Author Topic: Worried about Psoriasis & Arthritis  (Read 779 times)

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Offline autosmart

Worried about Psoriasis & Arthritis
« on: December 11, 2009, 10:55:51 AM »
Hi all,

Brand new member here, thought this would be the best place to get information from anyone willing to give it. I'm 22, male and I started developing psoriasis about a year ago. It started off as one tiny red patch on my torso and I thought it was a small rash or more seriously something potentially cancerous as I'd just returned from holiday where I was exposed to a lot of sun. Anyway, unfortunately it's developed as I now have it covering one elbow and multiple dots of it around my body and forehead. It's extremely hard to deal with but as I know it's not the worst case in the world, I always say to myself it could be worse.

After doing a lot of research on it on the internet and talking to various family members I discovered that my grandfather had psoriasis, so that explained the genetic source, but it didn't end there. My mum had eczema and asthma from when she was a little girl to well into her 20's, and then developed arthritis in her hips and shoulders in her 40's. Now in her late 50's she's developed crones disease in her bowel which resulted in her having to undergo a serious operation to remove part of her inflamed bowel and is now on immuneo-suppressive drugs. Her sister, my aunt, died of a similar bowel problem back in 2007 (partially due to medical negligence of which a lawsuit is developing) and my other aunt has been in and out of hospital with stomach problems (having had half of her intestine removed at age 15) her whole life.

I've heard that between 20-30% of psoriasis suffers are at high risk of developing psoriatic Arthritis, and naturally this terrifies me. Having gone from a fairly confidant, positive and care free teenager to now being extremely self-conscious, not wanting to go swimming, take my top off in any situation or even wear a t-shirt, I finally got round to accepting the daily grind off applying creams and such, but the thought of living a life where I’m at high risk of developing much more severe problems leaves me feeling extremely depressed, genetically inferior and helpless. I’m a musician, a guitarist / pianist and I’m also an exercise nut and as if feeling physically abnormal wasn’t bad enough, the thought of developing arthritis in my fingers / legs / anywhere before I’m classified ‘old’ would just quite literally be the end of me.

What I don’t understand is, if human beings are an evolutionary result of natural selection and survival of the fittest, how do things like psoriasis and autoimmune diseases exist to begin with? I’m a firm believer that things like cancer are a result of modern living; introducing man made chemically concocted foods into our diets, breathing in daily toxins, work stress and emotional stress, but why psoriasis? Surely in our ancestry if someone was to develop psoriasis and psoriatic arthritis then their chances of surviving / escaping predators / passing on their genes would be significantly cut down? I don’t understand psoriasis or genetics enough to know the answer, but it’s causing a major low point in my life at the moment and it’s got me extremely worried and upset.

If anybody has any help, information or advice I’d be very grateful to hear it.
Thanks for reading.

Offline Sue S

Re: Worried about Psoriasis & Arthritis
« Reply #1 on: December 11, 2009, 11:06:20 AM »
Hello, I don't know quite how to answer you.   Not everyone with psoriasis develops the arthritis and equally there are people on here who never had psoriasis, but do have psoriatic arthritis.   It must be worrying and devastating at your age (at any age actually) and you do sound very down about it.   Try to be just a bit more positive as it may help you health wise.    You are obviously quite a thinker so will delve into all the info available, which is a good thing, as forewarned is forearmed, and there are many drugs on the market that do help.  I know none of us want to rely on drugs, but there you go.

I am an OAP and was really looking forward to retirement.  I have always been active and done every sport and dangerous pursuit possible - glad now that I have done it all.  But even at my age, when this rotten illness struck three or four years ago, I was devastated and in denial for ages.   Gradually acceptance grows and and you have to just try to get the best quality of life possible.

There are loads of experts on this forum and they will soon be along to help you out.

Keep your chin up!

Sue S.

