help

[basketball1]

Hi.
Very new to this but I'm feeling very desperate as of late. I'm 23 and have had P for four years. It's been the worst recently. I've tried every medicine, which seems to make it worse. It hasn't been gone for about two years and it covers my head to my feet. I wear long sleeves and long pants everyday including summer. I'm completely embarrassed to go anywhere and haven't been able to be close to anyone since it's been like this. The last time I went to a dermatologist they were so shocked at the severity of it they brought the entire staff in to stare at me like a freak show. I work in a bar and have had to take a leave from work because it has begun appearing on my eyelids, face, fingers, neck, etc. I'm trying to cope and am having a very difficult time with it. Just need some suggestions, kind words, anything like that.

[Jamie..]

Hiya and welcome along to PHO Basketball

sorry to hear things are so bad for you at the moment. What treatments have you tried?

I really struggle with the self concious & closeness aspects so can relate with you and many others can too.

Really hoping you find something that helps you soon and you'll find plenty of support and lovely people here

try to keep your chin up as there will be some light at the end of this tunnel soon

Jamie

[leamarieuk]

sorry to hear you are at such a low point with your P We all understand how my P affects you mentally as well as physically.

Have you tried light treatment? Or has the derm mentioned any of the dmard drugs like ciclosporin or methorexate?
There are many, many treatments available so please don't give up. Its a case of trial and error to find the one that works best for you.

[Stuart William]

Hi Basketball,

Im fairly new to PHO as well and can sympathise with being scunnered with living with P but you have just got to hang in there and try all the various treatments to see what works best, i'm in the process of going back to dermatology to change mine and they are as much use as a chocolate fireguard at times.
Things will get better, just takes time!! 

[SallyD]

Hi,
Yes, we do understand....What treatments you tried so far and are you seeing a dermatologist?
It really is trial and error, we are all so different and need different treatment.
They usually try UVB light treatment, if creams not working.
Things do get better and easier to deal with everyday life....
S x

[Scruff]

Hello and welcome along to the forum. Sorry to hear you're going through a bad flare right now. Did the derm orescribe any treatments? You may well need to spend sometime in hospital being treated. It sounds a bit extreme, but it allows for intensive treatment and will often clear you for a while afterwards. Best of luck.
Scruff