable. You have my absolute respect because I can tell how hard it must have been for you to write on here.

You won't always feel this bad - I know it's hard to believe when you think that you are the only one who struggles. The people on here who's pictures you have noticed have probably felt sad and ashamed too, but they are at a different stage in dealing with those feelings.

I am so glad you joined & posted today.

 :-* :-* :-*


Offline Koala

Re: Hello - please excuse the self pity!
« Reply #3 on: March 09, 2009, 10:27:24 PM »
Quote
I did feel like I was the only person who felt like this and who suffered from psoriasis (by the way, I'm not stupid so I know this can't be factual, it just feels like it).

The sense of isolation is also very common amongst people with p. We don't see eachother around enough I suppose! And many people dress to hide it if they can (I don't any more).

Keep posting  :-*

Offline Koala

Re: Hello - please excuse the self pity!
« Reply #4 on: March 09, 2009, 10:35:47 PM »
And another thing.... ;)

I think if you could, it would really help to talk to your husband about how you are feeling about yourself. I think he would be astonished if he knew, and would want to help you.

You will be surprised at how supportive people can be when when you tell them everything seems to much to bear. My family have surprised me these past few weeks. There's always that little voice that tells you they'll turn away because they don't understand, or they'll think it's just being 'dramatic'. But then if you think about what you would do if they told you they were struggling in the same way - you'll realise that they will want to be there for you. It seems like a huge step doesn't it? But I think it's worth it  :)


Offline scotinspain

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Re: Hello - please excuse the self pity!
« Reply #5 on: March 09, 2009, 10:55:37 PM »
welcome 12345

glad you've found us and thanks for writing about your feelings. you talk about things that many of us have experienced to some degree or another. I think just being able to read our experiences and share yours if you want to might be a great help to you

i really hope you find this forum useful, I have in so many ways

Offline 12345

Re: Hello - please excuse the self pity!
« Reply #6 on: March 09, 2009, 11:54:08 PM »
Thank you very much for your kind replies. 

Koala, you may be right about the 'depression' (sorry, I really feel like I have to put it in ' ', it just seems so self-absorbed to use that word when talking about myself!) I listened to the things I was saying to some medical staff and it was as if I could see myself as an outsider and thought to myself, you (me) are hardly coping at all.  You really need to seek help. 

I have spoken to my husband.  This site is the next step on the road to recovery.  You are very astute about my name.  Feeling cringingly self-conscious just writing this.

Offline TrishR

Re: Hello - please excuse the self pity!
« Reply #7 on: March 10, 2009, 09:17:06 AM »
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I feel like my marriage can't last even though my husband is nothing other than supportive.  I've realised that if I don't like myself or find myself attractive, I find it impossible that anyone else could think of me as such.
......

I've gone from  a very confident person to someone who can't see any good in themselves at all.  I can't speak to my friends about this - I don't know why but I just can't.  Psoriasis makes me feel so ashamed and I can't bear to utter the word.
......

I did feel like I was the only person who felt like this and who suffered from psoriasis (by the way, I'm not stupid so I know this can't be factual, it just feels like it).  I'm astonished that so many people have their (attractive!) photos by their posts and that they sound so upbeat.  I realise that this is full of self-pity, and I apologise for that, but I am at a stage in my life where I am so unhappy and fear returning to work, meeting new people and even seeing old friends.


Hi there,  I'm certain you will find there are hardly any people here who don't or haven't felt these exact same things during their times with psoriasis.

I know I have.  Its a very good post and you explain yourself so well.

I hope (I'm sure) it had a thereputic benefit for you.  And I know that reading the relpys you have and the rest that will come along will also help you.

You will find lots of info, advice, tips and much more importantly to you at the mo,  support here.

Just about everyone can completely empathise with what you have written.

Oh and a big welcome too  ;)


Offline riaY

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Re: Hello - please excuse the self pity!
« Reply #8 on: March 10, 2009, 10:12:23 AM »
Hiya and welcome to PHO.
Sweetheart you have nothing to apologise or feel ashamed of. You've taken a huge step by posting on here and in such an eloquent way. I hope that writing down how you feel has helped you, I know it always helps me. There will always be someone here to support and help you, even if you just want to rant and rage. This is wonderfull place and has been  and still is a lifeline for me. I would think that everyone on here will understand how you feel. Keep posting and learning from other posts too. Feel free to PM me at any time if you want to talk. :-* :-* :-*
----8-----Plz
---8-8---Put This
--8---8--On Your
--8---8--profile If
--8---8--You Know
---8-8---Someone
----88----Who Died
---8-8---Of
--8---8--Cancer
dont let any one get you down

Kimmy

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Re: Hello - please excuse the self pity!
« Reply #9 on: March 10, 2009, 10:28:41 AM »
Hello and welcome from me too. You post was very well written and others have said most of us can identify with some of the feelings you have expressed.  Another thing to bear in mind is that you have young children, and while is is lovely having a family, it can be emotionally and physically draining, so it may not be just the psoriasis that is getting you down at the moment. 

I have suffered P since I was 7 years old and am now 50, I found this site last September when I was off work covered from head to toe.  I can honestly say I have learned more from people on here than in all the years I have had P.  It is a real tonic, read through some of the threads and you will be amazed.  I remember being astonished when people posted about picking at their P and the satisfaction it gave them !  And how to deal with P in embarrassing places.
Keep posting and reading and I hope you start to feel better soon. :)