vitamin d/ibuprofen treatment

[aston118]

Hi bj! (and thanks for the encouragement chappers! it's very welcome)

Sorry to be a pain but I am keen to to get it as right as possible from the word go, and for the sake of consistent results!

D3 no probs. Starting with 1200iu.  Ibu no probs. of course!

I have struggled to find the right dose of B12 so intend to start with 1000miug with added 400miug of folic acid.

Multivits are confusing - there's such a range - have gone with one high in A and C and a little of just about everything else!

Bought prepared yogs confusing too! Have gone with an active probiotic natural yog (v. pricey!) but with sidelong glances at yakult, actimel etc.etc. Activa has come in for some critisism in the UK recently! How much a day do you reckon?

Last point, (at the moment!) finding the relationship between miug and iu values and actual amounts (mg or mcg) difficult to follow. Some manufacturers give one or the other, but often not both, which can make sourcing difficult.

Going with the fish oil too on the advice of the herbalist. He is very interested. Tooth out next week! Here we go!!

Cheers, Colin 

PS. Have tried most hand creams, currently using lashings of Diprobase. Can anyone recommend something special?

[bjm]

hi colin....i should have been more explicit...my fault....

a small multivitamin ...the cheapest you can find for just the basics.....and vitamin A is the often too much in these vits....and high C only if you have gout or are in a good remission

we just want a little of each to cover the bases or any shortages... so as not to waste money..i would take that multi every other day or cut it in half...high A makes for weak bones...with a higher incidence of hip fracture amongst the elderly with high A supplements  how much A and C are there in each capsule?

the b12 is a little too much but you can take it every other or third day...we only need about 3 mcg a day..but for those who have difficulty with absorption...about 20% if i recall over 55..then need a larger dose and then only absorb a few percent..hence the 500mcg...its generally considered non toxic so no upper limit..its goes through you......as a folic acid supplement can hide a b12 deficiency (not uncommon amongst the elderly and which can cause permanent nerve damage )..one should always take b12 when taking folate..

get the reasonably cheapest yogurt you can find.,,,the activia is a good start or yoplait...which i now use as a starter

you are basically paying for milk...so the rest are a ripoff...i have some links..i will look for... activia works for a few bucks..homemade is better and we may need that volume of microbes to get the effect we want.

You are not allowed to view links. Register or Login and
You are not allowed to view links. Register or Login

again, to get enough of the microbes..it might need to be homemade as the link suggests

one of the goals is to make this inexpensive...so that is a consideration.

i would suggest to forget the fish oil for now ..if something does work..with too many variables you won't know what the heck it is...if the herbalist who probably doesn't have P and a good bet that if he knew what he was doing ,.,you wouldn't be here......later if results are wanting..then add the fish oil or some other ideas ....thats my experience anyway as i have been lost many times on what was effective by trying too many things at once..the d, ibu..vits..some sun see  take care of the tooth...see how it goes...

thats about it..cut the multis in half if they are the big. do it all type....take half a day  or a small cheap one a day...A should be under 3500iu..we want to give this a chance to work...so simple is better i think...its like stopping an inflammatory train...and will take some time...

i forgot sun...a big help as well as any light treatment..uvb, uva, or nbuvb...or the dead sea...
hope this helps col.....i would sit out, exposed legs arms hands etc..no sunscreen til prepink...or think about getting a light down the road

now i am off to split firewood!!

good luck colin
bj

[aston118]

Thanks for that bj. I'll take your advice of course !

Mind the fingers!

Colin.

[bjm]

hi colin,..i never did get if your psoriasis was plaque or pustular...on hands..

do you have it anywhere else?,,,normally i would be covered but now good control..zero inflammation... oddly nothing ever on  the hands or face...i did get gout in a couple of toes.. and a little plaque soon followed..but i found mentholatum at night and a cotton sock cleared them up..not forever..but for days.(might help with the hands depending on type of P...now if i eat a high purine diet..tuna, sardines, venison, oats bean..i will get gout in the toes....
last year it appeared also in the spine with severe back pain for a month...i assumed it was just a bad back or the new chair or some such thing...but after C for a few days and it ties in with the two swollen toes...the back was clear within days...this repeated a few months later...and again the C dropping uric acid levels cleared it again.....had never heard of spinal gout..but i have it...trouble is i  like high purine foods... unfortunately..with  a high supplement of vitamin C  for gout, it may in some ways not be good for P at it alters the th1/th2 balance  (types of t helper cells) swinging it to the th1 side which is where psoriasis is...so as everything its a balance
 
just rambling to put off the firewood...

take care...bj  agreed on the digits!!

