Author Topic: So apparently it's not diet ...  (Read 1418 times)

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Offline Charlotte_S

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So apparently it's not diet ...
« on: December 07, 2010, 01:05:19 PM »
I've been eating exactly whatever I please for about a year ... which includes all sorts of no no foods for P.  And guess what, my P is doing alright.  Not brilliant but much better than when I did the green shakes or when I cut out all sorts of bad foods.  Last summer my P took a turn for the worse and my torso was almost completely covered, it was encroaching on my face, turned up on my legs, arms, hands, feet and my finger and toenails.  I started to get bad joint pains ... it was a mess.  I had a 3 month course of UVB which cleared it up ... and then it came back a bit over the summer.

It's not anywhere near as bad as it was last year - in fact right now it seems to be clearing up somewhat.

This is just so frustrating, it's progression is totally random and right now I might as well say that a diet of lots of bread, cheese, meat and beer seems good for it.  I'm still on BJ's formula but I'm not convinced that's actually helping the P either.

Anyone else out there with completely random P who has tried all the natural remedies and not had any joy?


frost

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Re: So apparently it's not diet ...
« Reply #1 on: December 07, 2010, 01:09:16 PM »
my P does what it wants when it wants so i do the same
I eat and drink what and when i want.
im not convinced that diet has anything to do with P
over the years ive cut out things that i thought aggrivated my P and guess what???
no difference what so ever.
might be different for others but def not for me


Offline Spotted Girl

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Re: So apparently it's not diet ...
« Reply #2 on: December 07, 2010, 01:20:55 PM »
Eww, sobering thought!, i hope Im one of the lucky ones :(

Offline bjm

Re: So apparently it's not diet ...
« Reply #3 on: December 07, 2010, 01:40:43 PM »
hi char...i think a solution can be a complicated thing with many variables when trying to control this disease after the fact......and like a cell phone number..they have to be the right numbers and  in a specific order if that makes sense... .. that might sound like a silly answer but i think thats close...

i know its sounds like chasing the elusive unicorn..always so close but never quite there...but this thing is not going away..so

might want to try adding daily a homemade yogurt...as this is my best controlled winter in the last six since i have been chasing this  horned beast....too early for me to be certain yet but it looks very good,  ... we'll see what January brings...best wishes

bj
« Last Edit: December 07, 2010, 01:44:46 PM by bjm »

Offline DottieD

Re: So apparently it's not diet ...
« Reply #4 on: December 08, 2010, 12:37:30 AM »
If you want to know whether diet helps, instead of just guessing or assuming it's random, why don't you do a little experiment on yourself?   

There are a number of foods that seem more likely culprits in causing psoriasis to worsen.   Just for a week, try eating a diet high in these foods:

- starchy beans (inc. soy) and peanuts
- whole wheat and/or wheat germ
- tomatoes
- dairy products
- farm-raised salmon
- eggs
- chicken or beef liver; fried chicken with the skin on
- meat with fat in it (like regular hot dogs, ribs, sausages) 

If you don't get any worse after a week, then perhaps you are one of the lucky ones who really can eat anything you want.   That would be good to know, because then you wouldn't have to worry about it any more!       

DottieD

Offline TCNZ

Re: So apparently it's not diet ...
« Reply #5 on: December 08, 2010, 09:37:02 AM »
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If you don't get any worse after a week, then perhaps you are one of the lucky ones who really can eat anything you want.   That would be good to know, because then you wouldn't have to worry about it any more!       

DottieD

One must also bear in mind that if you are using topical/oral steriod or stuff like that, you probably won't notice any worsening with consuming these offending foods.

And if you are going to quit steriods at the same time, you probably will flare up even though you cut clear of these triggers.

Yes, I am a big believer in "DIET AFFECTS P" which is my personal experience.

Tom

Offline Charlotte_S

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Re: So apparently it's not diet ...
« Reply #6 on: December 08, 2010, 03:51:02 PM »
Hi all

I am really frustrated because I'd like to feel more in control of the P situation. 

