want to say thanks

[natapal83]

Hi There,

Just want to say thank you for the responce ive had and welcomes, seems like a great friendly place to chat.

Having a bad day of it today, my hands and legs are so painful, feels like my skin is being ripped off  :'(

I have only E45 with me, (my cream from GP's has run out now, but am due back tomorrow, and will ask for a referral to derm), but the thought of putting it on terrifies me as it doesnt do much but hurt even more! Feeling a bit down in the dumps 

I wanted to ask another question, does anyone find that their P starts to clear in some areas, then comes back again worse than ever? And also does it seem to spread really quickly? The reason being (as im new to this and know very little) ive had patches that have cleared only to come back worse than ever, though the rest of it has spread EVERYWHERE and no signs of shifting at all! I started to get excited when it went, thinking it was starting to clear up, but within 5 days it was back. Its even spreading to the pa;lms of my hands now.

sorry if it seems like im having a winge, just one of those days im having, and hubby is no good at all, just tells me to deal with it and stop moaning! Great support eh??!!

[OOHSUITUSIR!]

I haven't experienced P the way you are. Mine tends to spread and get worse and then will sometimes go into remission the same way...slowly.

You are at the beginning of a long journey of trial and error which never stops.

I use very little medication now. Just moisturising creams which I chop and change and a LITTLE steroid for my scalp and chin.

If someone with P was to ask me what to do my advice would be to try the vitD/Ibuprofen regime. It has had a great effect on my P  and I am running a poll to get others views in the alternatives section.

My next procedure after that would be light treatment via the hospital...there are different types.

Idon't really like steroids, don't like the smell of coal tar, and the poss side effects put me off stuff like MTX and cyclosporin etc.

BUT, a phrase you will see time and time again here is that we are all different and what works well for one person has no effect on another. The only way to find out is to stick your best foot forward and start the journey!

Don't be too hard on hubby, P affects spouses as well, and they can have difficulty with coming to terms with seeing the change in their partner!!

Good luck

[biffybelly]

Hi there. Don't feel bad about having a moan on here that's what we are here for!!! We all do it to from time to time but there's always something on here that will  bring a smile to your face.   As for your hubby perhaps he could be a bit more sympathetic, but as my Hub says it's hard when he doesn't know what it feels like and if you are anything like me you can be hyper sensitive at times(imagine PMT x200) I have different issues to you in that I have PPP so my body is not covered but I have had to totally change my life I can't walk far most days and cooking is impossible sometimes can't peel veg etc.

Have you tried Epaderm? It is a really  thick (like mashed potatoes) It does not sting me unlike others I have tried.  You must get your GP to refer you to a DERMY you can't carry on like this AND don't take NO for an answer the sooner you are under the treatment of someone who deals with things like P on a daily basis they will go through a whole ream of treatments.  I am on Methotrexate and have been for nearly 2 years with no side effects my dose is 25mgs once a week. Everyone is different and some can't cope on it but what I'm trying to say is there will probably be trial and error finding something that works for you, BUT YOU WILL GET THERE IN THE END!!!!

Take care and chin up


Helen