PSORIASIS won today

[Emms]

Well i have been trying to be strong i was kind of hoping i was being a baby about my p hurting!  
 went to the derm today made appointment back in august as my p had started to spread but these last three weeks its been pretty painful but i have not wanted it to stop me going to the gym and running and things so no matter how much its hurt i carried on went running yesterday and i put loads of cream on before i went got home from running went to have a bath and my clothes were stuck to me and covered in blood  :'( but i was like so what anyway went to derm today and yep im having a psoriasis flare and its pretty bad for me  and I'm not allowed to go to the gym has my joints are swollen and i have to have uvb again i have p every where but the worst place is the back of my thighs and bottom  
went to mums straight from derm and i cry ed on her shoulder she said she thought i was in pain caus i wouldn't sit down for too long i hate sitting down and then standing up and feeling my skin rip is not good  I'm a idiot i just wanted one thing to be OK in my life just one thing i was hoping i would get that cream and i would be OK
thanks for reading my rant
Emms
xx


they are going to try and get me in for uvb before Christmas i will know when i start on Friday for now i have betnovate cream never used that before  

[racheld]

hey Emms

Sorry to hear you are having a flare too!

Would they not consider betnovate RD instead of betnovate? It's a weaker solution and I have been on it but I was warned that once it is stopped the rebound would be bad but the hospital were not too concerned because they are planning to start me on inflaximab.

This is my routine and if you get chance to do any part of it you will find relief. I certainly have. I know you obviously can't take time off work but if you can spend a few weekends doing this is may help ease things for you.

Last week I couldn't move but things are so much better for me at the moment (short term thing)

Bathe 30 mins in oilatiumWash hair in polytar
Pat skin down and apply betnovate RD (now on calcipotriol for 5 days and betnovate rd for 2)
After an hour apply diprobase (any moisteriser will do)
then every 1 and half hours to 2 hours apply diprobase
At 6pm apply betnovate RD (as above with calcipotriol etc) and climb into PJ's
After that I apply xamiol (dovobet in a gel form for scalp, much better than dovonex scalp)
7pm moisterise and continue till bedtime

For the first 4 days you will flake like crazy (snowstorm) but it eases. I have also been taking antihistimines and paracetamol/ibruprofen for the pain.

I found being off work has given me the opportunity to fix things and slobbing out in tracksuit bottoms and sweatshirts has been so comfortable.

It's hard work but the results are pretty good and by the end of the week I think I will even be able to go swimming and get back to gym and aerobics.


Good luck.




ps do you have a pre payment cert?

[riaY]

((((((( )))))) Very gentle hugs for you. So sorry you're having a bad time I hope you get some relief soon

[hk]

So sorry to read your post - sounds so familiar. I used to think I was beimg a real wimp - but you're not, it really is a d...'d awful place to be. 

[hurt angel]

awww emmms big big maggie hugs xxxx

[Tangles (Donna)]

hugs from here hun - hopefully it calms and the treatment works xxxxxxxxxxxxxxxxx

[Scratchibum]

Sorry you're having such a bad time of late, but you'll always lose a few battles to win a war.  Have a go at Rachel's routine and hopefully you'll start to feel better soon enough.  Try keep your chin up hun xx

[BlackJacq]

but some days you fight back and it loses.................. the back of my thighs have been threatening an outbreak for a fortnight or so, so I eat vit d and go to the tan cab - it'l happen, eventually, but i do believe you can stave it off.  hugz jacq

[darrenc]

id just be careful with the betnovate cream use sparingly to avoid a rebound

im surprised they havent discussed ditranol with the uvb treatment you might get a longer remission time

[mustang]

Oh Emms - you poor thing.  You know this is a rollercoaster of a condition - try and keep strong and hopefully you will be back on the up soon.  Not sure if you feel like you can take time off work but if so, Rach's regime sounds brilliant.  I know that you will probably feel even worse if you give in to your skin by not going to work but sometimes you really do have to put your health first. 

Big hugs xxxxx