Author Topic: How to take Ciclosporin  (Read 1140 times)

0 Members and 1 Guest are viewing this topic.

Offline squoink

  • Newbie
  • **
  • Posts: 32
  • Gender: Male
  • Member of the UK Psoriasis Help Forum
  • View Gallery
How to take Ciclosporin
« on: February 18, 2010, 01:30:39 PM »
Hi all,

I'm about to start taking ciclosporin for severe atopic dermatitis. The enclosed leaflet and some research I've done on the net
suggests it's ok to take with or without food.

I'd be interested to hear people's opinions/experiences with this

cheers

Steve

Nicknackwack

  • Guest
Re: How to take Ciclosporin
« Reply #1 on: February 18, 2010, 02:15:18 PM »
Hi Steve  :)

From my personal experience I always took Cyclo just after a meal to prevent any upset tummy or queesiness which you may get in the initial few weeks whilst your body adapts to the drug. Banana's or milk also help in neutralising any anti acid reflux that can sometimes be common when on Cyclo.

Cyclo is a very toxic drug so anything that you can find to limit side effects would be to your advantage and make life bearable while you adjust. Top tip is to ensure that you drink plenty of water to help renal function as nephrotoxicity is an issue. Flushing out toxins with water will help your renal function perform effectively and prevent renal dysfunction. At least 2 litres a day of H2O will be of great help.

Good luck with Cyclo and lets hope it works  ;)

Nick  :)

Offline Luvvi

  • Global Moderator
  • Forum God
  • *****
  • *
  • Posts: 16660
  • Gender: Female
  • Is it Friday yet?
  • View Gallery
Re: How to take Ciclosporin
« Reply #2 on: February 18, 2010, 02:58:51 PM »

Fab advice from Nick regarding milk, banana and water!  Good luck with the Ciclo!
You are not allowed to view links. Register or Login

Offline squoink

  • Newbie
  • **
  • Posts: 32
  • Gender: Male
  • Member of the UK Psoriasis Help Forum
  • View Gallery
Re: How to take Ciclosporin
« Reply #3 on: February 18, 2010, 05:01:50 PM »
Cheers for the replies,

I've been reading about and trying to avoid this drug for years now. My derm thinks that something like a 6 month on and
6 month off regime should give me a much more comfortable time. Now I'm about to take the plunge though you realise
obvious questions that you haven't considered before. Such as ... I believe it's ok to dring alcohol in moderation on this drug (unlike methotrexate)
but am not sure.

Anyway, cheers for your replies and well wishing and I hope you too are doing fine

Steve

Offline NitroNick

  • Forum God
  • ******
  • *
  • Posts: 1116
  • Take Care And Have A Safe One!
  • View Gallery
Re: How to take Ciclosporin
« Reply #4 on: February 18, 2010, 06:47:06 PM »
Squoink,

I've just started on cyclo and as I type am enjoying a cold beer :)

I take my dose at 0800 am and PM so my body gets used the hit of toxicity plus my wife is on epilepsy treatment and takes her tabs at that time so its nice and easy to remember to take then. Usualy I take them with a drop of lemon squash and try to have something to line my stomach first.

Talking of lining my stomach my teas just arrived!

Offline lee

  • Forum God
  • ******
  • Posts: 809
  • Gender: Male
  • Why didnt I become a Derm.
  • View Gallery
Re: How to take Ciclosporin
« Reply #5 on: February 18, 2010, 07:50:20 PM »
I,m taking mine with coffee and food. I take 200mg in the morning and 150mg at night.
Not many posts to my name. But each reply is worth 20yrs of P experience.

Nicknackwack

  • Guest
Re: How to take Ciclosporin
« Reply #6 on: February 18, 2010, 09:03:29 PM »
You are not allowed to view links. Register or Login
Cheers for the replies,

I've been reading about and trying to avoid this drug for years now. My derm thinks that something like a 6 month on and
6 month off regime should give me a much more comfortable time.
Now I'm about to take the plunge though you realise
obvious questions that you haven't considered before. Such as ... I believe it's ok to dring alcohol in moderation on this drug (unlike methotrexate)
but am not sure.

Anyway, cheers for your replies and well wishing and I hope you too are doing fine

Steve

Good to hear that your Derm is thinking out of the box and devising a treatment plan for you and thinking long term  ;) 6 months on and 6 months off Cyclo is a good benchmark  :) As you adapt to Cyclo and depending on your response, the regime can be changed to take into account BP, changes in blood ALT levels and impact on your skin. I did 30 days on and 60 days off over a 9 year period and am still here to tell the tale  :) Just remember that it is imperative that you have blood tests monthly and that you are monitored very closely as Cyclo is a silent killer and can sneak up and cause problems.  Great care by your Derm Team is a must and you must attend all appointments when required  ;)

Yup you can drink alcohol in moderation and although drinking may dilute the effectiveness of Cyclo to some degree, the odd beer won't do you any harm  ;) However if your skin flares after a drink then consider that it may be a trigger and you may have to review your drinking habits. make sure you stay away from grapefruit though as it is contraindicated  ;)

Cheers  ;)
« Last Edit: February 18, 2010, 09:05:19 PM by Nicknackwack »

Offline NitroNick

  • Forum God
  • ******
  • *
  • Posts: 1116
  • Take Care And Have A Safe One!
  • View Gallery
Re: How to take Ciclosporin
« Reply #7 on: February 18, 2010, 09:08:52 PM »
You are not allowed to view links. Register or Login
I,m taking mine with coffee and food. I take 200mg in the morning and 150mg at night.

Currently on 150mg am 150mg pm.

Dose is worked out as 3g per killo and as I weigh just over 100kg (yes I know FAT BOSTARD!) made the math easy.

Can I ask what your weight is?