[elliejay]

Hi Colin
I think you have got confused with international units and microgams and miligrams
i.u. = international unit
ug or mcg = microgram
1000mcg = 1mg

International units vary from substance to substance
I agree it's confusing. Most vits are expressed as one or the other but D3 is quite often either
400iu D3 = 10mcg

If you have Activia yoghurt watch the sugar content.
Quite easy to make your own with a yoghurt maker (just a simple thermos flask type is all you need - mine is EasiYo)

I agree with bj about not adding too many variables but if you are interested in omega 3 there is a good thread explaining all about it.

Good luck with your quest

Ellie   

[elliejay]

Colin
I forgot to tell you where to look for omega 3
Good start is the thread "inflammation and plasma viscosity"
beat-the-p, eve and tcnz (hope I haven't missed anyone) have some good links.
Ellie

[aston118]

Hi bj, Ellie - thanks for the info. and support!

P is plaque tho' oddly no-one (inc. medics,) has ever told me this fact - just dished out the treatment! Had to find out what its all about myself! Very recently tho', as it has only become a serious problem in the last 6 months or so. Just put up with it before, knowing there was no cure and relying on the various stuff prescribed. Am trying to get them to agree to puva now ( they never would previously) but gosh - it's difficult!

P started when i was about 35 years ago in small area of one knee. Progression  has been steady up to say 18 months ago when it started to mushroom and now cannot shift it from two or three principal areas about 4/5'' diameter on each leg along with many smaller (1cm) patches all over legs, below and including large areas of the knees. Ankles and insteps have significant patches. Daren't wear shorts for a long time! Large patches on elbows appeared two or three years ago. Daren't wear short sleeves either! Dovobet was effective initially but now just removes dead skin like salysilic, without any real improvement.

Still spreading.

Then suddenly about 5 months ago a small patch appeared on left hand, hung about for a two or three weeks, then ballooned, and within only another week or so covered 60/75% of both palms, patchy on inside of all fingers, all knuckle joints on back of hands and tops of fingers to nails. Palms now peeling and splitting! Finger ends inflamed away from nails. Still spreading,

None at all on thighs, trunk or face thank God (yet), as far as I know (a bit scared to look!), just a bit at top of bum!


Frightened of monopolising the forum but it helps to talk and share ...........

Thanks again, Colin

[AnitaG]

Hi bj, Ellie - thanks for the info. and support!

P is plaque tho' oddly no-one (inc. medics,) has ever told me this fact - just dished out the treatment! Had to find out what its all about myself! Very recently tho', as it has only become a serious problem in the last 6 months or so. Just put up with it before, knowing there was no cure and relying on the various stuff prescribed. Am trying to get them to agree to puva now ( they never would previously) but gosh - it's difficult!

P started when i was about 35 years ago in small area of one knee. Progression  has been steady up to say 18 months ago when it started to mushroom and now cannot shift it from two or three principal areas about 4/5'' diameter on each leg along with many smaller (1cm) patches all over legs, below and including large areas of the knees. Ankles and insteps have significant patches. Daren't wear shorts for a long time! Large patches on elbows appeared two or three years ago. Daren't wear short sleeves either! Dovobet was effective initially but now just removes dead skin like salysilic, without any real improvement.

Still spreading.

Then suddenly about 5 months ago a small patch appeared on left hand, hung about for a two or three weeks, then ballooned, and within only another week or so covered 60/75% of both palms, patchy on inside of all fingers, all knuckle joints on back of hands and tops of fingers to nails. Palms now peeling and splitting! Finger ends inflamed away from nails. Still spreading,

None at all on thighs, trunk or face thank God (yet), as far as I know (a bit scared to look!), just a bit at top of bum!


Frightened of monopolising the forum but it helps to talk and share ...........

Thanks again, Colin

Colin, welcome to the Vit D/ibu regime and I wish you the very best of luck with it.. I would recommend taking pics at least once a week, try and take them from the same angle and in the same light, its a much easier way to chart your progress. Even if you dont feel you can share them, the pics are great for your own use.  And I know its hard but try not to be ashamed of your P and feel you need to hide it away, at the end of the day its only skin and nothing to be ashamed of..

To answer your previous question about moisturiser, I use doublebase (don't know if thats the same as diprobase or not) with a drop of geranium essential oil to make it smell better.

