How I Hate this P 'My Story'

[Pieman]

ty old boy

no problems...it's great to have help/support (and a few laughs) and have the ability to give it back!

'chuffed as a butty'  that you now in remission for the first time in a long time...with cyclo!
hope it lasts as long/er as arizona's fab experience.
riding high, it may have been brought about in combo with city's recent form and position in the table

hope you have made a few resolutions for the new year 2012...

i need to cut out a few bad habits and improve my fitness levels,
i already have a six pack in situ for 2012 :



 

i'll raise a glass and toast us all a very happy and healthy 2012!
pie

[Tyson]

Update

Hope all at PHO are doing well!!!! 

Wow  has it really been nearly 2 months since I was last on here  time really does fly!!!! well what can I say still 95% clear and only on 400m of Cyclosporin so for me it has trully been a miracle drug! have had very little side effects although had a few problems with blood pressure up and down like a yo yo  also had a massive increase in BODY hair  yes that is very strange    I know what if feels like to be a caveman  and pieman will being waiting for the jokes 

quite a bit of skin staining but that was expected as my P was around certain parts of my body for years and years   

but hey really feel top of the world just like my footy team  to be honest everything crossed that it last's 

How are my homies Pieman & BB  hope you guys are doing well    and hope to here from you
kept the Faith

Tyson 

[Beverley]

Hey Tyson

Glad to hear the cyclo is working. I've been on cyclo for 3 weeks now after taking MTX with limited results.
A lot of my P has gone. Still have it on my arms but its only thin now.
Hands are totally clear. Feels great to go out and nobody staring.

Hope I don't turn into the bearded lady though.

xx

[Pieman]

see what you mean ty ol' boy

good to hear from you! great to see that you have finally persevered to get
great results for your p...let's hope it last a long time fella

good luck with the cyclo bev ...keep an eye out for the ladytache



pie

[radleybag]

Hi Tyson. Noticed one lotion you haven't named is "Exorex". It is only 5% coal tar and so doesn't smell to bad. It completely cleared a friend of mime's plaque psoriasis and keeps mine down if I persist with it (about 3times daily). Haven't noticed anyone else on here mention it but I firmly believe a lot of the "cure" is in the head. IE if you believe a product willwork for you then you're half way there already.

[Tyson]

Hi there 

(''Noticed one lotion you haven't named is "Exorex") so far on from using the likes of Exorex, can honestly say have used about every cream and potion on the Market!!!  only thing that has worked for me is Cyclosporin  the ''Wonder Drug'' IMO 

Exorex did nothing for me apart from make a hole in my pocket due to the price of it 

keep the faith

Tyson 
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[Tyson]

Hey Tyson

Glad to hear the cyclo is working. I've been on cyclo for 3 weeks now after taking MTX with limited results.
A lot of my P has gone. Still have it on my arms but its only thin now.
Hands are totally clear. Feels great to go out and nobody staring.

Hope I don't turn into the bearded lady though.

xx

Hi Bev

Glad to hear your now on the road and I know how long that road can be  mine went very similar to yours!!!!  the hands cleared first then everywhere else and boy am I making the most of it 

Not sure why the increase in body hair has come about, my derm does not know either but IMO a very welcome side effect instead of P   

I'm a sure good razer and visit to local lady bikini waxer will sort any un wanted curly growth's 


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Keep the Faith

Tyson x

[Beverley]

Hi there 

(''Noticed one lotion you haven't named is "Exorex") so far on from using the likes of Exorex, can honestly say have used about every cream and potion on the Market!!!  only thing that has worked for me is Cyclosporin  the ''Wonder Drug'' IMO 

Exorex did nothing for me apart from make a hole in my pocket due to the price of it 

keep the faith

Tyson 
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In the beginning I believed that everything was the Miracle Cure....including some weird and wacky (and I dont mean wacky baccy) stuff.
After several years and several pounds lighter it finally dawned on me that there was no Miracle Cure and only now after 30+ years have for the first time ever less coverage and only pinky patches on my arms. Thanks cyclo.....
The best part is not having it on my hands, I can actualy go out and nobody stares.

Better stock up on razors though.....

[Tyson]

Hi Bev

what at dosage are you on hun? Ive been on Cyclo now for about 4 1/2 months and completely clear apart from a bit here and there! and you can't really see them unless I was a stripper     

on 400mil a day the moment!!!  was on 600ml at first that what it took to shift the P

Hands are great just a bit of pigmantation colouring but nothing compaired to how it used to be! 

like you I used lots of bandages Invisable man would be proud     

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keep taken the horse tablets and get on with your life!!!! xxxxx

Ps. Not heard from my irish pal BB, hope she's not gone looking for that healer feller again     

Keep the Faith

Tyson 

[arizona]

Hi Tyson

Glad to hear its going so well  though i think you need to change your username to HairBear 

I'm still waiting (since December) to get the go ahead for the funding of infliximab from the hospital. Had all the relevent tests etc and now what......... all of a sudden over the last fortnight with nothing different and no treatment my skin is starting to look a bit better  wierd