LDN low dose naltrexone diary (with pics) by pieman...

[riaY]

hey pie,

i just wanted to say what a wonderful man you are. people like you are an inspiration to everyone around you. good luck with the continued treatment - i hope it proves to be your miracle cure.

also, those were mighty fine boxers 

jotee xxx

For some reason, I hadn't read this thread before - probably because I don't tend to read about treatments I've never used.

OMG Pieman, I had no absolutely no idea your p was so bad.  How you keep your sanity and sense of humour going I just don't know.  My p wasn't anywhere near as bad as yours and I was a miserable cow for months until the PUVA sorted me out 

You're an absolute inspiration to other sufferers and if I ever get another flare, I'll look back at this thread when I'm feeling sorry for myself and consider it a kick up the bottom 

Hear hear1 well said both of you. I don't know how he does it. pieman

[Pieman]

thanks ria, jotee and jackie.

you three "girls" are a great support, not just to me
but to all the p peeps on pho.
pie

[ash2001]

hey pie
how many days before u run  out do u ordr more medication

[Pieman]

hiya ash

if you speak to the ehc to re-order a prescription, they will normally process
that the same day and pass to dickson's pharmacy to post out (2 days) but dependant on royal mail situation,
i'd say 3/4 working days turnaround fella

[wendykg]

Have to say I have a whole new respect for you guys after seeing your photos Pie. I appreciate what you say about it all being relative to the individual....and I agree....but will still put mine in perspective after viewing your post. You have my up-most admiration for your handling of the evil P with such humour, fortitude, and lack of self pity.
' And Then A Hero Comes Along '      Mariah Carey

[Pieman]

deedee...fingers x'd for paul...which doc did he see?.... ..medicine?..liquid ldn (cherry flavour) .

wendy, thankx, in the entire 15+ years i've had P...only ever been 100% clear for approx 2 months
just gotta be positive to reach that goal again i'm gonna get there one day soon no point me wallowing in self pity..
thanks for your kind words, we're all in the p battle together!

on the ldn front: gotta say that i have a few small patches that are clearing from the centre outwards.
the centre is flat and returning more to a normal pinky colour, but with a few little raised p lumps on the circumference of the patches.
(will post a pic later...)
it's working!  still at 2mg/2ml...tonight going up to 3mg/3ml
just need it to kick on the larger patches now....whooooooooooop 

[riaY]

brilliant, I'm so pleased for you. Good luck with the new dose.

[Jamie..]

Good News Pieman, long may it continue

[Cristina]

it's working! 

That's great news, Tweets, I hope it continues to do so.

(will post a pic later...)

Just make sure you empty the bin first  , and if you post one of your ears again, please make sure you wash behind them this time unlike before...






I hope that's Mrs Pie's lipstick and not some floozy! 

[mustang]

Wowee - I have only just read this thread (sorry, if I don't recognise the meds, I don't usually read due to having nothing worthwhile to post!)

All I can say is kudos to you Mr Pieman - you are an inspiration to us all. It's been a long time since I was really covered and it's easy to forget when things are going well.  I really hope this works for you and that somebody up there figures you deserve a break from it all.