Author Topic: LDN low dose naltrexone diary (with pics) by pieman...  (Read 17847 times)

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Offline babyblue

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #210 on: February 02, 2010, 04:21:53 PM »
I'm a fan o' pie's as well cceg ... he's won our admiration ...
He's our PHOer of the Month !  !!  .. am gonna do a fittin award when I get my software sorted !
 
MS Publisher  & Photoshop's all I need !

Save a space on yer walls / mantlepiece 4 another award Pie !!   ;D  ;D  ;D



A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline Pieman

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #211 on: February 02, 2010, 08:29:35 PM »
 :D thanks clare...i admire prople who get p remission :D....i'll get there..soon!

BB- another award?...i already have \the "scabby thing on 2 legs award"
and my missis "i'll shove this dyson nozzle up your azz if you keep scratchin" award. :o

I shall post my conclusions about Ldn and my P journey tommorrow!
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Offline Pieman

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #212 on: February 05, 2010, 11:37:51 AM »
Ldn diary – Last entry

Have stopped taking Ldn now.  As with all new potential P treatments we embark upon, I was really willing this to work on a grand scale (excuse the pun).
The results I achieved with the level of my p coverage were in the end negligible…slight improvements on smaller patches mainly on hands and feet.
Whilst on ldn the scaling process did seem to be slower but nowhere near me to advocate it as a success..
Overall I would guesstimate less than 1% of my p coverage saw benefit and after 4 and a bit months, the fat lady has sung on my ldn treatment.  I am disappointed not to have achieved more with ldn within that timescale and although
Ldn has a slow mode of action, others have and are receiving good results it seems.
Good luck to all the other ldner’s..I really wish you every success and that ldn could be the one for you. 8)

Right now, my skin is the worse it has ever been and has gradually built to this point
Since last tl01 nbuvb treatment Jan 09…although I am managing to maintain my skin being “comfortable”. 
It’s soul-destroying at times to know that I have the contestant vicious circle -daily maintenance cycle to  undertake for my skin just to feel ok, knowing if I lapse for a few days…my skin will play holy hell. >:(
The p hasn’t won yet…I refuse to be beat.

But as with most of us p sufferers, I have to be resilient and progress down the different regimes and treatment plans out there..so now it’s back to the NHS for me.
Bring on the Enbrel..time for the next battle in the p war. ::)


Thank you to all who have taken time to read and contribute to the diary, your collective support Has been gratefully appreciated over the last few months.

Onwards…and upwards!

Pie :)
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ellieh

  • Guest
Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #213 on: February 05, 2010, 12:14:11 PM »
Well you certainly tried, you have the patience of a saint and the will-power of a cart-horse (in a good way I mean). I admire you for the way you have fought it but now it really seems time for 'biological warfare' on the damned p.
Thank YOU for having taken the time and having the guts to do this diary, I'm sure there will be many who benefit from reading about your experience with LDN.
As you put it, onwards and upwards, and roll on the Enbrel, may it be the one for you  :-*

Offline wendykg

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #214 on: February 05, 2010, 12:36:33 PM »
 :'( :-* :-*
Life's too short to grate your own cheese

Offline TrishR

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #215 on: February 05, 2010, 01:48:10 PM »
Sorry to hear, that after all your perseverence,  it has not worked for you, Pieman :-\   I hope Embrel brings quick and lasting relief  :-*

Offline Cristina

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #216 on: February 05, 2010, 03:46:29 PM »
Oh Pie, that's so disappointing - what a pity it didn't work for you.  :(

Fingers crossed for Enbrel - it has to work!  :-*

Offline Jamie..

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #217 on: February 05, 2010, 03:52:47 PM »
Sorry to hear Pie. As you say onwards & upwards, good luck with the next treatment

Offline 261257

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #218 on: February 05, 2010, 04:49:09 PM »
You are an inspiration to us all Pieman

 :-* Gal

Offline Mysterious Skin

Re: LDN low dose naltrexone diary (with pics) by pieman...
« Reply #219 on: February 05, 2010, 05:05:13 PM »
and an example to us all. Respect. ;)