Author Topic: NEW MEMBER!  (Read 1766 times)

0 Members and 1 Guest are viewing this topic.

Offline Katiex

NEW MEMBER!
« on: February 10, 2010, 09:58:30 PM »
Hello my name is Katie
I can't get over how many people suffer with the same condition as me.

I have had psorasis since I was 16 and I am 20 now. Within the four years I have also been diagnosed with psoriatic arthritis! I hate it lol.. I am training to be a nurse and my condition really makes me feel low and that I won't be able to achieve my dream.
I mainly suffer with it in my left foot, I have had a tendon repaired in it due to the arthritis as it had split! I sometimes get flares in my wrists, elbows, knuckles and now my knee!
I am on mtx injection once a week which I have a problem with (frightened of injecting myself lol).. and on the usual NSAID naproxen (diclofenac gave me belly ache).. my psoriasis is on my scalp with makes me feel very self concious as people sometimes ask me have I dyed my hair and not noticed red scaly patches on my forehead  :o  :'(
I also believe that NOTHING works for my psoriasis! however I went to Spain with my girl friends and it all cleared up! until i got back home!
So just thought I would introduce myself and hopefully this forum will give me some ideas and make me feel happier about it!

Kate x

Offline hels

  • Newbie
  • **
  • Posts: 36
  • Gender: Female
  • not going to give up....
  • View Gallery
Re: NEW MEMBER!
« Reply #1 on: February 10, 2010, 10:17:25 PM »
Katie,Hi :)
I came on here for the first time on Sat after feeling a lot like you and wanting to do something about it, and was pretty overwhelmed by the amount of lovely encouraging messages that were posted! Still finding my way round too but wanted to welcome you as a fellow new user!
You are not alone! this place is very welcoming and as one member advised me, full of really useful advice and topics on lots of different aspects of psoriasis.

best wishes - there are lots of very understanding people here!

Hels x

Offline babyblue

Re: NEW MEMBER!
« Reply #2 on: February 10, 2010, 11:24:10 PM »
Katie,

There are many of us just like you ;  we come in all shapes, sizes, ages, nationalities, lifestyles, etc... P affects 125 million people worldwide so you must never think you're the only one. 

On this site alone, there are people newly diagnosed and those who have lived with P and PA for years and know everything there is to know about treatments.  Regardless of what consultants tell us, or their attitude towards us, its so much better to have real - life experiences of drugs, living with P., uncertainities that it can bring, relationships ... questions that we cannot get answers to in a derm clinic.  That's what makes this such a wonderful network, it's supportive and inclusive !  You'll have lots of replies welcoming you onboard ... glad I got in pretty quickly tho ... coz last one in makes you a cuppa !  ;D

Hope you achieve your dream and get to wear that nurses uniform.  I've learnt in life not to accept what is said today as it may just change, for the better too.  There are new developments all the time and so it's best to try to remain positive.  Difficult at times I know.

Glad you got to get away to Spain and found the sun so beneficial.  I find it really good too and hope to have UVB treatment soon.  There are also vitamins and supplements you can take which may prolong remission when you get to that stage, people here have noticed fantastic results by taking VitaminD3 in fairly high doses thru' the winter months and less during summer.  Look at threads on the 'alternative forum'.

Hope you feel 'at home' here with us in PHO land;  ;D

big hugs ..
BB 



 
A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline Breenger

Re: NEW MEMBER!
« Reply #3 on: February 10, 2010, 11:38:46 PM »
welcome along katie, there are more people with p than you would ever think.
there is a good crowd in here and they will always give you good advice and a shoulder to lean on.
WTF BTW!!

Offline JUDGE DREDD

  • Forum God
  • ******
  • Posts: 17715
  • Gender: Male
  • "There's only one way of life and that's your own"
  • View Gallery
Re: NEW MEMBER!
« Reply #4 on: February 10, 2010, 11:43:12 PM »
Hello & Welcome Katie.  8)

Offline Fred Hoggin

Re: NEW MEMBER!
« Reply #5 on: February 11, 2010, 12:29:25 AM »
Hi Katie, welcome along.

The sun will help a lot, but you need it regular.

A nurse who can't inject herself,  ;D

All the best.

Fred. 8)
I Wanted To Change The World, But Got Up Far To Late. You are not allowed to view links. Register or Login

ellieh

  • Guest
Re: NEW MEMBER!
« Reply #6 on: February 11, 2010, 08:52:01 AM »
Welcome to PHO Katie  :D

Offline Lianne

Re: NEW MEMBER!
« Reply #7 on: February 11, 2010, 09:43:57 AM »
Hi Katie, welcome to PHO  :)

Offline Pieman

Re: NEW MEMBER!
« Reply #8 on: February 11, 2010, 09:49:13 AM »
hi katie :)


welcome from me too.
you are amongst good company here with fellow flakies ;)
You are not allowed to view links. Register or Login

Offline Noelo5

Re: NEW MEMBER!
« Reply #9 on: February 11, 2010, 11:13:27 AM »
Hello katie

Welcome to the site.

