Author Topic: Just joined the Stelara Club - with pustular psoriasis  (Read 7028 times)

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Offline kat.chloe

Just joined the Stelara Club - with pustular psoriasis
« on: May 19, 2010, 07:35:03 AM »
Well I had my first injection today.  Although everyone is happy enough for me to self inject, for the first time they figured it was safest to get my GP to do it, just in case of any reactions.  So I am $9,196 more expensive than I was this morning.  LOL, that sum of money is just beyond my comprehension. 

Went like a breeze, didnt even feel the needle go in (they use those tiny insulin needles) although I didnt look LOL.

I have joined the Freedom support group at Janssen Cilag and have chatted to them a couple of times.  Got a Stelara nurse who I giggled with on the phone yesterday for about an hour.  She wants to do my next shot so she can meet me.  She  sounds absolutely lovely.  She is going to call this arvo to see how this morning went.

I have severe pustular psoriasis, both palmoplantar pustolosis as well as generalised pustular, including nails and scalp.  Plus I have another ulcerative auto-immune disease.

From today I will be weaning down on prednisolone just to make things interesting.  I really really hope Stelara works and kicks in quickly to help me deal with this.

So fingers crossed this is the start of something wonderful.  This will be my last biologic so I really hope it does the trick.  :)

Oh and I picked up the Stelara kit this morning from the Post Office.  Got another baggie.   :)

Offline Pieman

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #1 on: May 19, 2010, 07:49:25 AM »
hiya Kat :D

great news!

well done on joining the exclusive stelara club 8)
sincerely hope this does the trick for you hun x
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Offline TrishR

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #2 on: May 19, 2010, 08:20:26 AM »
Hi Kat,  great news  ;)  I'm with Pieman on hoping this really does do the trick for you  :-*   

I'm impressed at how quickly they've been able to arrange all of this for you too.  You certainly deserve a break from all this crappiness you've been having.

Fingers and everything else tightly crossed for you.x

Offline kat.chloe

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #3 on: May 19, 2010, 08:34:11 AM »
Thanks Pieman and Trish!

The Stelara nurse just called to see how I went and she said she will call again next week to see how things are which is lovely.  The people at Janssen Cilag have been great too.  My GP will keep an eye on me because of the weaning off of prednisolone and I see my derm in a month's time.  So all good so far.  :)

Offline Jamie..

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #4 on: May 19, 2010, 01:20:18 PM »
Best of luck from me too Kat - Really hope this works for you :-*

Offline babyblue

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #5 on: May 19, 2010, 02:10:56 PM »
You sound so upbeat and positive Kat, hope it all goes according to plan.  Glad they are keeping a close eye on you - don't want any upsets this time, hopefully as you say that magic potion costing a small fortune will kick in before the withdrawls of steroids are felt.

Fingers crossed for you babes.   :)

Hugs
BB
A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline hk

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #6 on: May 19, 2010, 04:44:28 PM »
Welcome to the Stelara club!

Hope it works well for you.

HK
----8-----Plz
---8-8---Put This
--8---8--On Your
--8---8--profile If
--8---8--You Know
---8-8---Someone
----88----Who Died
---8-8---Of
--8---8--Cancer

Offline kat.chloe

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #7 on: May 20, 2010, 06:16:47 AM »
Thanks Jamie and BB! 

Thanks HK for the welcome to the club.  Never been a member of an exclusive club before LOL.  Expensive membership.   :o

Woke up this morning and first thing checked to see if I had grown a second head or an extra limb or two.  No such luck ...  :D

Day 1 and all is well.   :)




Offline kat.chloe

Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #8 on: June 01, 2010, 01:38:25 AM »
Well I survived my first week on Stelara quite well.  I dropped another 5mg on the prednisolone last week and the side effects have not been nearly as bad as what they could have been.  So maybe Stelara is helping with that?  Swelling on my hands is starting to go down so I can nearly form a fist.  Yay me!  :D   Now to work on that peanut butter jar lid ... it is not going to win!   ;D

Stelara nurse rang last week to check up to see how things were going and gave me a contact to get much cheaper bandages direct which was lovely of her.  She will ring again this week.  So the support from Janssen Cilag has been great.

But the main thing is I feel pretty good.  Not that overwhelming, crushing fatigue and the pain has been managable.  So a great week.  :)

ellieh

  • Guest
Re: Just joined the Stelara Club - with pustular psoriasis
« Reply #9 on: June 01, 2010, 08:45:04 AM »
Great news Kat  :) here's to hoping it slowly but surely gets to work  :-*