vitamin d/ibuprofen treatment

[beat-the-p]

Hey Ellie,

I think if its not helping then a break is very sensible...I would try some of the alts & see where you get but just like traditional dmards it may take months to see any real bennefit.

Its mental that your crp is going up whilst on the mtx...maybe the fact that it is toxic is causing your body to react with more inflammation

[Chappers_27]

Beat - the - p,

Before I got the reading of 38ng/ml I was only taking 1,000iu a day for about 2-3 weeks.

Cannell on the Vit D council does say something along the lines of "take 5,000 IUs of Vitamin D daily for about 2-4 months and then test again".

As I say I laid in the sun at the dead sea for two weeks, so I think my circulating vit d levels are/were fairly high. I will test again at some point.

[blaiseuk]

Hello all,

I'm new to this forum, when it comes to posting anything, but I've always read the threads. I just wanted to share my success with Barney's formula - which has made me a very happy little man!

A quick brief; I've had p for around 7-8 years now, on my elbows, lower legs, torso and scalp. I had UVB treatment last feb but had a remission over the winter. My derm wouldn't give me a course this year so I looked into alternatives - and found Barney's!

As well as Barney's I have  cut out caffiene (tea&coffee), milk and cheese completely. I have also cut down on (although not completely) eggs, wheat and gluten. I still smoke :S and drink a lot, although trying to cut this down as well. I am definately eating a lot more fish, especially salmon and tuna, with a salad. I also read, maybe on here, about the benefits of olive oil and I am drenching it over my salads with a dressing as well.

Generally, I feel a lot better, in body & mind. On a different note, I suffer from IBS but my trips to the toilet have certainly improved since doing Barney's/diet change.

I used dovobet on the tough bits of p, like my elbows and legs, but only every couple of days. I moisterise in the morning and before bed, and any time inbetween if I can.





(in the first set of images I'd just got out of the bath, the patches were normally white, scaly and a bit harder)

Of course, it is the summer, so I've been getting sun as well, which I'm sure helps a lot, but either way, my skin is certainly better than last summer. I think I might get a handheld uvb lamp in the winter, just incase I have a massive flare up - but until then! I also wore short sleeve t shirt to work the other day, something I haven't done in a long long time!

So, yes, just thought I'd share that and say a massive thank you to bjm!!

Blaise.

[Chappers_27]

Blaise.

Good for you. That's fantastic. Your skin looks great!! 

How much of the Vit D are you taking?

Chappers

[bjm]

hi blaiseuk....glad its helping and appreciate the pics.. I learn from everyones posts here...when it works and when it doesn't... and i am getting a fairly general idea why the variability in outcome which i will try to show in a separate post.

I assume chapps is looking to the D as the effective component but i think its just one part of the picture and too high a level without light or sun to keep the increased ll37 peptide in check can make matters worse...Dr Cannell and most of the recent research suggests for most,  levels over 50ng/mL are a good target for health, anti cancer, reducing heart disease, diabetes etc and to get those levels often entails doses over 4000iu.... but we with this darn auto immune glitch are not normal..and those levels from a supplement alone may at some point exacerbate our P..at least its something i have found and seen in a few others. i think with a little sun, 1000-2000iu is sufficient if we also look at and eliminate other sources of inflammation.

again...good to see your results and am happy for you!

bj

[NYGuy11]

Hey guys...hope everyone's summer has been enjoyable.  I just wanted to give an update.

Body: My body has been doing really well.  I have not gotten new spots and I have seen major improvement.  On my torso, 2 spots are virtually gone.  There's a tiny hint of it left, but it's barely visible.  There's still 4 other spots, but they are all light pink and fading.  The spots on my left leg are also flatter and lighter.  It's still there, but it's not easily visible.  Definitely on its way out.  Same thing with other spots I have on my body.  All light pink and fading.  These are the same spots that have remained since December, so I'm so happy that they are really finally going away.  It may take the rest of the summer, but for now, they're not as visible or dark pink as they were a month or two ago.

Scalp: Here's where the problem is.  My scalp has gotten worse.  I have more itchiness and flaking.  This despite I'm taking three .2 mL Peppermint Oil pills per day.  BJ, what should I do?  Should I reduce or stop my Peppermint Oil since it's not working?  This is very frustrating b/c scalp was doing really well with Peppermint at one point.

[Eveloftus]

Hi NYguy, i'm glad your P is so much better! good news. I'm also practically clear on the body thanks to nbuvb. As for the scalp I also had trouble recently in spite of taking the peppermint (which had cleared me the first time), but now  it's clearing up real well again, and this could be due to the home made yoghurt I have been having everyday for the last month as bj recommended (and I still take the peppermint).

[Chappers_27]

BJ

Can you furnish any links on studies that show the difference between Vitamin D taken on the skin and Vitamin D taken internally (supplements)?

I believe, and I back this with recent experience, that Vit D can be hampered in the presence of inflammation. So if your diet consists of inflammation causing foods, such as bread, milk, beans etc then Vit D may cause additional inflammation. However, I have been avoiding these foods.. no milk, tiny dairy, no wheat and eating meat, eggs, honey, vegetables (not potatos) and salads/fruits. I am supplementing with 5,000IU Vit D and am not experiencing the same redness that I got previously (and mentioned to you on previous posts). I also wonder if its easier to maintain a high circulating 25-hydroxy vitamin D level than it is to get there in the first place. Heaney suggests that the average persons uses up 4,000IUs daily.

"The average person starts to store cholecalciferol at 40 ng/ml (100 nmol/L), but at 50 ng/ml (125 nmol/L) virtually everyone begins to store it for future use. That is, at levels below 50 ng/ml (125 nmol/L), the body uses up vitamin D as fast as you can make it, or take it, indicating chronic substrate starvation—not a good thing. 25(OH)D levels should be between 50–80 ng/ml (125–200 nmol/L), year-round."
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[Eveloftus]

Hi chappers, your circulating vit d level must be way up there, after the Dead sea and now taking 5000 daily!

I also do paleolithic diet, except that I have dairy (mainly as yoghurt, to try to improve gut flora). P looking good.

[artworks4]

This recent study suggests that there is no correlation between serum 25 OH D levels and Cathelicidin levels......... different than what I had always thought.......that higher 25 OH D levels would equate to higher Cathelicidin levels........hmmm.

Art

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