Hello all
Glad i found this site, most of my friends dont understand so i tend not to talk about it to them and its nice to know there is some support out there for us
I am 47 and mine started after suffering something like shingles or similar about ten years ago. I was given course of antibiotics and started waking up in the night so itchy i would get in a cool shower at 2am to try and relieve it. This was quickly followed by large patches breaking out and to cut a long story short was eventually suggested my immune system had gone haywire and was likely to have this for rest of life.
Devastating, had always had good skin but after this i declined invitations to go out, gave up swimming, spent summers covered up and lived like a nun.
Light treatment didnt have much effect for me, so after trying many ointments etc my dermatologist put me on cyclosporin 100mg daily and Dovobet ointment.
Sometimes it almost seems to be getting better, then will suddenly flare up. Is pretty bad at the moment but am under a lot of stress so quess this isnt helping.
I am going gluten and dairy free from today, have copied the Barney shakes and will try this. Looking back, i had a period of time when was living pretty much on rice, veg and porridge with soya milk-that was when i first started cyclosporin - maybe it was diet that was making a difference? i know i feel better if i dont eat bread or dairy. So here goes, two week trial without it and see how i go
Anyone experienced similar sudden start up of this condition?
