Author Topic: Extremely Frustrated w/ Flare Up (pictures attached)  (Read 1879 times)

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Offline DanC73

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #10 on: November 27, 2009, 11:46:06 AM »
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Hey Dan,
that middle picture of your knees looks just like my upper arms right now! Snap!! Plus I have some lovely spots coming up mid forehead.  I've just been to the dr and they have given me steroid creams again - sigh. I can't even be bothered to get the prescription yet, I just get really fed up of using the stuff and then promptly rebound flaring when it has stopped, just like you said Breenger (welcome to this lovely forum by the way!!).
Hang in there Dan and hope it gets better. Does alcohol help at all?? (if only...)
Ana

I feel the samew way Ana about medications ... I wish Alcohol worked lol

Offline DanC73

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #11 on: November 27, 2009, 11:52:39 AM »
Best of luck Chris!  I hope you get some relief soon!

Offline Breenger

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #12 on: November 27, 2009, 09:00:03 PM »




cheers Dan mate.
im going through a major flare up just now >:(
the itching is bugging me no end :-\
but one thing for sure is im bigger and stronger than my P will ever be
it will never beat me ;D
WTF BTW!!

Offline wendykg

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #13 on: November 28, 2009, 11:22:03 AM »
Geez, I so hate the evil p and how it affects us all  :'(
Breenger, my heartfelt sympathies go out to you in your latest flare-up...and my admiration too for having the bravado to post your photos. My p is very similar in looks and location, but on a smaller scale.
I have just finished week 2 of a 10 week course of PUVA. I am definately noticing an improvement in my skin already, but am also burning quite badly. The dilemma is, to carry on with the PUVA and clear up the p....and then end up with skin cancer....or give the treatment away and just accept and embrace the p!
Any advice and suggestions gratefully accepted :-\ :-\ :'(
Life's too short to grate your own cheese

Offline Breenger

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #14 on: November 28, 2009, 10:46:05 PM »
i think it is a lot easier to accept and embrace you P Wendykg


i used to sink to some dreadfull lows and my P got worse.
i think this flare up was caused by me getting a new position within the company i work for, a promotion hahaha theres a laugh  ;D

WTF BTW!!

Offline waco

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Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #15 on: December 03, 2009, 12:30:08 AM »
Hi all

In the midst of a mega flare at present. It seems everytime I look at my body its got worse ! Have a great Dr and am awaiting PUVA. Looking for some top tips just to get through each day. Any offers ?

Have stopped the alcohol and diary, laugh...................i have'nt had so much fun since the hogs ate my brother !

Offline Ana

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Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #16 on: December 04, 2009, 06:14:56 PM »
Hi,
Wow, Breenger you are so brave to post your photos too. I think I've had psoriasis too long, cos I was thinking what a nice pattern your spots have on your back! (I think the p has gone to my head)
Wendy - that doesn't sound good. I've only had UVB not PUVA but I remember when it started to burn they cut the times back again until my skin became stronger and then did not burn when I had treatment. Does PUVA work differently? ie is burning a good sign? I'm trying to sort out how I feel about using steroid creams at the moment so I'm facing a similar (although not quite as many side effects with steroids but still not good) problem. I've decided I can't be bothered with the steroids at the moment so am just trying to live with my psoriasis, on my face and all. don't feel bad for whatever decision you make tho, no one knows what the future holds and you need to decide what is best for you today to live with your psoriasis.
take care,
Ana

Offline wendykg

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #17 on: December 13, 2009, 04:43:23 AM »
Hi Ana...no, you're not supposed to burn with PUVA either, and I did have to repeat a dose a couple of times until my skin got a bit tougher. Have just finished week 4 and am coping much better, tho the clinic is closing for 3 weeks over Xmas which will put things back a bit.
I'm also going to ask the derm if I can have a maintenance treatment maybe once a fortnight to hopefully stop it coming back. Otherwise it just doesn't seem worth the hassle if you only get a brief respite. :(
Life's too short to grate your own cheese

Offline John H

Re: Extremely Frustrated w/ Flare Up (pictures attached)
« Reply #18 on: December 13, 2009, 10:58:03 AM »
Its is just typical of our disease. I had great results during all 3 Light therapy treatment periods, but like you the return of the P was relentless. My advice is step up a gear and don't waste time on the lesser treatments. Cyclosprine worked like a miricale for me and i'm still clear months after a 9 week regime.

Speak with your Derm and let him know how you feel and just how frustrating ineffective treatments can be.

Don't fret just get it done and have some fun.

John H