Author Topic: new to site  (Read 3236 times)

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Offline abi

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new to site
« on: November 23, 2004, 05:09:17 PM »
k well guess i better post a topic as im new, but i hate talking about it and i guess im trying to deny it and not face up to it, and i never talk about it to my friends, infact they obviously see it on me but dont know what it is, even when my parents try to talk about it wit me i tell tell them to shut up, although they are good about it and always take me to the doctors etc.

ive had P since i was born and am 17 now ive lways been able to keep it under control realy from what i remember wit steroids until my recent flare up, which i guess has made me come to this site, i hate it and dont really know how to cope it, i just find my self crying all the time about it and fell i have no1 to talk to. and nothin seems to work cept sunlight and steroids. i have it all over my back chest and legs atm, because i this i feel its ruining my life, i used to be really socialble till now, but recently havent been out wit friends in ages and have been missing loadsa skool as im scared people will see it on me!
so if anyones got any advice or tips?

Offline sharney

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Re: new to site
« Reply #1 on: November 23, 2004, 05:27:38 PM »
Hi Abi its very nice to meet you.

I am sorry that you are feeling so down at the moment - it is really hard when your flaring as everyone here knows.

There are lots of threads with hints and tips etc here and I hope that you will find some of them useful.  Have you been referred to a dermatologist?  

Please use this site in order to vent some of your frustrations and hopefully make yourself feel a bit better.  The better you feel, most likely, the better your p will be.  There are lots of nice people here with lots of good advice.  I only joined recently but I can tell you it has made a massive difference to my attitude to p.  I feel far more in control of it now and hopefully you will too soon.

Take care hun x
Loving living life

Offline elaineG

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Re: new to site
« Reply #2 on: November 23, 2004, 05:28:39 PM »
Hi Abi = welcome aboard

Offline abi

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Re: new to site
« Reply #3 on: November 23, 2004, 05:30:55 PM »
hi thanx, yeh ive got a appointment wit a dermatologist next month and am going private as NHS takes so long, just wnated to get it sorted, im hoping there will be new treatments to learn about and hope he can help me like he did when i was a baby.

Offline lulu

Re: new to site
« Reply #4 on: November 23, 2004, 06:58:36 PM »
Hi Abi welcome to the boards  hope your Derm really helps you out
Amicitiae nostrae memoriam spero sempiternam fore

Offline SJ

Re: new to site
« Reply #5 on: November 23, 2004, 08:10:06 PM »
Hi Abi and welcome to the forum

;)

Glad you've found us fellow flakies...and there are lots of people here who really do know how you feel.

I too have had P since I was a kid and being 17/18 was a tough time for me too...I didn't know anyone with P and didn't show it either...I was darn good at covering up both the P and the way i was feeling.

I hope the derm goes well...you need to get some control of your P back and then everything else will be a little easier. It is always tough when it is bad...and I know that after nearly 30 years there are still a few bad times, but I always know that it will get easier eventually  :)

One of the great things about this place is that you can share stuff here that can't be shared anywhere else...people here are very supportive and it is a good feeling, for me anyway, to know that there others out there who understand exactly how I am feeling.

It has also helped me come to terms with living with P and it is very infrequently I feel down about the P now.

Take care and hang in there!

:-* :-* :-*

SJ
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Offline Carol.

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Re: new to site
« Reply #6 on: November 23, 2004, 08:17:06 PM »
Hi Abi and welcome from me too.

Sorry to hear you're feeling really low at the moment.  I'm sure that when you see the Dermatologist you'll be surprised at how many other treatments there are to try.  I'm currently having a course of UVB.  Like you, I'm covered in P, all over my back, legs, tummy, chest etc and it gets me down BIG time.  But... you'll be pleased to know that this course of treatment does seem to be working and I can see a massive improvement already.  Maybe that is something you might be offered.  I hope so.

Try not to let it get you down too much - I know - easier said than done.

Good luck with your appointment and let us now how you get on.

Chin up babe.

Carol x  ;)

Offline AnnieD

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Re: new to site
« Reply #7 on: November 23, 2004, 08:31:09 PM »
Abi
Welcome to the site!  I know how're you're feeling - I've only had p for just over a year and have it in all the same areas as you!  You're not alone and everyone here has been really great!  Hope you find it helps you too!  Also good luck with the derm!!  :)

Britny

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Re: new to site
« Reply #8 on: November 23, 2004, 08:46:38 PM »
Hi Abi hope yerappointment is productive!

Offline Mrs_Sheepz

Re: new to site
« Reply #9 on: November 23, 2004, 09:58:53 PM »
Hi Abi and welcome,

sorry to hear p is getting you so down.
It's good that you found this site. Even though you don't like to talk about it, it's good to start on here. It will help you coming to terms with the p eventually. And once you managed that you will find that it cannot control your life so much anymore, if you got it "under control".

Big hugs,

sheepful :)