Author Topic: Extremely Frustrated w/ Flare Up (pictures attached) (Read 1874 times)

DanC73 · « **on:** November 21, 2009, 05:35:58 PM »

I’m sorry to report that my psoriasis has begun to revert back to its previous (pre-UVB treatment) state the past few weeks. I have been travelling a lot for work and have not had many opportunities to do phototherapy (two times in the past three weeks).

I’m just shocked at how quickly the psoriasis has reappeared in the areas that had cleared up. I know that I have not done phototherapy sessions the past few weeks, but I’m still quite surprised. My legs, Thighs, Arms, and Buttocks are bad again

To make matters worse, the Protopic has stopped working on my genitals. All in all, a bad couple of weeks for me.

I'm pretty bummed out about things

mustang · « **Reply #1 on:** November 21, 2009, 07:08:36 PM »

Sorry to hear this Dan - it's rubbish isn't it that weeks of effort can be undone so easily.

You know as well as the rest of us that sometimes you need to alternate treatments so maybe try some Daktacourt or Trimovate down below for a bit of relief.

Hopefully you will feel positive enough soon to start making a plan of action for the next steps. I guess it's too soon again to do UVB. All the best - hope you get some relief soon.

Angela

Fi. · « **Reply #2 on:** November 21, 2009, 08:12:49 PM »

It is really frustrating when it all starts to come back. I've got to the point where I am no longer frustrated, rather resigned to the fact that it will start to fight back at some point.

99%normal · « **Reply #3 on:** November 21, 2009, 08:28:07 PM »

Iv had UVB and it all came back within a few weeks. Fortunately my genitals are clear (too much info

) the times it has appeared one night of a eumovate massage and its well gone.

Ana · « **Reply #4 on:** November 23, 2009, 03:58:25 PM »

goodness, what a total pain. I hate that feeling that I have to rely so heavily on treatments are we are kind of at their mercy. I hope you can step up the UVB again and hopefully bring it back under control.
What do you use for the rest of your skin when you are away? Don't suppose you go to hot countries so you could get out into the sun instead?
ana

DanC73 · « **Reply #5 on:** November 24, 2009, 12:21:54 PM »

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goodness, what a total pain. I hate that feeling that I have to rely so heavily on treatments are we are kind of at their mercy. I hope you can step up the UVB again and hopefully bring it back under control.
What do you use for the rest of your skin when you are away? Don't suppose you go to hot countries so you could get out into the sun instead?
ana

I completely agree Ana! The UVB had been working so well that I was not using anything but Protopic for my bits. I so wish that I lived in a warmer country and get out into the sun more.

I am attaching a few pictures of the flare up that I took this past weekend.

Breenger · « **Reply #6 on:** November 24, 2009, 11:05:00 PM »

first post here, be gentle with me

i had the uv treatment too dan and my psoriasis all but cleared up, although i was left with patching which i could cope with.
but low and behold it came back with revenge within about three weeks and it is now worse than ever.
i have big patches all over my back and legs and now i have developed raindrop

PS i only use dovobet ointment

Ana · « **Reply #7 on:** November 26, 2009, 03:18:12 PM »

Hey Dan,
that middle picture of your knees looks just like my upper arms right now! Snap!! Plus I have some lovely spots coming up mid forehead. I've just been to the dr and they have given me steroid creams again - sigh. I can't even be bothered to get the prescription yet, I just get really fed up of using the stuff and then promptly rebound flaring when it has stopped, just like you said Breenger (welcome to this lovely forum by the way!!).
Hang in there Dan and hope it gets better. Does alcohol help at all?? (if only...)
Ana

chriswood · « **Reply #8 on:** November 26, 2009, 04:48:42 PM »

Hi Dan

Like you I have been having a really bad flare up, it has been like this for the last 12 months. Went to see Derm in January this year, suggested phototherapy which couldn't start for 2 months, Went through hell while I waited. I had to go 3 times a week for 6 weeks but by the time I was finishing my course it came back. Went to see Derm hoping to go on tablets, she wanted me to try coal tar before she put me on tablets, was very reluctant but agreed. Only used it twice and it made my P worse, had a bad reaction to it. Anyway, I can't use any cream now cus everything I put on makes it worse, seeing D again in 5 weeks with a view to going on Acitretin. Can't wait.

DanC73 · « **Reply #9 on:** November 27, 2009, 11:44:14 AM »

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first post here, be gentle with me

i had the uv treatment too dan and my psoriasis all but cleared up, although i was left with patching which i could cope with.
but low and behold it came back with revenge within about three weeks and it is now worse than ever.
i have big patches all over my back and legs and now i have developed raindrop

PS i only use dovobet ointment

I feel your pain Breenger. I hope you begin to clear up soon!

