Author Topic: Best way to approach the dermatologist  (Read 1282 times)

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Offline iky

Best way to approach the dermatologist
« Reply #10 on: January 26, 2012, 12:09:51 AM »
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cold tar remember the days 5 months of day care 3 days a week head to toe in tar @ 30%
if you are going down the Mtx route don't have the tabs have the injections so much better

with the tar treatment make sure you never put your feet bear on the ground and wear flip flops in the showers i ended up with loads of verrucas and still have them picked them up from day care unit >:(

Hi John, 5 months of coal tar? How the hell... I couldn't have lasted a month, the coal tar is so damn awkward and hard to get off your body!

I stopped my daily dressings after a week as it just made things worse, stopped using everything and right now I'm... Well great!

As for the injections I'm gonna have to look into that, I have a hot nurse who's a bit of a flirt so I don't mind :D

Hope all is well!

Offline iky

Best way to approach the dermatologist
« Reply #11 on: January 26, 2012, 12:22:44 AM »
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Hi,

Thanks for your reply!!

Sorry to hear how bad you are at the moment, hopefully would will get better soon! I'm lucky, i've never been affected that badly, but this flare up at the moment seems to be getting bad pretty fast. Been readying up on all the first line systemics on this forum, theres so much info on here I could happily spend all day reading up its invaluable. Ive given up so many times in the past on treatment - but I'm determined to find something that works for me so hopefully I can have my first summer this year in a tshirt.

I'm just hoping so much that im not thrown into another bout of UVB as I know after 20weeks of sunburn I'll only get two weeks of remission, and it will be a heck of a way to travel twice a week for me. Ive seen some posts on here where people have been on MTX for 5 years - I cant imagine how life changing that would be for me if it cleared up my P.

Thanks again for your reply - and ild defiantly be sure to say hi if I do see you limping around! lol

Hey again Crash

I'm sorry to hear it's getting worse for you :(... But there's always something  out there that should help, just keep on looking! Might I suggest pure Shea Butter? If you google Shea Butter you'll see all the advantages it has, it's used in lots of moisturising products but only a small dose... When I used it it helped a lot, it stopped my P from being flakey and minimised the flare (I never used it for my flare this time because my joints were more affected and would be hard for me to put on), but pure Shea Butter can be found in Herbal (African) shops and isn't much to buy but may be hard to find...

Since the last time I replied on here I feel amazing! I'm nearly cleared thank god and I can walk just fine!

Keep us updated on how much you've improved as well hopefully!

Offline John Boy

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Re: Best way to approach the dermatologist
« Reply #12 on: January 26, 2012, 12:22:56 AM »
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cold tar remember the days 5 months of day care 3 days a week head to toe in tar @ 30%
if you are going down the Mtx route don't have the tabs have the injections so much better

with the tar treatment make sure you never put your feet bear on the ground and wear flip flops in the showers i ended up with loads of verrucas and still have them picked them up from day care unit >:(

Hi John, 5 months of coal tar? How the hell... I couldn't have lasted a month, the coal tar is so damn awkward and hard to get off your body!

I stopped my daily dressings after a week as it just made things worse, stopped using everything and right now I'm... Well great!

As for the injections I'm gonna have to look into that, I have a hot nurse who's a bit of a flirt so I don't mind :D

Hope all is well!
I have a hot nurse who's a bit of a flirt so I don't mind  ;D ;D ;D

Offline OOHSUITUSIR!

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Re: Best way to approach the dermatologist
« Reply #13 on: February 04, 2012, 10:50:59 AM »
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Hi Pieman,

Thanks for your reply  :)

Yeah, Salford isn't the closest hospital for me, in fact its quite far, but my Doc reassured me it would be worth the travel as it's well known for having good results with P.

To be honest I was a little unsure of how to approach as last time I saw a derm he didn't even look at my P, just ticked a box that said UVB and asked me to sign  :-\

I don't know how long it will take to get an appointment, hopefully not too long as I'm having a flare up at the moment, I can cope with the P on my body which I can hide away under layers of clothes but I cant hide the P on my hands and face  :(

NHS derms , too many people to see to really discuss YOU - your feelings, your wants and your suggestions for further treatment.

You get all the above benefits by going private...1 whole hour where the Derm is devoted to you. The costs of a private consultation range from £125 to £300, I would be happy to pay that, but instead I have joined Benenden - a friendly society where I pay £1.50 a month.  Last year I saw a derm within 3 weeks and have started private UVB sessions  -all costs covered. This year I will need a consultation for Carpal Tunnel problems and a potential  operation. I may have to have the op on the NHS but the consultation will be paid for.

I'm happy to pass on further details....just IM me  ;D
I'd rather have a full bottle in front of me...than a full frontal Lobotomy!!!