As BJM says there are so many variables and combinations that might be affecting how bad or good the P is.  Diet was something I had high hopes could affect it but it appears it's not really making as much difference as I would like. I've reverted back to my traditional diet of food high in fat and all things yummy - and it isn't making the P any worse.

I haven't used any steriod creams for 3 or 4 years now.  The side effects were much worse than the P (once my hair started falling out I decided I had enough).  I now refuse all creams on the basis that they do not work for me in a way that actually makes me feel better.

Dottie - I'm not sure that eating a diet higher in any of the items you listed would make a huge difference - I eat all of them either daily or on a regular basis (except peanuts and chicken skin which I do not like at all, and liver only in pate which is a treat food tho' with it being Christmas I'll be indulging myself). I suspect that for me diet simply isn't the biggest factor.  Today has been a fairly typical food day for me and I've ticked most of the boxes on the list already.

I want diet to be a factor, because I can control it.  For me however diet appears to be receding as something that can affect my P.  For a very long time I was convinced it was helping me control my P but if the P recedes (as it is doing now) with just Barney's formula and a lot of exercise then why would I torture myself by trying various restrictive diets.

I'll check out the homemade yoghurt angle - I do already eat a lot of probiotic yoghurt and often take supplements (helps with IBS) but I can't see that it would do any harm to try it.

Offline Cy

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Re: So apparently it's not diet ...
« Reply #7 on: December 08, 2010, 07:48:33 PM »


  I support that Psoriasis is caused by diet ,

 The most important thing to do Is NOT to goof on a completely new diet , The diet that's causing the problems is YOUR diet . So start by analyzing your diet because that's where the problems is ,

  Vit D is very good for the body and should be taken but it will never clear the P

Offline LittlePinkPuss

Re: So apparently it's not diet ...
« Reply #8 on: December 09, 2010, 02:20:21 AM »


The only thing that is working for me is diet and it has been working since 2008.

If I eat and drink whatever I want, all the time,……………the P will soon return.

I can get away with it the once. But if I make a daily habit of it, the P patches will eventually return.

If I stick to a high alkaline diet with some restrictions and plenty of nutrients in the form of juices and smoothies, I remain 100% clear.

It took me almost 40 years to hit on the right combination. So there are a lot of variables to contend with before you find something that is perfect for you.
 
You mention that you take probiotics yoghurt for IBS. Whereas I find dairy to be one of the worse things (along with meat and wheat) that I can take for IBS. Dairy is also a trigger for my P. So again, lots of variables.

Your comment made me giggle. I don’t “torture” myself by trying various restrictive diets. Yes my diet restricts some foods but I still eat a fabulous and delicious range of food. Food that is healing to my body, rather than detrimental.

P is connected to inflammation in the body and you can affect the levels of inflammation (both positively and negatively) by the foods you eat.

Most people take the natural route because they are worried about drug side effects. My skin thinned terribly on steroid creams and so I gave them up to seek out more natural alternatives. From giving up the medication to finding something that worked naturally took nearly ten years. So unless you are very lucky and hit on something quickly, you need to be committed for the long haul.

My views are very controversial so I keep them to myself mostly, but I honestly reckon that P can be controlled with diet (controlled not cured) in a lot more cases than are currently being reported. Although everyone keeps saying we are different, we are extremely similar too – after all, we are all human beings with the same body make up.   

I don't suffer from insanity....I enjoy every minute of it!

Offline Zack

Re: So apparently it's not diet ...
« Reply #9 on: December 09, 2010, 03:34:35 AM »
I want to believe its in the diet I mean its logic for example if you have diabetes why would you stuff urself with sugar and drink pop all day
there are guidlines to your diesease diet might not cure P or maybe it could who knows but you have to be responsible for your health dicipline goes a long way
we have to try to beat this thing i truly belive that someone somewhere will dial in the right diet to kill this beast once and for all ;)