Hi Louise,
I have PPP, get sick of the long name..I have had it almost 2 years and like yours it started on my feet, eventually my hands were also affected. I tried everything cream wise and the only thing that worked was dovobet but after a few weeks it flared up worse than ever. I also hand puva light treatment and that also failed...a year after it made its first appearance I was in a wheelchair, I had walked on my tip toes for months as they were the only are free of PPP.
I was put on to acitretin and that had horrible side effects, worse than the ppp, eventually late last year I was put on to mtx, a drug that has like most drugs used for this disease got serious side effects and has to be managed properly as it can do some serious damage to vital organs...I didnt suffer to badly with the side effects and my hands are now clear and my feet have P...no pustules though so can walk and have more or less normal life.
I have recently had to take a break from MTX as I have an infection and during the last few weeks the pustules havent returned :)which for now I am very happy about...and hope that I can have some kind of remission from ppp.
I wish you luck and suggest strongly you get a referral to a derm if you havent already...and if there is any questions then please feel free and I will try to answer as best I can.
Read as much as you can...good luck and I can assure you that you are not alone there are unfortunately too many ppp sufferers out there.
Chloe
