WHY DO I BOTHER!?!

[steelem]

sorry roger - but diet has everything to do with wat ever ---

[Roger]

sorry roger - but diet has everything to do with wat ever ---

The specific areas on the forums are well described and help people with specific areas of interest focus easily. This is one thing that the moderators are keen to enforce as over the many years that this forum has existed it has helped countless sufferers with their path of gaining knowledge about their condition.

Just to be 100% clear in where posts relating to different treatments go, diet is best discussed in the alt board. Posts relating to diet in this forum will be moved by the moderators. Your compliance to this would be most welcome and will ensure that this forum provides the widest range of information in the most focused manner.

[nikkij31]

I'm relatively new to this site and say little, but the post you have hijacked was upsetting and didn't need a diet basher looking for a cause to attack others, I fully understand diet plays a role in this condition(for some) but for other people it's hereditary and for some its a lifelong condition that no amount of dietary control or alternative therapies will ever cure...whilst I empathise with different peoples views, the original thread of this post was more about the shambolic treatment of the NHS, which most of us can sympathise with, to personally attack people with different views is a bit contradictory to what this forum is meant to be about!

[blazeman]

Hi rinbag

Why do any of us bother?

It's because its our life, we are the ones that have to live it. We are the only people who understand what we have to live with, day in and day out. We understand the quality of life we (and our family's) endure, not the doctors.

I think that alot of us have endured the embarrassment of showing what we cover up most of the time. If I take away the psoriasis I am still overweight, if I slim down I still have the Psoriasis. I know there's no tablet in the world that is going to make me look like Brad Pitt.

I'm not sure were I'm going here but I would like to say you are not alone in how you feel, and how you have been treated. All I can say is explain what you want and what you expect in no uncertain terms and make your dermatologist explain everything you need to know back to you. We wait long enough for those few minutes of consultation so make them count.

If you feel you have been ill treated/short changed or embarrassed by your experience with your treatment then you have!

Keep strong, you are not alone. x

[beanie]

rinbag thats really awful,
 I had my long awaited appt today to start mtx and when I went in I was told there was a nurse studying skin and would i mind if she looked at my skin! err yes I would, seeing as i haven't been able to shave my legs in 3 months!, after that embarrassment I then found out I couldn't go on mtx because its not suitable for me, can't go on acretin because I have suspected arthritis so cyclosporin was the only thing......the one i really didn't want! and i always start crying and make myself look like a right idiot!! You wait such a long time for these appts that when it doesn't go how you expected it too, it's like your brain stops working!
Go back to the doc/derm and try and get them to understand how much you need these drugs x good luck x

[rinbag]

Wow what happened...? Did I start something? *backs away*

I had my long awaited appt today to start mtx and when I went in I was told there was a nurse studying skin and would i mind if she looked at my skin! err yes I would, seeing as i haven't been able to shave my legs in 3 months!, after that embarrassment I then found out I couldn't go on mtx because its not suitable for me, can't go on acretin because I have suspected arthritis so cyclosporin was the only thing......the one i really didn't want! and i always start crying and make myself look like a right idiot!! You wait such a long time for these appts that when it doesn't go how you expected it too, it's like your brain stops working!

Can I just say that you sound exactly like me. I also sympathise with you on the whole leg shaving situation. I haven't done mine either, so I guess that added to the humiliation. And I also stopped functioning because I was upset, I managed to hold back the tears until I was outside this time though (phew). But yeah - it's like your brain freezes.

ANYWAY guys (again thank you for all the lovely encouraging messages) - today I decided to take some serious positive action to regain control over the situation. I called the hospital. Answer phone. I called again... and again... and again... no answer. I complained and got put through to my dermatologists secretary. I explained what had happened and how upset I was over the decision that had been made and I asked to see another derm for a second opinion - female preferably (no female derms of course!). Well she ummed and ahhed and eventually after telling me that Dr Mahmood was a fabulous dermatologist (well not for me he wasn't!) that she could arrange a follow up appointment... IN THREE MONTHS! I said no thanks, I need something urgently. Sooo she said she'd see what she could do and get back to me. Well...... she hasn't. Surprise surprise.

I'm not taking that c**p though and after a discussion with a co-worker of mine, I realised that being an employee of a rather large insurance firm - I get private healthcare!!! Hallelujah!!!! Sooooo I managed to get an appointment with my wonderful GP and gave her the name of a really good dermatologist (my friend suggested him) at a private hospital up the road from me and she is writing a letter  of referral to him today. So hopefully I should hear something positive soon!

I'm so pleased. I really think I'm done with the NHS in regards to my psoriasis. They've been utterly useless for me. I really hope other people continue to have positive experiences with them though. I hope mine was just bad luck.

[fizzy1]

i was put on mtx but only after  i had convinced them that i  had finished having children and i was in my 30s as far as it goes mtx although helping my skin made me feel really ill, i have just started Humira and so far so good, any of the internal drugs can have implicatons on unborn babies so it could have been why they didnt want to start u on it, but it doesnt mean u cant have it it just means that if and when u do want children u have to plan it. Good luck with the private consultation