Author Topic: new to cyclosporin and need help!!!!  (Read 1374 times)

0 Members and 1 Guest are viewing this topic.

Offline kween21

new to cyclosporin and need help!!!!
« on: January 11, 2010, 05:59:26 PM »
Hello,
ive started 150mg dose of cyclosporin, today being my second day on it. I feel extremely cold, thirsty and in need of the toilet alot, are these normal side effects? Also, can anybody share the types of side effects they got as I am terrified! Psoriasis has gotten me down so much, i feel like im 18 going on 80  :'( :'( wish i could just be normal

Nicknackwack

  • Guest
Re: new to cyclosporin and need help!!!!
« Reply #1 on: January 11, 2010, 06:19:12 PM »
Hi kween and welcome to PHO from me  :)

I used cyclosporin for 9 years so hope to alay your fears  ;)

It'll take a couple of weeks for your body to adjust to Cyclo . Common side effects at the initial stages will be an upset tummy, changes to your body temperature and feelings of light headedness and generally feeling a bit out of sorts. But you can minimize the side effects in numerous ways. Firstly drink lots of water and I mean lots ! Cyclo is quite toxic and you need to flush out the toxins and drinking water will help your renal function operate more efficienctly. Secondly, always take Cyclo after a meal and never on an empty tum. I found bananas pretty good at absorbing Cyclo  :)

It'll take a few weeks for you to adjust. Cyclo will be dampening down your immune system which is what it's supposed to do and in turn will reduce your skins cell production and reduce any inflammation that you have with your psoriasis. You should see a noticeable difference hopefully within a month.

No need to be terrified. Cyclo is a proven effective treatment for managing p very effectively. Just make sure you get regular blood checks, keep an eye on your blood pressure and make sure you keep your appointments with your Derm.

No doubt others here will suggest more tips to help you but don't hesitate to ask any more questions as we are all here to help  ;)

Nick  :)

Offline Helen_Donegan

  • Full Member
  • ****
  • Posts: 248
  • Gender: Female
  • Member of the UK Psoriasis Help Forum
  • View Gallery
Re: new to cyclosporin and need help!!!!
« Reply #2 on: January 11, 2010, 06:27:44 PM »
You are not allowed to view links. Register or Login
Hello,
ive started 150mg dose of cyclosporin, today being my second day on it. I feel extremely cold, thirsty and in need of the toilet alot, are these normal side effects? Also, can anybody share the types of side effects they got as I am terrified! Psoriasis has gotten me down so much, i feel like im 18 going on 80  :'( :'( wish i could just be normal


There is no such thing as normal - you are going through a bad patch and will improve - there are a lot of ways P can be dealt with now - 10 years ago the situation wasn't as good, in another 10 years there will be an actual cure :D  I moan and complain all the time but know there are worse things (not many mind you  ;D) - I really hope you will get a lot more joy out of life soon ;)
Helen Donegan
editor of Italy With Us
an ezine for lovers of Italy.
You are not allowed to view links. Register or Login

Offline Paulio

  • Jnr. Member
  • ***
  • Posts: 60
  • Gender: Male
  • Member of the UK Psoriasis Help Forum
  • View Gallery
Re: new to cyclosporin and need help!!!!
« Reply #3 on: January 11, 2010, 08:55:36 PM »
Hi Kween

I hope the side effectes improve for you soon & the cyclo works well!

Paul

Offline lee

  • Forum God
  • ******
  • Posts: 809
  • Gender: Male
  • Why didnt I become a Derm.
  • View Gallery
Re: new to cyclosporin and need help!!!!
« Reply #4 on: January 11, 2010, 09:49:45 PM »
I,m starting it on Wednesday.  :-\

And I have to take 200mg in the morning and 150mg at night.

I dont know what to expect.
Not many posts to my name. But each reply is worth 20yrs of P experience.

Offline Luvvi

  • Global Moderator
  • Forum God
  • *****
  • *
  • Posts: 16789
  • Gender: Female
  • Is it Friday yet?
  • View Gallery
Re: new to cyclosporin and need help!!!!
« Reply #5 on: January 11, 2010, 11:33:18 PM »
Nicks given good advice as always.  Lots of fluids and as much rest as you can until you adjust to taking it!  Regular blood tests and blood pressure monitoring are vital!

Good luck!
You are not allowed to view links. Register or Login

Offline Bombag

Re: new to cyclosporin and need help!!!!
« Reply #6 on: January 12, 2010, 11:25:51 PM »
I was the same as you when I was first prescribed Cyclo,however there is nothing to worry about,as previously said regular blood tests & drink plenty of water,keep your head down when you need to (listen to your body & rest when you need to).It has not affected my social life & not been detremental in any other way so far except a rise in BP which is quite controlable & reversable.Good Luck

Offline devilsofdarkness

  • Senior Member
  • *****
  • Posts: 305
  • Gender: Female
  • Member of the UK Psoriasis Help Forum
  • View Gallery
    • ratzzz and more
Re: new to cyclosporin and need help!!!!
« Reply #7 on: January 13, 2010, 05:19:47 PM »
Hi dont know if this will be of any help to you but i did a cyclo thread when i went on it last year and there is a lot of info and my experience of the drug on there

You are not allowed to view links. Register or Login
My pets :
2 x dogs
5 x cats
24 x tarantulas
2 x rats
9 x scorpions
2 x snakes

1 hamster
fish
2 kids+1 hubby

PLEASE NOTE MY PETS AND MY FAMILY ARE MY LIFE

Offline Rebecca1234

Re: new to cyclosporin and need help!!!!
« Reply #8 on: January 26, 2010, 10:12:36 AM »
Hi kween21, if this info helps at all - I've been taking 200mg neoral a day since November, and I had a bad first two weeks. (I felt like I had been hit by a bus) but after a couple of weeks I was fine, I take it still, with no side effects and I wouldn't even know that I'm on neoral. Everyone is different, how are you feeling now?

Offline Tom_B

Re: new to cyclosporin and need help!!!!
« Reply #9 on: February 20, 2010, 05:04:34 PM »
On 300 - 350mg a day ..... settled and no side effects ....