Author Topic: Newbie - My Story advice welcomed :)  (Read 704 times)

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Offline Emilyvic

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Newbie - My Story advice welcomed :)
« on: January 08, 2012, 04:21:19 AM »
Im 21 and In the last 6 weeks my life has flipped totally upside down and I wonder if there is some miracle cure out there? I spent 6 months abroad this summer working in a bar and loved it! The whole lifestyle of bikinis sunbathing, boat parties beach parties etc, the season was coming to an end but I decided I wanted to carry on working aborad and applied for a cruise ship job to which I was offered but was informed i needed to pass a medical first. (seemed no problem at the time) A few months earlier I got a tattoo and began to notice my skin wasn't healing proporly and insect bites were just scabbinh over and not healing, i returned home end of season and after a week of being back in the uk boom it hit me! Got a terrible case of guttate p, at first i read up on it and it seemed as if it may go away soon and after going to the docs decided to go to tenerife and work as my mates were going and thought thr sun may clear it, i tried to get a waitress job but they refused because of my skin, I got a job at night but think the drinking may have made it worse not sure. I spent a whole month there constantly coverig up my skin while my mates strol around in shorts and bikinis was horrible, I had to come home 4 days ago because it has got so bad and it covers all of my body besides my face and neck, it is really itchy and sore and bleeds when I scratch in my sleep aswell, I havnt been out of the house since I have been home I hate how it looks I had the most perfect skin and I am a 21 year old girl so I don't know how to cope with it wish it would just go away how can I make it go fast plz help xxx

Offline Grumpy

Re: Newbie - My Story advice welcomed :)
« Reply #1 on: January 08, 2012, 12:17:09 PM »
Hi Emilyvic and welcome to the forum! Thanks for sharing your story with us. You'll find lots of friendly and understanding folk here who know exactly what you're going through.  :)

I really feel for you cos that's about the same age when I developed psoriasis, also while I was living abroad, and I started to lose all self-confidence, didn't want to go out, always covering up (even in the middle of summer!) and started displaying symptoms of social anxiety.

To answer your question, I'm afraid the sad truth, and what we have all had to discover, is that there is no cure and it is a lifelong condition that we have to live with - until the day a cure is found. However, there are various treatments for psoriasis that can help to control it, and some people have even had their psoriasis completely cleared. To be completely honest with you, you will have to be patient and you will have to be strong, and try and find a treatment that works for you - I cannot tell you what you can do to make it go fast. There are no 'miracle cures'.

Firstly, if you haven't already done so, you should be seeing a hospital consultant dermatologist. If it's all over your body, as you say, then your GP should have no issues in making a referral. If the GP doesn't offer to do this, you must ask for one. The various treatment creams/lotions will normally not be suitable if you have severe psoriasis and extensive coverage all over your body because there is a limit to how much you can use because of the potential side effects, particularly for the steroid-based creams.

In your condition, the treatments that will be offered to you to try will probably be UVB/UVA light treatment, various oral systemics (tablets/capsules) such as acitretin, cyclospirin, methotretxate, and if none of those work, the newer biologics, which are injections. Some might not work for you and some might cause undesirable side effects, so it's a matter of finding one that is suitable for you. This can be extremely annoying and frustrating, especially if you have to try several different treatments over months or years, but hopefully you'll find something soon that works for you.

Right now, what you can do to relieve some of the pain and discomfort is to make sure that you moisturise regularly. This will make things a bit more bearable and prevent cracking and bleeding and relieve some of the itching to an extent. Also, replacing your soap or shower creams with an emollient or soap substitute. This is the advice from the Psoriasis Association:

Do I need to moisturise my skin?
Yes yes yes! Moisturisers make the skin feel much more comfortable by decreasing the dryness, scaling, soreness and itching. A moisturising lotion can be cooling to itchy and sore skin, and is absorbed very quickly so is ideal for use in the day time. A moisturising cream or ointment is generally a better moisturiser, but can take longer to absorb into the skin. Rubbing a cream into your skin is not the only way to replace lost moisture, try using an emollient or soap substitute to wash, shower and shave with.

I use Dermol 500 lotion to wash and shower with, and use Dermol Cream to moisturise with. You can get these on repeat prescription from your GP, which will be cheaper than buying from the pharmacy (normally about 10 quid a bottle) and even cheaper if your GP is happy to put two on a prescription. The benefit, in my opinion, of the Dermol products is that they are also anti-microbial, which I think is a good idea if your skin is cracking and bleeding, and therefore at risk of infection.

Other than that, I would suggest cutting back on or cutting out alcohol, and trying to eat more healthily in general (more fruits and veg).

Also, don't make the mistake I did and try to cope with this on your own. I did for over 10 years - until very recently - and that was a mistake. It's good that you've found this forum and that you're asking for help, and people here will certainly try to help, but also do confide in your family and friends. You might think that they won't understand but you might be surprised at how understanding and supportive people can be.

