Author Topic: can anyone help me?  (Read 1658 times)

0 Members and 1 Guest are viewing this topic.

seantha2002

  • Guest
can anyone help me?
« on: September 25, 2002, 07:27:52 PM »
My P Dr has told me about some tablets that are supost to be really good 4 P, but he also told me that they can cause kidney and liver damage and also cause high blood presure and as im only 18 he's not sure if he wants me to take them :-/.
id really like to try them though as nothin else seems to work! >:(
soo... if anyone out there has tried or knows about this treatment then please let me know  :).
thanx luv sam xxx

Offline Roger

Re: can anyone help me?
« Reply #1 on: September 25, 2002, 07:33:54 PM »
Sam,

they could be Methotrexate. So of the members of the forum have or are on this treatment. I'm sure someone who knows more about it than me will respond.

Anyone?

Roger
« Last Edit: September 25, 2002, 07:34:08 PM by Roger »
Think PHO is Great? Why not donate!

You are not allowed to view links. Register or Login

Des

  • Guest
Re: can anyone help me?
« Reply #2 on: September 25, 2002, 07:46:56 PM »
Hi Sam, and welcome ;)

There are several medications that can be taken for P, the most common being Methotrexate (or MTX) and Cyclosporin.

They are basically immuno-suppressors, i.e. they shut down part of your immune system. They're mainly regarded as drugs against cancer or for people who have had a transplant to suppress rejection of the transplanted organ, but P being an immune deficiency, they can be used against P as well...

They can have some nasty side effects as well, most notably liver and kidney damage.

I have never been on either of them, but a few people here have, and they will be able to tell you much more than I ;)

In the meantime, you can always check up on previous "talks" about the subject here, if you like :) :

You are not allowed to view links. Register or Login

You are not allowed to view links. Register or Login

You are not allowed to view links. Register or Login

You are not allowed to view links. Register or Login


Maybe you could also try to talk to your doc about treatments like Infliximab or Eternacept - they basically work the same way, but have a much "narrower function area", so they have less nasty side effects - and some people have had really good results with them :)

There's a bit about those here:

You are not allowed to view links. Register or Login

All the very best of luck to you, and when you have questions, feel free to ask :D

Take care,
Des

deana_jenkins

  • Guest
Re: can anyone help me?
« Reply #3 on: September 29, 2002, 03:45:02 AM »
I personally have never used the oral medications, however i asked my doctor just a few weeks ago to let me try one to see if i could get p under control, needless to say he basically told me he was afraid to prescribe that because of the long term side effects and my age was a big factor also. I am 28 years old and he said that is can cause problems latter down the road when you decide to have children as well as liver and kidney damage. I personally dont know I am not a doctor but i have decided to go with uvb and try that. Have you tried that yet? Best of luck to you though.

Deana :-*