Hi, all
What fantastic site and lot of interesting info not sure on the protocols so here goes
Been a member a couple wks now I think
I am sure the moderator’s will put me right, shame they can’t do the spelling for me either
a bit down today my new gp wants me in hosp fast but ive got my reasons “suggest you read my profile first” he’s been very good but is pressing very hard
he’s never seen any think like it he was gob smacked by it”
it’s a long story and I will try to keep it short but understandable I hope, so here goes
for years had trouble with p. pa. 1987 kidney stones caused by pa. p Every where even up my anus. been of work 4 year,s now 4th attep 1styear got dla high rate and blue badge
4years ago got a pilonidal sinus 1op then perennial sinus caused by my p. they said. given antibiotics then it got serious the perennial went into my bowel 2nd op later in 2 wks still bad bleeding a lot 3rd op told I had a fissure that they had mist and should not have any troubs now, over period of a year of follow/ups I complained of some thing growing internal from the op site in my bowel to my testicle (referred pain was there diagnoses) my then gp said its not worth examining you a consultant knows more than me.” I coulden’t walk. over the wks to and from follow /ups, nothing stopped the pain not even bott scotch and oro/morth, then I started bleeding from bott again and was rushed back any way “to make the story shorter” op 4 he discovered it was a fistula did what he could and i was refer to a urologist he referred me back saying it was his job and after a letter from him he will do it fast. And by the way you will lose your testicle,s He done his 7th op and
he applogised and said he was at a loss` and could not remove, any thing as everything is
intertwinned and a mess. So after a few wks when I sent home I got a new gp and got referred to st marks who spec in these things fistula p. pa etc. they done a mri and explorerty 8th op , same day I got there when I woke up I still had every thing they had only taken a 6cm out of my groin and sent it for histology
they then sent me while still grogy to gasto had acamera up the anus and down into stomach
and biob’s taken for histology.” Cut the story short” the histology report for op was rare crohn’s caused by chronic p .pa. histololgy for up the anus was severe inflammation caused by p. and down into my gut , the histology was severe inflammation of intestines gallstone&bladder& infection 3 bactria’s etc caused by my p.pa.
conclusion inflammation caused by my p. pa. And all of the proffessor’s said every time they op it will cause exaltation eg get worse and will only op if realy have to, and
that’s what was going on at my local hosp every time they op it grew back.!
seeing that I was on mtx they will leave to my reumy& gp to keep an eye on me
so here I am at the start again its grown back with vengance I wont go though the yucky but I got another !in my testical so if they op again “what will I get next” , have another large scotch I think, I have found a web site in America, that claims he can cure by metastatic bio somethink ? and cleaning the blood by radition but cant find any paper,s that back him up, the proff at st marks cant find any info on him either
ho dear , il’have another scotch , well do i go in or dont i
even crossed paths today with my old consultant the one who was at loss he bowed his head and hurryid
along he regonised me all right well i better stop