Noel..

Offline Jamie..

Re: NEW MEMBER!
« Reply #10 on: February 11, 2010, 01:19:48 PM »
Welcome along Katie. You are not alone, i couldnt belive it when i found pho either and how many other sufferers there are.

Comments by other people i find awkward, or the glances of them looking. But am becoming more comfortable with P i think.

I also found going abroad was only times my P has cleared up nicely, but alas coming home it returned (Like it was waiting at the airport or something >:()

Hope you find something that works :)

Offline Katiex

Re: NEW MEMBER!
« Reply #11 on: February 14, 2010, 10:33:27 PM »
Thank you too all the replies,

My sister has psoriasis on her head (only a small patch) and she full on blames it on me :(

Offline Fred Hoggin

Re: NEW MEMBER!
« Reply #12 on: February 14, 2010, 11:00:51 PM »
You are not allowed to view links. Register or Login
Thank you too all the replies,

My sister has psoriasis on her head (only a small patch) and she full on blames it on me :(

You can't catch it, so tell her bad luck. you should suport each other.
I Wanted To Change The World, But Got Up Far To Late. You are not allowed to view links. Register or Login

Kate_

  • Guest
Re: NEW MEMBER!
« Reply #13 on: February 15, 2010, 08:47:30 AM »
Hello and welcome Katie


Pho is a grand place ........Im glad you found us

Welcome xxxxxx

Offline luckystar

Re: NEW MEMBER!
« Reply #14 on: February 16, 2010, 03:55:08 PM »
Hi Katie and welcome!

I've been looking on pho for some time now and it makes me feel human again!!   I too have scalp p and the only time it cleared up was when I was pregnant (not saying that you should have a baby just to get rid  ;) ) also mtx helped it no end.

Hope you continue to use the forum and get as much out of it as I do  :)

Luckystar

Offline C Ramsey

Re: NEW MEMBER!
« Reply #15 on: February 16, 2010, 10:58:10 PM »
Hi Katie, welcome I'm also new. Found the website after doing a search on google for help with Psoriasis last week and I'm already feeling more positive knowing that I'm realy not alone with this condition. xxx

Offline Katiex

Re: NEW MEMBER!
« Reply #16 on: February 17, 2010, 06:37:42 PM »
Haha oo were u on mtx before you were pregnant? and u came off it? and everything was a normal pregnancy?

not that i am wanting to get pregnant anytime soon, just good to know.
:) xx

You are not allowed to view links. Register or Login
Hi Katie and welcome!

I've been looking on pho for some time now and it makes me feel human again!!   I too have scalp p and the only time it cleared up was when I was pregnant (not saying that you should have a baby just to get rid  ;) ) also mtx helped it no end.

Hope you continue to use the forum and get as much out of it as I do  :)

Luckystar

Offline luckystar

Re: NEW MEMBER!
« Reply #17 on: February 26, 2010, 08:25:54 PM »
Hi,  No wasn't on mtx at that time. I only had P then so obviously a good dose of pregnancy hormones helped it!!!   Went on to the mtx when I got PA about 2 years ago and now on Leflunomide.........can't complain too much, it's not bad at the mo  :-\

Take care

Claire

Offline pcoll

  • Forum God
  • ******
  • Posts: 678
  • Gender: Male
  • There is only 1 god, ME
  • View Gallery
Re: NEW MEMBER!
« Reply #18 on: February 26, 2010, 10:49:44 PM »
hi katiex   :)
l think almost every one , when they find out they have p or pa think they are the only ones in the world with it cause its a disease thats not talked about, its a condition that many ppl keep hidden cause ppl dont know enough about it.But its cause of websites this like that let ppl know that they are not alone with dealing with this burden and that are ppl that know what you are going throu  :)
They that sow in tears shall reap in joy

Offline TJB

  • Forum God
  • ******
  • Posts: 536
  • Gender: Female
  • Smile- it makes 'em wonder what you've been up to
  • View Gallery
Re: NEW MEMBER!
« Reply #19 on: February 27, 2010, 12:43:36 PM »
Hi Katie and welcome
i recently got back from Canaries and my p has cleared up realy well, but i know it will come back soon. >:(
I have had loads of great advise and support from everyone here, even on stuff not P,PA related.
All the best
Tracey

Offline jotee

Re: NEW MEMBER!
« Reply #20 on: February 27, 2010, 01:28:24 PM »
Hi Katie!

Welcome to the forum! :) I used to live in Spain and my psoriasis cleared up totally while I was there (it was gone for well over a year and came back for my last few months - perhaps the stress of returning to London! :D)

I hope you find all the stuff here helpful! You should give your sister a good kick in the shins for her cheek! ;)

Jotee xxx
“We don't see things as they are, we see them as we are.”

Offline weenic1986

Re: NEW MEMBER!
« Reply #21 on: March 06, 2010, 01:15:57 PM »
Hi and welcome Katie!

