Thanks to all of you for your kind words
We live in Western Australia and as we head towards summer I am noticing a definite improvement in her skin. I am slowly reintroducing wheat (in the form of spelt flour) to no great effect, which is a relief. I make all my own bread, biscuits, cakes etc and am very mindful of what goes in our mouths. I am primarily using a sourdough culture, as I had read that the fermentation process makes wheat less reactive in the gut. I also make our own yoghurt, butter and buttermilk.
Her scalp still seems quite scabby, but more manageable than it was.
The doctor we saw was a Paediatric Dermatologist, but as I said before, was not particularly helpful. It appears that managing the condition is purely trial and error.
I guess what concerns me most is how she will cope with other kids teasing her. But then, if someone is going to judge her for her condition that person is not worth knowing!
As if parenting alone isn't hard enough!!