Patient experiences of medications

[ns]

Have been reading through it, it's  very helpful to read others experience of meds

[psorio78]

This is a Fab ! Mother link for treatment zone...really felt happy to go through ! Do we have anything that relates to Methotrexate ? I have been using it for 4 years now & now worried that it might effect my liver as it is showing up in my blood tests 

[Gareth125]

Thanks for this link Chrissy . After reading up about Humira , I have realised that results really do depend on the individual and that they were so varied with no two experiences being the same . I just goes to show you that it's worth trying a drug and just because one person didn't suceed with it doesn' mean that it wont work for you . However on the other hand it my help the reader get a true picture without raising their own expectations too high just incase the medication isn't the right one for them . I have heard Humira and Embrel being refered as "wonder drugs"  and after reading this this does not seem to be the case at all . Does this make sense or am i waffling lol

[jram]

ive been using humira for 8 months without benefit. the first 2 shots were very effective, then nothing.

[Mel]

Just thought that I would share this link I found. Its a living database of drug ratings by patients.

Its great to explore other peoples experiences of drug therapy and this site has a huge list of comments from a users perspective not a drug data sheet.
You can search for any drug on there besides the enbrel I was looking for, Humira is there too.

You can also post your own experiences.

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Excellent site Talis thanx.
Been thinking about biologics.After reading some patient experiences I'm even more petrified than I was before.
If I was to have a biologic it would have to be Ustekinumab for me.If I was to see a derm would I be able to get it without having tried other biologics first you think?
Question open to anyone please.Mel.

[pictorex]

The reason psoriasis is considered to be somewhat treatable but not actually curable is because its true cause is not understood. Prof. Tullio Simonicini has concluded that the cause of psoriasis is a fungus and found that it responds to treatment with tincture of iodine. I have had chronic psoriasis on my elbows, upper arms and lower legs for more than twenty years. At times I could not even go to public swimming pools because the condition was so unsightly. I started applying tincture of iodine on 2. January 2009 and the condition was basically cured within ten days. Of course, it takes somewhat longer for the skin to recover completely. I applied the tincture multiple times a day for four to five days, until the surface of the skin peeled off, revealing healthy, psoriais-free skin underneath; one must be careful in letting it peel by itself and not force the peeling. A long bath will help the peeling process without causing damage to healthy skin. In some isolated spots the fungus may not be killed completely with the first treatment. In such a case wait about a week before reapplying the treatment. By all indications this is a permanent cure. This is the first time in over twenty years that I have been entirely psoriasis-free. One last remark: you need to use the classic old-fashioned tincture of iodine that dyes your skin deep purple. Iodine povidone solution is not effective at all.

[crish]

Cheers!

[vmanto]

Hi All,

I was reading the experience of Mel about the tincture of iodine has anybody else tried this method?

I found the below details on a seach I did:

Tincture of Iodine - National Psoriasis Foundation message board
Prof. Tullio Simonicini has concluded that the cause of psoriasis is a fungus
and found that it responds to treatment with tincture of iodine. ...
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[Tim_]

Hmmm
Iodine as a treatment for P?
Not a conclusion I would leap to and if you read more of the thread there are some reasonable objections to it's use.
Also this proffessor, what is he a proffessor of?
I would not agree that P's cause is a fungus, where is the evidence and clinical trials to prove it.
TBH I think this proffessor is voicing his medical opinion, at best, or an untested theory. Else there would be reports, lab tests etc to back it up.
Yes sometimes a fungal infection is connected with P and there are already meds that will treat that available via prescription.

As far as I can remember my chemistry lessons, Iodine is from the same family of elements as Chlorine and we all know how chlorine affects us.
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Iodine is used pre operatively as a Disinfectant...

For me the crucial test of any treatment for P is how it behaves in the long term as far too many of the treatments that work quickly have steroids in them or only have a short term effect, ie removal of current leisions and do nothing to stop them returning which is far from a cure and achieves a temporary clearance at best so before leaping to conclusions of the success of a treatment they need to be assessed over time in a scientific manner.

Tim

[klaus]

I am 63 years old and I had severe psoriasis for almost 30 years.  Like everybody else who has this disease I'd tried everything including UV light.  In my desperation for a cure I signed up for a five year study on STELARA.  I'm in my third year now and I am free of any psoriasis since!! I could never imagine how it feels to have normal skin again. The drug has been recently approved here in Canada and in Europe.
After I had received my first injection at the trial clinic in Barrie (Ontario ) my psoriasis magically disappeared after a few weeks.  My friends and family members could not believe how effective this treatment is.  At the trial clinic I have made a few friends and they also experienced similar results.  I have absolutely no side effects and I'm very healthy.  I must say whatever you will read about this new drug and how effective it is that would be true.  Only recently I have learned about the cost of this treatment.It is very expensive and I almost feel guilty because the company supplies me with the drug free of charge.  Long time ago my dermatologist  told me....  Learn to live with psoriasis..  But thanks to modern medicine and buy my own experience this is no longer true.  I now enjoy a life without psoriasis!!  I might not tell you anything new here but there is finally light at the end of the tunnel for us.