For more information on the condition and treatments, have a look at the Psoriasis Association website. Here's their FAQs page:

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Well, hope this helps. If you have any more questions, feel free to ask.  :)
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Offline arizona

Re: Newbie - My Story advice welcomed :)
« Reply #2 on: January 08, 2012, 12:32:10 PM »
Hiya, not much i can add to the above, its the pits when it first turns up but it does get easier with the treatments available. Do not let the doc send you away with a tube of ointment, they usually try and its usually dovobet which is in no way suitable for this. Use the search box (top right) to search for the various threads etc on the treatments grumpy has mentioned too, it will gain you some insight. I am pretty much covered at the mo, in between treatments and yep its hellish itchy but get doc to prescribe a good antihistimine as well, piriton etc are fine also but he may be able to give you stronger.
Very important to moisturise and dont give up, it wont always be like this. I've had some good periods of remission on various treatments and am currently waiting to start another which will likely give me normal skin for a good while i hope and you will also but first things first, insist on referral urgently to the hospital dermatologist. I was fobbed off by my doc for far too long before i did so being brave at the docs gets you nowhere, believe me crying gets them reaching for their keyboard to get wheels in motion
« Last Edit: January 08, 2012, 12:33:42 PM by arizona »

Offline rinbag

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Re: Newbie - My Story advice welcomed :)
« Reply #3 on: January 08, 2012, 04:25:00 PM »
Hi and welcome. I know how you're feeling. I'm 25 and have had psoriasis since I was 11. Throughout my teens it was always small enough to manage, but now in my 20's it's all over my body like yours, except for my face. I've never even been on a holiday because of it and it sucks. I guess I've had years to get used to mine though and yours has just hit you. Please don't get too down. The more you stress yourself out, the worse it will get.

What I would suggest if you haven't already tried it is a course of UVB treatment. Even going on a sunbed can help sometimes. I also use Dovobet which is quite good and helps when having a major flare up. I know it probably feels like it's the end of the world, but just because you have psoriasis - it doesn't mean you will have it constantly. Mine comes and goes and I even went for about a year with relatively small amounts.

Don't let it stop you living your life. But as for drinking, I tend to find it makes mine worse so maybe cut that down a little bit and see if it improves at all.

x

Offline lilactime

Re: Newbie - My Story advice welcomed :)
« Reply #4 on: January 08, 2012, 08:17:41 PM »
not too much i can add . but do feel for you being so young !! i got it at about your age and now had it 25 years . i would imagine you will be offered uvb to start with , probly will clear you for a while but it will come back , then its uvb again or meds , dont be scared of the meds the benefits far outstrip the side effects . any advice please feel free to ask

Offline Emilyvic

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Newbie - My Story advice welcomed :)
« Reply #5 on: January 15, 2012, 12:37:37 AM »
Thanks so much guys had a much better week this werk had my specialist derm apt brought forward as it's so bad it's on the 23rd of jan now! Result, keeping it well mosturied so it's def looking better than last week but hopefully I will get the light treatment and fingers crossed it will be gone by April so I can go and do my dream job abroad! This forum has helped me alot thanks everyone x

Offline terri24

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Re: Newbie - My Story advice welcomed :)
« Reply #6 on: January 18, 2012, 07:54:33 PM »
I feel for you! I know the feeling of despair only too well. My skin was my pride and joy (never has spots as a teenager!) and getting psoriasis at the age of 21 like you was awful. I'm 24 now and as yet have not seen a dermatologist. So far, they have fobbed me off with creams like dovobet. Be strong and get a referral!

I have only just managed to accept that this thing will never go! It's grim but everyone here is in the same boat which helps you feel less alone :-)

Offline sakuraba

Re: Newbie - My Story advice welcomed :)
« Reply #7 on: January 20, 2012, 10:55:37 PM »
coconut oil is a good natural moisturiser i find

Offline Maria2

Re: Newbie - My Story advice welcomed :)
« Reply #8 on: January 20, 2012, 11:28:53 PM »
Hi Emilyvic,
I can only enforce what Grumpy has said about Dermol cream and dermol lotion I ppp psoriasis,
 and have found this cream to work really well have been using it for about 5 or 6 months and my feet are the best
they have ever been, good luck with whatever you try
Maria

Offline MULLINDE

Re: Newbie - My Story advice welcomed :)
« Reply #9 on: January 21, 2012, 01:11:36 AM »
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I feel for you! I know the feeling of despair only too well. My skin was my pride and joy (never has spots as a teenager!) and getting psoriasis at the age of 21 like you was awful. I'm 24 now and as yet have not seen a dermatologist. So far, they have fobbed me off with creams like dovobet. Be strong and get a referral!

I have only just managed to accept that this thing will never go! It's grim but everyone here is in the same boat which helps you feel less alone :-)

Terri,

You really need to get to see a Derm. It might be a hassle, but please go for it. Some GPs are really not up to speed with P.

Regards,


Daryl
I used to have more flakes than Kellogg's