Offline Sue S

Re: Worried about Psoriasis & Arthritis
« Reply #2 on: December 11, 2009, 11:08:48 AM »
Forgot to mention.  My psoriasis came when I was in my 20's (only on feet and scalp actually) and this did go away after I had my children in my 30's.  The arthritis part of it didn't appear until my 60's, so you may have more quality time than you think.

Sue S.

Offline Fred Hoggin

Re: Worried about Psoriasis & Arthritis
« Reply #3 on: December 11, 2009, 12:23:34 PM »
Hi Auto, Welcome along  8)

Read your post, interesting the thought of escaping predators  :-\

Ive had p for over 30 years, got pa first about 10 years ago but managed to cope, till about 2 years ago  i just could not move and the pain was unbearable, so escaping predators no not possible.

I am now on Enbrel and have no pain at all, and my p is almost gone, it's not a cure but it helps.

Try not get down about it, keep as positive as you can.

All the best

Fred  8)
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Offline Melanie

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Re: Worried about Psoriasis & Arthritis
« Reply #4 on: December 13, 2009, 05:37:25 PM »
This is concerning reading. I've had psoriasis pretty much all over for 27 years (I'm now 30) and I love my sports. I asked my dermatologist about PA developing and she said that it was very very rare although people with PA more often develop P. Now I'm worrying too!!!

Offline Fred Hoggin

Re: Worried about Psoriasis & Arthritis
« Reply #5 on: December 13, 2009, 06:53:21 PM »
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This is concerning reading. I've had psoriasis pretty much all over for 27 years (I'm now 30) and I love my sports. I asked my dermatologist about PA developing and she said that it was very very rare although people with PA more often develop P. Now I'm worrying too!!!

By what i know the % for getting pa is low, so don,t worry.

Anyway they can treat it.

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Offline coggers

Re: Worried about Psoriasis & Arthritis
« Reply #6 on: December 14, 2009, 10:31:09 AM »
Autosmart

FYI i had Ps for over 30 years, ok mine wasnt too bad but I have lead a very active life physically, swimming, sports, etc. For sure Ps was a bit of a pain and irritant but it never stopped me or plenty of others.  For sure it may hit you differently but I hope you can find support here.

There are lots of genuinely authorative places to learn about Ps, PsA, relative chances of it all etc.  Couple of examples are You are not allowed to view links. Register or Login You are not allowed to view links. Register or Login You are not allowed to view links. Register or Login  of course good old google is the gateway here but the national organisations are pretty good and pretty definitive.  What you will learn is that no one knows the cause and that there are lots of theories and also remedies some work and some are plain crack pot, there are also a good few charaltans out there to take advantage. 

Re the genetics, damn why am I not 6 ft tall and absolutely drop dead gorgeous LOL.  Actually I think you have answered your question re survival, Ps and even PsA clearly isnt a threat to survival else it would have been eliminated by now.  There is another theory on the alternative treatments that our ancestors didnt have these troubles as they were living in areas with plenty of sunshine and a paleolithic diet. 

Re getting out exercising etc, the very worst thing you can do is retire away into the shadows.  Ps has a bad name for the so called co-morbidity diseases, some of them caused by retiring into the shadows and not getting enough exercise etc.  For sure it can be a bit embarrasing but I can only hope you can get out there and make the most of your time and enjoy doing what you always enjoyed doing before the spots appeared.

Re treatments, you will find a wealth of experience on this forum, but there is again a common theme, what works for one doesnt work for another.  I have used conventional treatments off and on through the years.  They all gave me temporary relief but no long lasting remission and some of them had nasty long term implications.  I basically just lived with it.  However having recently started to get PsA i did my homework and lots and lots of reading on this site and others, until I found something that seemed to fit my personal version.  You are relatively new to it so you wont have the experience of how your Ps works. So for you it will be a bit of experimentation however I would strongly suggest you look at your diet given the history in your family.  I have recently completely cut out gluten as part of the Vit D/Ibu regime and the transformation is truly remarkable - check out my gallery.

Best wishes and I hope you find something that works for you soon.

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