Author Topic: P for life  (Read 648 times)

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Offline skinp

P for life
« on: August 20, 2010, 10:27:42 PM »
Hello Guys,

Yup, I have P. I am 37 and now live in UK. I was previously from southeast asia, back then I did not know about P, but I noticed during my 20's that the side corners of my nose gets red and flaky and hurts.

Moved to the UK with the wife which is a nurse. In my 30's the P has gone to my elbows, and to my knees. I can also see some pinches on my finger nails. In the last couple of months, I recently got a pain in my left knee, very painful that I cannot use it to walk on stairs or walk for a long time. Went to my GP and they took some blood and x-ray, will go back next week to see what he says, but he thinks it could be psoriatic arthritis. I took some nurofen and it seem to lower the pain on the knee, but I can feel that it is not the same anymore.

I am just MAD that I have this illness, and will suffer lifetime. But I am happy to find this forum and share my thoughts and feelings. I don't suppose any of you can shed light on some of my questions below:

1. Do you think my P got worse from moving to the UK with less sunshine?
2. Is P common to caucasians, or can southeast asians get is as well?
3. Will my P improve if I move to a hot climate with lots of sunshine?
4. Are there any food that I need to avoid if it is psoriatic arthritis?
5. Will this get worse?

I feel like I am stuck in a stupid body, I can't even play some sports and games with my kids now. I can manage the skin problem, but the pain I get from the knee is crippling me and making me look like a whimp.

Thank you for any information you can give.


Offline david_8

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Re: P for life
« Reply #1 on: August 21, 2010, 09:32:58 AM »
hi, skinp & welcome

loads of info on here well worth a search
! you ask
1. Do you think my P got worse from moving to the UK with less sunshine?
2. Is P common to caucasians, or can southeast asians get is as well?
3. Will my P improve if I move to a hot climate with lots of sunshine?
4. Are there any food that I need to avoid if it is psoriatic arthritis?
5. Will this get worse?

my answer

1. may well of, but we all different peps, with different types of p.
for some a move to a hot climate makes there p worse and for some it helps with a remission


2. the prevalence of p is world wide even from local's of the dead sea
and now the prevalence of p,in the Inuits/Samoans etc is getting higher
as the gene pool mixes

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3. as in answer 1,    it might   or it might excaberbate your p/pa

4. there a few cited perviewed papers on diet and p &pa
but pa as been found in dinosaur's bones and in mummies
dogs and 2types of monkey's get p/pa
but as in 2 above diets around the world differ
smoking and alcohol are a no no 
a good healthy diet can only help omega 3/ etc is good
no more than 1  tinned fish a wk etc

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5. how long is a bit of string
wait for a confirmed diagnoses, what type of pa/ p etc
 then ask for a prognosis

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hope this  helps



david 8

Offline babyblue

Re: P for life
« Reply #2 on: August 21, 2010, 11:03:50 AM »
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hi, skinp & welcome

loads of info on here well worth a search
! you ask
1. Do you think my P got worse from moving to the UK with less sunshine?
2. Is P common to caucasians, or can southeast asians get is as well?
3. Will my P improve if I move to a hot climate with lots of sunshine?
4. Are there any food that I need to avoid if it is psoriatic arthritis?
5. Will this get worse?

my answer

1. may well of, but we all different peps, with different types of p.
for some a move to a hot climate makes there p worse and for some it helps with a remission


2. the prevalence of p is world wide even from local's of the dead sea
and now the prevalence of p,in the Inuits/Samoans etc is getting higher
as the gene pool mixes

You are not allowed to view links. Register or Login

3. as in answer 1,    it might   or it might excaberbate your p/pa

4. there a few cited perviewed papers on diet and p &pa
but pa as been found in dinosaur's bones and in mummies
dogs and 2types of monkey's get p/pa
but as in 2 above diets around the world differ
smoking and alcohol are a no no 
a good healthy diet can only help omega 3/ etc is good
no more than 1  tinned fish a wk etc

You are not allowed to view links. Register or Login

You are not allowed to view links. Register or Login

5. how long is a bit of string
wait for a confirmed diagnoses, what type of pa/ p etc
 then ask for a prognosis

You are not allowed to view links. Register or Login

hope this  helps





Brill answer David, as usual. 

Little to add other than welcome you, Skinp to the forum.  Try not to worry about P/PA - it takes its own course and waxes and wanes for no apparent reason (in my case); I take glucosamine supplements for PA and find they really do help.  I also take calcium and Vitamin D3 which my Doctor prescribed for me. 

Get a referral to a rheumy who will correctly diagnose and offer first step treatments - perhaps combination drugs consisting of anti-inflammatories / NSAIDs painkillers which provide relief but are not a long term solution - I still take difene and tradol when PA flares.  To halt the disease progressing further you may need to begin taking disease-modifying drugs.  Its best to be informed so that you can ask the relevant questions when you meet with the medics - so click on the link below and appropriate links thereafter,  and don't put your life on hold.  Many still live a quality life with arthritis, there are many limitations to my life but equally, I've been presented with opportunities that otherwise I wouldn't have enjoyed, for instance, having had the chance to attend full-time university at postgraduate level when unable to hold down full time employment.

Take care of yourself, talk thru' your concerns with your partner and keep posting here - there are many well informed, experienced peeps such as David more than willing to offer support - this forum has been fantastic for me.

That link : - You are not allowed to view links. Register or Login

Wishing you well,
Hugs
BB
A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline JUDGE DREDD

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Re: P for life
« Reply #3 on: August 23, 2010, 09:30:58 PM »
Hello & Welcome Skinp.  8)

Offline Scruff

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Re: P for life
« Reply #4 on: August 28, 2010, 10:39:53 AM »
Hello and welcome. Check out the PA board, they will be able to give you advice on how to deal with your condition.

Scruff
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Offline skinp

Re: P for life
« Reply #5 on: August 30, 2010, 03:36:08 PM »
Hello,

Thank you all guys for the information and experience you shared to me, and also the welcome remarks! It is very helpful, did not realize there are lots of people with this predicament.

I guess I'd have to accept the fact that this is part of me now and I am not the same as before (bulletproof). I just got back from my GP, and the x-ray, blood test and urine test came in as normal...which confuses me more. The GP said that it maybe a normal wear and tear of the knee, but deep inside I am sure it has something to do with my P. GP prescribed a box of 600mg ibuprofen, and some Lansoprazole. I'll finish the medicine, and it seems to be working, but I can feel the knee not 100% anymore, and for sure this will come back as soon as I finish the ibuprofen. When that happens I'd have to ask the GP to up the treatment a notch.

Again thanks again, and speak soon.