Hi. I've had P for 16 yrs now with varying degrees of coverage. when it was first diagnosed, it had started on my forehead and then rapidly spread over my face, to a point where it was quite hard to open my mouth or have any sort of facial expression as it cracked and hurt so much. After week in hospital, it cleared but about 2 wks later, i flared all over my body, with amost total coverage except hands and feet. After failed attempts with steriod creams, my derm tried Puva....at that time it was a brand new treatment at Bedford hospital. I was clear in a matter of weeks and stayed that way for 2 yrs!
16 yrs on, i'm no where near as bad as i was but i have guttate patches on almost every part of me, various patch size etc. I also have flexural,plaque and scalp P...also get P when i cut myself (sorry cant remember the spelling)
P is part of my life and although i try not to let it get me down, its obviously going to at times. But since finding this forum i dont feel so alone as i did before. I cant have puva just now as i am running out of 'units' apparently according to my derm.....i'm on dovobet now with reasonable results but i know its just a temp thing...my P decides it likes a cream one day and then says turf it the next and flares big time, as if to stick two fingers up at treatments.
Sometimes i ask 'why me' when no one else in my family has it, sometimes i think' why cant i have beautiful skin'....but after being through so much in my life...i'm happy to be here, still standing and with a beautiful family. P's gonna be part of my life forever...aint gonna let it win!
luv
Rosie
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