Author Topic: Just a quick HI  (Read 1128 times)

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Offline glamglass

Just a quick HI
« on: September 06, 2010, 11:40:13 PM »
Just wanted to say Hi to all!
Been lurking in the background via Twitter for a while and decided to join in!
I have had P since about the age of 10 and was in and out of hospital from 13-21.
Had lots of treatments, but somehow keep going back to the same old coal tar sal acid and Dithrocream methods, that dont work for long, make a mess of your clothing and sheets, but don't mean I need to be monitored for liver function etc!!
Did at one stage consider Mtx but thought it was too much hassle. I do like a drink now and then! Still fairly scabby, but only had a short break when I lived abroad, so living with it as per!
Hope I can add some useful comments and learn some new bits and bobs! :)

Offline scabby_jay

Re: Just a quick HI
« Reply #1 on: September 06, 2010, 11:54:31 PM »
Hi, welcome aboard.

Offline Pieman

Re: Just a quick HI
« Reply #2 on: September 07, 2010, 12:53:05 PM »
hi :)

and welcome from me too :)
pie ;)
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Offline glamglass

Re: Just a quick HI
« Reply #3 on: September 07, 2010, 12:57:11 PM »
Cheers Guys!!!

frost

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Re: Just a quick HI
« Reply #4 on: September 07, 2010, 01:06:30 PM »
hello welcome to pho
i was offered MXT also but as i like a drink or 2 myself i opted for Fumaderm
best thing i ever did.after 6 months i was pretty much P free
word of warning tho some of the side affects are pretty intense but if you can handle them
im sure you wont be disappointed
Blair

Offline Islander

Re: Just a quick HI
« Reply #5 on: September 07, 2010, 01:26:00 PM »
welcome!!!
Yesterday was a bad day... f##k yesterday. That's why God or whoever made new days.

Offline glamglass

Re: Just a quick HI
« Reply #6 on: September 07, 2010, 04:00:23 PM »
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hello welcome to pho
i was offered MXT also but as i like a drink or 2 myself i opted for Fumaderm
best thing i ever did.after 6 months i was pretty much P free
word of warning tho some of the side affects are pretty intense but if you can handle them
im sure you wont be disappointed
Blair

Not heard of Fumaderm before. What is it? and what sort of side effects? Ta

frost

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Re: Just a quick HI
« Reply #7 on: September 07, 2010, 04:17:06 PM »
Ok I'm not all that clued up on what it is either lol.
Think it's fumeric anti esters.... Yup I ain't got a clue either.
Anyway they have been using it in Germany fir years with great results.
It'd not licenced in the uk so not all hosps will prescribe it. Thankfully the western in Glasgow does.
So anyway you start of with 1 low strength tablet a day building upto 6 high strength they are the blue ones. Then you may reduce the amount depending on how your are managing.
I'm on 6blues a day and have been for nearly 2 years now.
The side effects ive experienced and still do are
stomach cramps (they last about an hour a time but get them every 2nd day or so)
diaharea couple of times a week or less
runny nose
hot flushes
all these side effects have reduced in frequency the longer into the treatment I've gone.
Took me around 6 months to even see a slight change in my P but then it disappeared very quickly
after that. Coming on to 3 yes since my first pill I'm still 95% clear from around 60% covered
hope that helps a bit.
There are quite a few of us on it on here so lots of advice available.
Now wake up lol
Blair  :)

Offline riaY

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Re: Just a quick HI
« Reply #8 on: September 07, 2010, 05:52:21 PM »
Hiya maybe Ciclosporin might be an option for you. There are a few threads on this knocking about. It does say on the leaflet that there is no particular reason you can't drink while on it. But you do have to watch your blood pressure and sun exposure. good luck with whatever you try.
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Offline JUDGE DREDD

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Re: Just a quick HI
« Reply #9 on: September 07, 2010, 10:34:35 PM »
Hello & Welcome Glamglass.  8)