I first noticed plaques on my elbows when I was 18. (Now 37) I had ulcers as a kid, at age 7 and 17, so I just assumed it was how my body handled stress. But alcohol and smokes were introduced into my life then. I also had it on my scalp and sometimes in my eyebrows. I kind of just suffered with it, using steroid creams here and there. I fell while hiking in 2001 and got a crazy rash on my leg that didn't go away for weeks. The doc gave me Clo-betasol. I rubbed it on my elbows too and it was the first thing that ever cleared my p. But it is super strong and really thins the skins. I used it for a long time, just here and there to keep it at bay.
In the last few years, the p has spread to my ears, my triceps and my forearms. Tiny dots, making it hard to apply the steroid. Plus, it's damaging my skin, so it's out.
I was diagnosed with alpha-1 anti-trypsin deficiency in 2007. It's a genetic disorder that is caused by the liver not releasing the alpha-1 protein and can lead to both lung and liver issues. The treatment is blood transfusions which I have heard as a side effect get rid of p. I have even heard of people rubbing the blood directly on the skin and it being cleared. I'm not at the point of getting transfusions, so don't know first hand.
I just got married this summer and my skin looked its best, thankfully. But 6 months after the honeymoon spent in salt water (and very clear skin) I am now having the worst outbreak of my life. My arms and legs are almost 50% covered. As is my scalp. The only changes are getting off birth control and quitting caffeine. My doc gave me a lesser steroid, which I am trying to not use at all. I moisturize with all kinds of things and notice that Epsom salt baths help the most. I quit gluten 2 weeks ago and my legs are clearing slightly. I am on the gluten free diet for 3 months to see the effects. In the past, I have been a vegetarian, stopped alcohol and done a low carb diet. Varying results. After showers and working out, my skin is super red and angry. The morning after a bath is when it almost looks okay. Sending positive thoughts to all of you.