I was reading about magnesium the other week & noted that Vitamin D has co-factors that the body needs in order to utilize vitamin D properly, magnesium being the most important. I then thought I would see how much magnesium is in my diet so I looked at foods that contain magnesium.

You are not allowed to view links. Register or Login

Cheers, btp

Wow.. had a good read through that link btp, and i'm eating some amount of magnesium.. according to that table on my worst days i'm getting over 400 mg and on my best days over 650mg.. the RDA for woman my age is 320mg.. Don't know how relevant that is to my P or to my improvement in my P cos my diet hasnt changed much in the last 10 years overall (i have lapses occasionally - i'm only human! ) but something to think about, maybe I should cut back..

Good luck to you aston. Stick around on this forum, BJ is a well read guy. He probably reads too many PubMed pages  , but it all seems to stick in his head. Many people have benefitted from this advice. The problem is that because they dont have psoriasis, they dont tend to come back and provide feedback. The most recent one is testament to this. I too have improved since learning about and implementing BJ's approach. Cheers!

If that is aimed at me then I'd like you to know that it wasnt because I had cleared that I hadnt been back before now but just because of circumstances.. I moved 500 miles, my ex kidnapped my kids, I had court appearences to get them back, could only get the youngest back cos the other 2 were too old to be commanded by the courts and cos my ex told them he was suicidal they opted to stay with him 500 miles away from me, I lost 2 jobs one after the other because of all this going on, had a total breakdown, couldnt function as I was missing my kids, was living in a house where the bathroom was condemmed cos the floor was sagging due to wet rot, lived on benefits for 18 months so only had intermittant internet access as I couldnt afford it.. I moved into a decent flat 2 weeks ago and am starting to put my life back together which is when i felt able to come back here and report my progress... nothing to do with an attitude of 'oh i'm clear I dont need PHO any more' which is what you seem to be suggesting and I feel thats an unfair comment.  If its not aimed at me then its still an unfair comment because you just don't always know the reasons why people may vanish for a period of time.

[bjm]

hi anita... i don't think chappers meant it that way... to see all the work you have done just keeping a record and taking pics...when all we often want for good reason is to forget we have this nagging disease and live normally

i can only guess  what you have gone through after you  told me you first wore makeup only a few years ago...


I think one assumption is that people clear, and go live their lives...and that may be the case for some few...i think for many, its about learning to control this with mixed results......some get few good results and leave to try a bio, or some other treatment option...they don't comment their poor results so as not to rain on any parade  or limit hope

Some find some modest control...and thats good enough for them and they  leave to live their lives...others do  well but as this disease is often one of remission and then inflammation  often waxing and waning in one area or another....they come to  share  their experiences or ideas...looking for new ideas etc...so its a mix...all in the same boat with a common goal...control or to get to shore..

and colin...you can never be too wordy here.... ...look at my big mouth....

Here is something on too much vitamin A and hip fracture...You are not allowed to view links. Register or Login

bj

[artworks4]

Hi bj,

I'm glad that they made the distinction between beta carotene and retinol in your article link. One of the reasons I chose my multi is because it contained beta carotene instead of retinol as all of my previous multis had retinol.

I'm one of those people who post and then don't post for awhile and sometimes for a long while and it is as you say, I am trying to zero in on what is working best for me and that sometimes means that my p may worsen as I add and subtract certain ingredients or foods and I don't want to put anyone off from trying BF just because I post that I have worsened. I also don't want to post just for the sake of posting........I will readilly post though if I feel that I have something of value to contribute. Case in point when I recently posted to confirm that reducing my Altoid consumption allowed my p to worsen noticeably, but resumption of my high consumption level gave fairly rapid improvement. To me this is worth sharing with other posters who might be on the fence about wether to try Altoids or not. It also says to me that Altoids are one of the more effective parts of your formula......at least for me, and if for me, then possibly for others also. A small point, but possibly an important point for someone who is taking Altoids with good results , and then begins to not pay as close attention to their consumption rate and inadvertently lowers their consumption rate to a level where their p might start to worsen and come to the conclusion that the formula is no longer working for them any more, when all that is required is to make sure and take a proper amount in order to maintain the benefits of the formula. A small point, but an important one for some.

Colin, I don't know if you consume alcohol or not, but for me that is a clear and rapid trigger and my p will worsen exponentially if I consume large amounts without also keeping my Altoid consumption at a fairly high level.

Anita, sounds like you had a rough series of years there, glad to see that things are looking up for you on many fronts now! Your posts and pictures are very inspirational for others and I'm glad you were finally able to give your update! 
You just never know who might get to read those posts.

Art