HI everyone,
I've joined this forum (and become addicted to it 
) a while ago, but I never got round to posting my real history - this will change now:I am now 25 years old and from Germany.
I had p since I was a child. I don't know for how long. All I can remember scratching till I bled and being so embarrassed about it that I hid it and would not tell anyone (affected were scalp and genital)
My mum found out about the scalp p when I was about 12 (she caught me scratching) and took me to a derm.
The derm told us it was p, but unfortunately did not mention what p actually was. So we ended up trying to get rid of it with the lotions we were given by the derm - and I ended up feeling a constant failure (my mum blaming me for not applying it properly
).
Being a teenager with p was horrible, because the derm only prescribed vaseline based stuff for my scalp which I could never get out again. My hair looked greasy even though I washed it u to 5 times a day
At some point I refused that stuff and took on to taking coal tar lotion from the chemists.
When I was 17 and met my boyfriend I took up all my courage and went to a gynaecologist to have a look at what was going on down below (I had not got a clue it could be p - unfortunately so did not have my doctor but prescribed me some cream which helped a bit).
I've been battling with my p as good as I could till two years ago I moved to London and suffered an allergic reaction to my panty liner which set up my genital p horribly. My GP wrote a referral to a vulva clinic and they sorted me out properly for the first time in my life
(Chelsey and Westminster hopsital - higly reccomendable
).
when I was back toGermany and moved again I had another massive flare - this time also affecting my nipple.
A stupid derm first diagnosed me wrongly with breast cancer.
(wrote about that before : You are not allowed to view links.
Register or
Login ).
But the good thing about it: I changed derms and found the perfect derm (understanding, nice and higly competent
)
He, for the first time and after more than 15 years living with p made me aware
that p is a chronic disease.
Ever since I have started coping extremely well (Now I am proud when I got p under controll instead of feeling a failure during flare ups).
When I found this forum I now had finally found a place to talk to people and communicate about p - this has helped loads
I have discovered fish oil 3 month ago which completely cleared my p within 2 weeks.
Unfortunately I have just also been diagnosed with PA and the last weeks have been so stressful for me that I have a bad flare (joints and skin).
I am seriously considering on going on medication for the PA (sulfasalazine and prednislone). I will keep you updated on how that goes. :-/
Well that's my story - even though I tried to cut it short, it still turned out to be half a novel.
That's me 4 u
sheepful
