LDN low dose naltrexone diary (with pics) by pieman...

[gary1967]

upped to 4.5 sleep is no no then again i have never needed much

[Pieman]

We you will certainly have given it a fair trial by then,   hopefully you won't need the Embrel eh! 

hopefully not trish! x...just a waiting game now ....

oops sorry jeni, many congratulations !!! 

gary, how is ldn doing for your PA / P fella?

If anyone wants to post pre Ldn / Post ldn pics..pls feel free!
pie

[stewart_h]

i cam e off it cause i wasnt sure what was affecting what as my arthritus hurt a lot. The problem is that i think u need to get up to 4-4.5mg of this stuff and i didnt seem to be tolerating it. After a rest i may retry. But im pretty sure 1-2mg doesnt do much.

[Helen_Donegan]

Just got back from NHS derm vist today and PASI score has reduced down to 21 compared to PASI 3 months back.

I am going to be prepped ready for Enbrel in march 2010 should LDN not prove itself, (funding approved)
so got my blood form to do and a enbrel patient info box to read up on!...
pie

I just can't believe how bad you have been - I thought my p was bad a few years ago but it was nothing compared to your photos on page 1.
Please God you will have a few years of complete relief with enbrel - if they don't give it to you come and live in Italy

[Helen_Donegan]

As said already well done posting, but I can't see why you had to go private it's a bit of a scandal when it is obvious you should have priority NHS treatment

That is what I was thinking - I created such a drama/tragedy over less than 1/3 of what pieman had - made everyone move to help me

[ash2001]

 i take mines in morning to try and avoid sleep problem

[Pieman]

I just can't believe how bad you have been - I thought my p was bad a few years ago but it was nothing compared to your photos on page 1.
Please God you will have a few years of complete relief with enbrel - if they don't give it to you come and live in Italy

That would be good thankx helen!!!

[stewart_h]

dont forget that if u r on 4.5ml , if u take earlier in the day it wont disturb your sleep. I will probably try again after a rest

A word of warning though, since coming off it i have had a huge huge huge rebound (even though i didnt improve much at all on the stuff).

[gary1967]

it is helping my p arthur which is more important to me being a plasterer as for skin it dont itch and has gone very flat but i think we are looking at the long haul here not a quick fix

[Pieman]

Yes indeedy.....have a little patience, have altered the words slightly

"my skin is numb, has no feelin' - so while it's still healing..just try and have a little patience " yeah....

first night - tonight on 4.5mg

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Take that mince pie