Hello Everyone
I'm Linda Elsegood MS sufferer and founder of the LDN Research Trust which is a registered charity, everyone is a volunteer. Our aim is to get LDN trialled for many conditions and to help people obtain LDN.
The reason for my joining and posting is that I have had an increasing number of people with psoriasis contact me. I have to say I have been educated on psoriasis by the best people possible and that is the people that have it themselves. I had no idea before that it was so complex and not just a skin condition. So thank you to all of you that have been patient and explaining your condition to me.
Reading the tread many of you have heard of Dr Tom Gilhooly, he is one of the Trust's medical advisors, he added the below to his article in our bimonthly August newsletter.......
"We managed to recruit one doctor who, after a great deal of deliberation and due diligence agreed to prescribe LDN. He concentrated on patients with psoriasis, and although several patients have given
up the treatment mainly due to financial constraints, he has been amazed at the effect of LDN in this condition.
He asked me how many patients who were still attending did I think had a skin clearance? This is an incredibly difficult thing to achieve in psoriasis and as the skin is visible, any persisting lesions could suggest treatment failure even though the inflammation was greatly reduced.
The gold standard in Psoriasis research is 75% clearance and many clinicians consider this to be far too high, with 50% a more achievable target.
I suggested that perhaps 50% of those still attending the clinic may have had a total clearance, bearing in mind that those still attending are more likely to be having success. I was astonished that when he told me that all 100% were clear. Although this was only 7 or 8 patients, in the doctor’s words ‘everyone has had their lives transformed’.
One patient who attended that evening had been clear of psoriasis for the first time in 51 years. You can imagine how good the patients felt and I could see how good the doctor felt!”
Any GP can prescribe LDN on the NHS if they think it is of therapeutic benefit, many are not prepared to do this. I do know several GP’s in the UK who are willing to prescribe LDN for psoriasis.
If I can help anyone please get in contact with me via the LDN Research Trust.
I hope LDN can help you like it has me.
Linda
