uv light therapy in daughter age 8

[lexi3]

 hiya to all,my daughter has been getting uv light therapy now and in to the third week soglad seeing a change in her face with her psoriasis,she goes 3 times a week and up to 2and half minutes now ,they said can get up to 8 minutes but dont think she will get up to that,and 1000kilojoules in a lifetime what is this mean,also says body not showing signs of working as yet and give it another bit of time and if not doing anything will maybe have to get some other form of treatment as its all over her body legs feet hands everywere and only working on her faceright now,can anyone give me advice on what i have written about my daughter thankseveryone

[TrishR]

Hi Lexi,  welcome to PHO

It's good your daughter is starting to show some improvement.   I usually takes 3 weeks before I ever start to see any difference in P wiht UVB.  This is quite normal.  It's a great help if she doesn't skip any sessions, as the may well not up the joules if a visit has been missed.   As the nurse said she could get up to 8 minutes by the time she has built up the time increments each visit.  That is of course if her skin can tolerate that amount of exposure.  Only time will tell you that.  I don't get to 8 minutes until week 10. 

Week 3-4 brings the unbearable itch from the UVB.   It really can be insanely itchy.  Best way to cope is keep the skin cool with cold moisturisers or even a cool shower head on the itchy parts.  I've known me have to get up during the night and run a clod shower on my legs. 

By week 5-6 she should start to see a marked improvement.  The lenght of time it take to clear is different for everyone.  I get a 16 week course but normally only need 12 weeks.

The life time of joules allowance is exactly that.  She can have 1000joules in her life.  In a 12 week course of UVB I use approximately 35 joules.  This means if my life allowance was 1000 I could have about 28 courses of UVB in a life time. 

I hope she see's improvement soon and the course is a success.

[lexi3]

Hi Lexi,  welcome to PHO

It's good your daughter is starting to show some improvement.   I usually takes 3 weeks before I ever start to see any difference in P wiht UVB.  This is quite normal.  It's a great help if she doesn't skip any sessions, as the may well not up the joules if a visit has been missed.   As the nurse said she could get up to 8 minutes by the time she has built up the time increments each visit.  That is of course if her skin can tolerate that amount of exposure.  Only time will tell you that.  I don't get to 8 minutes until week 10. 

Week 3-4 brings the unbearable itch from the UVB.   It really can be insanely itchy.  Best way to cope is keep the skin cool with cold moisturisers or even a cool shower head on the itchy parts.  I've known me have to get up during the night and run a clod shower on my legs. 

By week 5-6 she should start to see a marked improvement.  The lenght of time it take to clear is different for everyone.  I get a 16 week course but normally only need 12 weeks.

The life time of joules allowance is exactly that.  She can have 1000joules in her life.  In a 12 week course of UVB I use approximately 35 joules.  This means if my life allowance was 1000 I could have about 28 courses of UVB in a life time. 

I hope she see's improvement soon and the course is a success.

Thankyou very much for advice on my daughter much appreciated,thanks again