Author Topic: New member!!!!  (Read 2487 times)

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Offline Abi2504

New member!!!!
« on: February 12, 2009, 01:01:16 PM »
Hi Everyone

I am new, and excited to have the opportunity to chat with fellow sufferers and share treatments suggestions etc...

I am 27 and have had PalmaPlanterPustulosis (PPP) for nearly 4 years now. When it first started I only had it on my index finger now today I have it all over the palms of my hands and most of my fingers.  I also now have Psorisias in my nails and a little on my elbows.

When I first got it I was very depressed as the doctors kept saying it was Ezcema, it took me 2 years to convince the doctor to refer me to a dermatologist!!!!    It still gets me down on occasions, when its really bad, but I feel that knowing what it is makes it feel a little better and you can explain to people what it is rather then them thinking you have some contagious disease!!!!!

I have tried so many different creams I couldnt even tell you what they are and to be fair none of them have made any difference... although E45 helps the dry skin once the Blisters have disapeared.

What I hate most is my nails, being a lady and all! I am now trying a scalp treatment on my thumb nail to see if it makes any difference. To be honest I have used it for a week and I think it might be helping a little - even if it is just to stop the crumbling.

Yesterday I noticed a spot of dry red skin on my scalp... I sure hope it isnt spreading to my scalp as well.  :(

I would really like to hear from other people with nail problems and see if anyone has had any success in the treatments.

Anyway, I have gone on and on and on now.

Thanks

Offline riaY

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Re: New member!!!!
« Reply #1 on: February 12, 2009, 01:03:34 PM »
Hiya and welcome
----8-----Plz
---8-8---Put This
--8---8--On Your
--8---8--profile If
--8---8--You Know
---8-8---Someone
----88----Who Died
---8-8---Of
--8---8--Cancer
dont let any one get you down

Offline Sazza

Re: New member!!!!
« Reply #2 on: February 12, 2009, 01:14:46 PM »
hello and Welcome to PHO

Offline Cristina

Re: New member!!!!
« Reply #3 on: February 12, 2009, 03:52:28 PM »
Hello Abi - welcome on board.  :)

Offline Buster

Re: New member!!!!
« Reply #4 on: February 12, 2009, 03:53:48 PM »
Hello and welcome to the mad house. I hope you find what you are looking for on here :-)

Offline Mel

Re: New member!!!!
« Reply #5 on: February 12, 2009, 04:15:10 PM »
Hi Abi and welcome to PHO from me.2 years before you saw a Derm, that must have been so infuriating.I've only seen a Derm once in 18 years, but thats my fault cos I'm put off by the length of time it takes to see one.Took me 2 or 3 months before I saw a derm and another 4 months waiting for UVB treatment.
Hope you find something useful on the site.
----O-----Plz
---O-O---Put This
--O---O--On Your
--O---O--profile If
--O---O--You Know
---O-O---Someone
----OO----Who Died
---O-O---Of
--O---O--Cancer
dont let any one get you down

Offline Deb'n'Rob

Re: New member!!!!
« Reply #6 on: February 12, 2009, 04:43:42 PM »
Hello and welcome from two... :D :D
friends like you make the world a better place

SueB

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Re: New member!!!!
« Reply #7 on: February 12, 2009, 04:49:40 PM »
Hello Abi and welcome from me too

Sue xx

LisaM

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Re: New member!!!!
« Reply #8 on: February 12, 2009, 07:15:19 PM »
Hi Abi

Welome to PHO. I am sure you will find lots of useful information on here and the support is great.

Offline DavieB

Re: New member!!!!
« Reply #9 on: February 12, 2009, 08:04:24 PM »
Hi Abi

I only found the Forum 3 weeks ago when I had a very bad p outbreak on palms, fingers and back of hands for the first time - really down and desperate. Got referred to NHS derm but still waiting for appointment to come through.

Read loads of posts and feel very positive now! Brill site for p sufferers.

Trying Barneys Formula (so many good reports, but care needed) and won't touch soaps/shampoos containing SLS (again, helped loadsa peeps and worth a try) - and so inexpensive, the lot just a bit more than one item on a NHS prescription.

Hands seem to be improving and so much hope at last.

Chin up

Davie