I have just spent the last couple of hours going through previous posts ......at last I have found others who understand the dreaded Psoriasis
I suppose my story isn't much different to everyone else's. But here it is anyway .....
Two years ago I had a very bad dose of flu (Hallucinating and everything
) and developed what looked like a rash all over (scalp, ears, face, back chest, arms legs ...did I leave anything out?!), my mum was concerned that it was meningitis, so I was carted of to hospital. The doc's there thought it was an allergic reaction!
After recovering from the flu ....which took nearly 2 months, I went to my own GP, to find out what this rash that was so itchy and sore was.
Turned out I had Psoraisis, so we tried all the creams and steriods, but I have lots of allergies (which funny enough most of them I didn't have before the Psoriasis), and none of them made any difference, apart from smell bad, give me rashes to go with the P, and make me even more disheartened.
Luckily I got seen quite quickly by a Dermatologist at the hospital (think it was about a 8 week wait), and I had UVB treatment. I think that was more of a disaster than the creams! I have quite fair skin, and burn really easily. I never got past 1 min and 30 sec. The nurses didn't listen though and would insist that I just continued with the light treatment. I'm sorry but after you've spent 4 months with aftersun melting off you because of sun burn and the treatment wasn't even helping the P, I told them poiletly to turf off! I didn't go back for anymore treatment at the hospital.
My Gp has again refererd me to dermatology at the hospital and I'm supposed to be starting PUVA treatment in the next week or so. I think this time I'm going to have to be much more forceable about no I'm not going to spend the next x many of weeks / months melting because of being burnt.
I'm lucky that I have a very supportive GP. I've also had depression for the last 10 years, some days are better than others. Some days I think it would be better if they admit me to hospital
. At least then they could treat the Psorasis and depression at the same time
My son has been a saint with all this though (he's five). He looks after his mum. I've never asked him to help with the creams or anything, have just got on with it, but occasionally you get a day when he comes and asks to help me, which I think is really sweet of him
I must admit I'm feeling really low at the moment. The depression's one thing, but the P on top ...help! Think I've spent the last week hiding in the house and crying half the time, either because my skin hurts and itch's so much or just sheer fustration.
How does anyone else react with comments from other people? I find it really difficult, especially having to explain to my son that not everyone else is as kind hearted as him.
Sorry this seems a bit of a negative post, but I am really glad that I have now found this forum.
Take care everyone
xxx