You are in the right place for help and advice!  I've only just found this place myself and over the past week I feel more optimistic.  I've had great feedback on anything I've wanted to know and found out about creams, lotions etc. that I have never heard of or been offered before but will be recommending from my GP.

Like you, I also have p on my scalp, 95% covered aswell so it's pretty darn hard to hide it, especially as I have really dark hair.  I also have it on my shin, knees, elbows and in my nails.  I used to have it on my neck aswell which is a rather strange place to get it but it has cleared up, thankfully.

What treatments are you using for you scalp?  I've tried a few now but still no further forward.

I hope you find all the help and encouragement you need here.  And don't give up on your dreams, don't let your P hold you back, you're stronger than that.

Nic x

Offline Katiex

Re: NEW MEMBER!
« Reply #22 on: March 10, 2010, 10:39:55 AM »
Hey thank you,

I now have a tiny bit on my eyebrow haha oh well.! i dont use anything on my scalp apart from tgel :\ stops it itchin but its not as 'angry' lookin as it used to be. :) x

You are not allowed to view links. Register or Login
Hi and welcome Katie!

You are in the right place for help and advice!  I've only just found this place myself and over the past week I feel more optimistic.  I've had great feedback on anything I've wanted to know and found out about creams, lotions etc. that I have never heard of or been offered before but will be recommending from my GP.

Like you, I also have p on my scalp, 95% covered aswell so it's pretty darn hard to hide it, especially as I have really dark hair.  I also have it on my shin, knees, elbows and in my nails.  I used to have it on my neck aswell which is a rather strange place to get it but it has cleared up, thankfully.

What treatments are you using for you scalp?  I've tried a few now but still no further forward.

I hope you find all the help and encouragement you need here.  And don't give up on your dreams, don't let your P hold you back, you're stronger than that.

Nic x

Offline flecksable_flyer

  • Forum God
  • ******
  • Posts: 1975
  • Gender: Female
  • adopt a dog ~ save a life
  • View Gallery
Re: NEW MEMBER!
« Reply #23 on: March 15, 2010, 01:07:49 AM »
Hi Katie! A wave from "across the pond" in Connecticut, USA! I know how it is not to be able to give yourself injections. When I lived on the farm, I could give the horses, dogs and cats their shots, but if I see a needle coming my way, I faint! I go to my dr's office to get my Humira injection for PA every 2 weeks.

Congratulations on your decision to become a nurse! My oldest niece is a nurse, and she is currently working on her PhD. I almost considered it myself, but I throw up if someone else does... ewwwwww! :-[ :-[ :-[ :-[ Not animals, only people. Go figure. Let us know how things are going with classes. We will want to hear about your graduation! :D :D :D

Sabra & Surrido

"The people who matter don't mind, and the people who mind, don't matter."

Offline Katiex

Re: NEW MEMBER!
« Reply #24 on: March 16, 2010, 07:30:20 PM »
Hey ahh the good ol USA <3 i love it there!

Thankfully my doc has taken me off my injection and I am now on sulfasalazine! started it last week seems to be goin ok.. for now! :)

Nursing is great i love it :D x

You are not allowed to view links. Register or Login
Hi Katie! A wave from "across the pond" in Connecticut, USA! I know how it is not to be able to give yourself injections. When I lived on the farm, I could give the horses, dogs and cats their shots, but if I see a needle coming my way, I faint! I go to my dr's office to get my Humira injection for PA every 2 weeks.

Congratulations on your decision to become a nurse! My oldest niece is a nurse, and she is currently working on her PhD. I almost considered it myself, but I throw up if someone else does... ewwwwww! :-[ :-[ :-[ :-[ Not animals, only people. Go figure. Let us know how things are going with classes. We will want to hear about your graduation! :D :D :D

Sabra & Surrido

Offline Scruff

  • Chartered Chief Engineer
  • Forum God
  • ******
  • Posts: 18175
  • Gender: Female
  • Not just a cartoon, a way of life
  • View Gallery
Re: NEW MEMBER!
« Reply #25 on: March 27, 2010, 11:07:20 AM »
Hi Katie and welcome along to the forum. It sounds like your skin reacts well to UV, in which case it may be worth asking your derm about a course of treatment. Good luck.

Scruff
Lady Superior Scruff - apparently

Offline Katiex

Re: NEW MEMBER!
« Reply #26 on: March 28, 2010, 01:34:01 PM »
hey scruff :p

yeah im gonna speak to my doc and ask him about all that stuff :) thank uuuu x

Offline hk

Re: NEW MEMBER!
« Reply #27 on: March 28, 2010, 02:39:06 PM »
Hi - welcome from me too - missed your post before! :)
----8-----Plz
---8-8---Put This
--8---8--On Your
--8---8--profile If
--8---8--You Know
---8-8---Someone
----88----Who Died
---8-8---Of
--8---8--Cancer