DanC73 · « **Reply #10 on:** November 27, 2009, 11:46:06 AM »

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Hey Dan,
that middle picture of your knees looks just like my upper arms right now! Snap!! Plus I have some lovely spots coming up mid forehead. I've just been to the dr and they have given me steroid creams again - sigh. I can't even be bothered to get the prescription yet, I just get really fed up of using the stuff and then promptly rebound flaring when it has stopped, just like you said Breenger (welcome to this lovely forum by the way!!).
Hang in there Dan and hope it gets better. Does alcohol help at all?? (if only...)
Ana

I feel the samew way Ana about medications ... I wish Alcohol worked lol

DanC73 · « **Reply #11 on:** November 27, 2009, 11:52:39 AM »

Best of luck Chris! I hope you get some relief soon!

Breenger · « **Reply #12 on:** November 27, 2009, 09:00:03 PM »

cheers Dan mate.
im going through a major flare up just now

the itching is bugging me no end $:-\$
but one thing for sure is im bigger and stronger than my P will ever be
it will never beat me

wendykg · « **Reply #13 on:** November 28, 2009, 11:22:03 AM »

Geez, I so hate the evil p and how it affects us all :'(
Breenger, my heartfelt sympathies go out to you in your latest flare-up...and my admiration too for having the bravado to post your photos. My p is very similar in looks and location, but on a smaller scale.
I have just finished week 2 of a 10 week course of PUVA. I am definately noticing an improvement in my skin already, but am also burning quite badly. The dilemma is, to carry on with the PUVA and clear up the p....and then end up with skin cancer....or give the treatment away and just accept and embrace the p!
Any advice and suggestions gratefully accepted $:-\$ $:-\$ :'(

Breenger · « **Reply #14 on:** November 28, 2009, 10:46:05 PM »

i think it is a lot easier to accept and embrace you P Wendykg

i used to sink to some dreadfull lows and my P got worse.
i think this flare up was caused by me getting a new position within the company i work for, a promotion hahaha theres a laugh

waco · « **Reply #15 on:** December 03, 2009, 12:30:08 AM »

Hi all

In the midst of a mega flare at present. It seems everytime I look at my body its got worse ! Have a great Dr and am awaiting PUVA. Looking for some top tips just to get through each day. Any offers ?

Have stopped the alcohol and diary, laugh...................i have'nt had so much fun since the hogs ate my brother !

Ana · « **Reply #16 on:** December 04, 2009, 06:14:56 PM »

Hi,
Wow, Breenger you are so brave to post your photos too. I think I've had psoriasis too long, cos I was thinking what a nice pattern your spots have on your back! (I think the p has gone to my head)
Wendy - that doesn't sound good. I've only had UVB not PUVA but I remember when it started to burn they cut the times back again until my skin became stronger and then did not burn when I had treatment. Does PUVA work differently? ie is burning a good sign? I'm trying to sort out how I feel about using steroid creams at the moment so I'm facing a similar (although not quite as many side effects with steroids but still not good) problem. I've decided I can't be bothered with the steroids at the moment so am just trying to live with my psoriasis, on my face and all. don't feel bad for whatever decision you make tho, no one knows what the future holds and you need to decide what is best for you today to live with your psoriasis.
take care,
Ana

wendykg · « **Reply #17 on:** December 13, 2009, 04:43:23 AM »

Hi Ana...no, you're not supposed to burn with PUVA either, and I did have to repeat a dose a couple of times until my skin got a bit tougher. Have just finished week 4 and am coping much better, tho the clinic is closing for 3 weeks over Xmas which will put things back a bit.
I'm also going to ask the derm if I can have a maintenance treatment maybe once a fortnight to hopefully stop it coming back. Otherwise it just doesn't seem worth the hassle if you only get a brief respite.

John H · « **Reply #18 on:** December 13, 2009, 10:58:03 AM »

Its is just typical of our disease. I had great results during all 3 Light therapy treatment periods, but like you the return of the P was relentless. My advice is step up a gear and don't waste time on the lesser treatments. Cyclosprine worked like a miricale for me and i'm still clear months after a 9 week regime.

Speak with your Derm and let him know how you feel and just how frustrating ineffective treatments can be.

Don't fret just get it done and have some fun.

John H

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Author Topic: Extremely Frustrated w/ Flare Up (pictures attached) (Read 1874 times)