Author Topic: Me & my P  (Read 4038 times)

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Jamie

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Re: Me & my P
« Reply #10 on: November 22, 2002, 04:11:27 AM »
Wow I wish I would've read this earlier!!  I am getting off of cyclosporine because the 1 year mark is coming up in February..  I was thinking of Soriataine..but what is Neotigison???  Is there anything that can be used long term that will keep you in remission-IF-you do not decide to have more children???  God I hope so.  Tomorrow I will try to convince my doctor to give me something..he is wanting to take me off of cyclosporine and let the Enbrel do the work,,but I've been injecting myself with enbrel for 4 or 5 months and not getting any results with the P but I am with the PA..so I need to convince him it's not going to do the trick and not make me go through any pain to just give me somthing else.. wish me luck my app't is tomorrow at 10am, I will update everyone on how it goes and what new things I've learned. Jamie!!  

Alison

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Re: Me & my P
« Reply #11 on: November 22, 2002, 07:21:04 AM »
Quote
and of course it means there will be a fight to get to the computer every day!



lol just like my house ;D.

"its mY turn"    "NO ITS MY TURN"  [size=24]"ITS MY TURN ")):g[/size].

i always win 2 :D, welcome aboard nikki

Offline Scruff

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Re: Me & my P
« Reply #12 on: November 22, 2002, 08:12:42 AM »
It's odd how we all know that our moods & hormones can affect how our p is & yet no docs/derms will look into this. ???
I can't believe what some of your freiends said to you on your wedding day, it was obvious they couldn't see past the p to the person you really are - with friends like those who needs enemies.
Keep smiling with your new bloke as he's obviously seen the real you and isn't afraid to let the world know it. ((:c
Scruff
Lady Superior Scruff - apparently

NikkiC

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Re: Me & my P
« Reply #13 on: November 22, 2002, 12:44:27 PM »
 They are not my friends anymore just acquaintances (not sure about spelling) :D

Jamie

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Re: Me & my P
« Reply #14 on: November 23, 2002, 04:38:42 AM »
Nikki-thanks for the email in my inbox!!  I sent you a reply back!  I hope youa re feeling well today and that your meds are working!  Jamie :)

lisaB

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Re: Me & my P
« Reply #15 on: November 23, 2002, 11:29:50 PM »
I should say I have sympethy for you - but i'll tell you I have great respect for you - you're probably a stronger person now than you ever was - I was moved by your story - my children have P - to be honest my 13 year old is quite paranoid about it - but as you say it's other people's ignorance. I too have had P since about 7 I'm 31 now
Keep your chin up
Take Care
Lisa B