the trouble is theres nothing we can realy do to make it better
Beg to differ here.
I was born with P and had it for nearly 40 years.
I cleared my P in 2008 with diet. I am maintaining clearance with diet. I am not the only one, as loads of people here and on the USA forum who have seen massive improvements through diet changes.
Whilst everyone is different, things like dairy, gluten, red meat, soy, alcohol and refined sugar, seem to be the main problems for a lot of people. Always seeing these foods mentioned on P forums across the internet.
My main issues seem to be: dairy, wheat, meat and refined sugar. Lots of cooked foods will also cause a flare. I no longer eat processed foods. Processed foods are part of SAD (Standard American Diet) and will stop you from clearing.
I eat a lot of nutrient-rich raw foods, mainly vegan. But I am not a vegan, as sometimes I will still have things like eggs and fish.
Juicing and smoothies are nutrient-rich raw foods, and I believe they helped me clear and helping me to keep clear.
I have had a few P flares over the years - normally as a direct result from eating a food trigger.
Have a look on the website: diseaseproof.com
There is a lady interviewed on there who healed from P & PA by following Dr Joel Fuhrmans eating plan.
You could also take a look at The Hallelujah Diet - a lot of people on there have cleared P too.
Again, all very similar to how I cleared.
And prior to clearing with diet, I also had a lot of success with a hemp/shea body butter and salmon oil tablets.
So there is a lot out there we can do ourselves to make it better.