vitamin d/ibuprofen treatment

[elliejay]

Hi Eve
I was going to say that my PA doesn't come and go that quickly but my husband has had a pain in his foot for a while and I went to show him where the pain was for my plantar fasciitis and couldn't find it !
Seeing new rheumy tomorrow, not sure how he is going to react to my not taking MTX. Don't know if I will mention non-drug formula as the last rheumy said that diet didn't alter PA at all.
Trying to get some specialist physio for my connective tissue disorder.
Ellie 

[Eveloftus]

Hi Elliejay, I would stand my ground with the rheumy about not taking methotrexate, I have gone the no med pathway since early adulthood, and have not seen any joint deterioration except for mild deformity of a couple fingers and toes. I think it is worthwhile for you to try the diet and supplement path for awhile, even if you get achy sometimes (you could then take ibu for it). A life time of methotrexate or biologicals with all their side effects is not to be envied.

[elliejay]

Thanks Eve
It's good to have some support.
Unfortunately my knees are already quite deformed, but determined not to go back on meds.
Can't take NSAIDs because of HMS and opiates make me go strange so limited to paracetamol.
Ellie 

[Eveloftus]

hi ellieJ, sorry for my ignorance, but what's HMS? Her Majesty's Ship? Hellenic Mathematical society?Harvard Medical School? Hypermobility syndrome

[bjm]

You are not allowed to view links. Register or Login

[dashiv]

Wow thats a new diagnosis. Looks like this You are not allowed to view links. Register or Login to me. Anyway, sorry for not being here for quite some time. I am doing good so far. Only on the NBUVB and D3 here and there may be twice a week about 5000Units. I am also being lazy on the NBUVB and have lately only gotten once a week, but will try to do it 3 times a week now. Still stuck at about 98% clear. The thought of winter and snow in next few months giving me chills already
Shiv

[Eveloftus]

Hi Dashiv! Good to hear from you! and good that your P is still in remission even with only once a week of nbuvb. I still do 3 times a week, up to 9 min on each side now, some spots are very resistant but they don't look too bad and are not red. The first time I did the nbuvb I had very good clearance but this time a bit less although it's still acceptable.

[elliejay]

Hi Eve....yes it's hypermobility syndrome !
bj has posted a link to HMSA leaflet on pain in HMS
I have joints which easily sprain and my ligaments can rupture with the slightest injury
This has led to osteoarthritis, and you can see why the physio causes me so many problems.
Unfortunately the syndrome is quite complex and throws up all sorts of other problems such as severe indigestion (hence can't take NSAIDS) palpitations, missed heart beats (have to take atenolol).
So it's often quite difficult to know what my symptoms are caused by.
Ellie 

[elliejay]

Hi dashiv
yes it is Ehlers Danlos. Previously HMS was thought to be a separate condition but now they know it's all the same thing. So now I have EDS or HEDS or sometimes called benign hypermobile joint disease.
Only benign in that it doesn't kill you !
Ellie 

[elliejay]

Not good news on the rheumy front.
Saw new rheumy today, had lots of xrays and being sent for MRI scans, but basically said my knees are "knackered" and I really ought to go back on MTX.
Also he his going to write to special situations ?? board to ask for biologics even though I only have two swollen joints.
What do I do now ?
I shall continue with my supplements.
Ellie