Author Topic: vitamin d/ibuprofen treatment  (Read 586453 times)

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Offline cavetroll_79

Re: vitamin d/ibuprofen treatment
« Reply #4240 on: July 18, 2010, 09:31:22 PM »
hiya,

have been reading through this thread as i am on cyclo at the moment but due to come off in a month or so and looking for something different. i have a feeling i will flare up again as soon as i stop as even with slightly lowered dose patches are starting to come back. was just wondering if i can take vit d while on cyclo? i know not to take ibuprofen or peppermint but wasnt sure about vit d? thanks.

xx

Offline bjm

Re: vitamin d/ibuprofen treatment
« Reply #4241 on: July 19, 2010, 03:45:51 AM »
hi cave....there appears no interaction between supplemental vitamin D and cyclosporon  You are not allowed to view links. Register or Login

but as suggested in the link you should always ask the doc when an interaction is possible with meds...

a more effective route at least in the next few months is getting some 11-3  sun for about 20 minutes if possible and make some D in your skin... you can easily make 2000iu/day or better depending on amount of skin exposed...this time of year at the beach we can make 1000iu/minute ..even a sunny walk in shorts can help.

 Assuming  sun is unavailable...a supplement of 1000iu-2000iu may temper the immune response and result in less flairing..let the doc know and get his  advice as he may suggest even a higher dosage which is not uncommon where there is a deficit...request a D test if possible...

plus all the other added benefits of adequate D...reduced cancer rates in ovarian, breast and colon cancer by as much as 50% or better

hope this helps...bj

« Last Edit: July 19, 2010, 01:17:57 PM by bjm »

Offline bjm

Re: vitamin d/ibuprofen treatment
« Reply #4242 on: July 19, 2010, 04:45:52 AM »
for those interested in adding yogurt as one of the strategies to reduce inflammation..and with it hopefully P , here is an interesting site on yogurt...You are not allowed to view links. Register or Login

and the great yogurt conspiracy  You are not allowed to view links. Register or Login

i can't vouch for its accuracy..but its food for thought!

bj
« Last Edit: July 19, 2010, 04:56:32 AM by bjm »

Offline Chappers_27

Re: vitamin d/ibuprofen treatment
« Reply #4243 on: July 19, 2010, 09:35:13 AM »
Cavetroll. I would think your dermatologist would recommend that you come off cyclo fully first.

I personally did some NBUVB treatment whilst on Cyclo and felt very strange. Plus there are also incidences of people being on Enbrel and taking sunlight at the dead sea, and them suffering side effects (enough to make them return to the UK).

I am not an expert, but I know how I felt. Plus I am not sure how it differs taking Vit D through supplementation as opposed to via the skin.

Offline Eveloftus

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Re: vitamin d/ibuprofen treatment
« Reply #4244 on: July 19, 2010, 02:20:19 PM »
Chappers, I think that's if you get the vit D from sunlight or nbuvb, as cyclosporine increases the risk of cancer and so that's why they say not to expose yourself excessively to sun or do UV treatment as those also increase the risk of cancer. But there is no contra indication to taking vitamin D supplements.

Offline bjm

Re: vitamin d/ibuprofen treatment
« Reply #4245 on: July 19, 2010, 02:43:02 PM »
hi chappers, evy....both good points....

yes,..from the literature, no sun without protection for those on cyclosporon and probably other biologics as there may be increased risk of skin cancer

also from the literature, as the half life (half as much in the body )of cyclosporon is approximately 24hours  ..it varies widely..it should be out of the system in a week...

a supplement as evy suggests might be the way to go until you are clear of the cyclo.....ask the doc, he should know

Offline AnitaG

Re: vitamin d/ibuprofen treatment
« Reply #4246 on: July 19, 2010, 05:36:41 PM »
3 year update on Vit D/Ibuprofen.

I have been on this for 3 years now and thought I'd update with my progress for those who are just starting or who are thinking of starting..

My original posts are way way way back so I'll give a brief history.  I've had P for over 30 years, since I was a young child, had plaque constantly on my face with guttate coming and going on my arms, legs, torso and scalp.  I stopped prescription treatments in my 20's for idealistic reasons and just basically lived with it.

March 2007.  I started on 2000iu of Vit D and 400mg of Ibuprofen daily, first thing I noticed was an increased itch, it was really really bad.. so I split the dose of Vit D and took 500iu 4 times a day, taking the Ibuprofen after my evening meal.  This helped and after 6 months or so it disappeared completely even if I took the full dose in one go.

Week 2.  I had noticed some shrinkage and some reduction in the redness. 



Week 4.  Really started to notice a difference about now, much more shrinkage and less red.  Flakeyness had been replaced by a dustyness, like a very fine body dandruff.



Week 6.  Huge difference by now.. Skin was very smooth, and tho shiny and slightly red in places there was a vast improvement.  Dustyness had gone, and so had that 'shrinking' feeling, my face didnt feel as tight as it had previously.  I also noticed a lessening of my 'superhuman' healing powers, cuts/scratches were taking weeks to heal up.



The Guttate on the rest of my body didnt have such a dramatic improvement, but did shrink and by August I was more or less clear.  Had 2 very small patches behind my ears and 3 or 4 very very small patches on my scalp, which in hindsight I think were only still there because of damage from hairbrushing was causing scabs which didnt heal properly.  During July/August 2007 I cut back my dosage of Vit D to 1500iu and increased it back to 2000iu in the september.

1 Year.  Still pretty clear on the face, with maybe one or two spots on my legs, but it should be noted that at this time I had split with my husband and moved back to Glasgow.  Was a pretty bad break-up and my stress levels were extremely high but only visible signs were the odd patch on my legs and scalp which only stayed a few days before going. My dosage was still consistant at 2000iu Vit D and 400mg Ibuprofen, I had noticed that if i missed the ibuprofen or reduced it then my skin got very red within a day or so which would recede within 48 hours if I then took it.  If I missed the Vit D then it would take a week or so before any change was noticable, patches around the nose would start growing and my skin would get very dry, and it would take a few days for it to clear once I resumed the Vit D again.  The longer I was off it, the longer it would take to get clear. 



2 Years.   Completely clear both on face and body.  Moisturising is still necessary as my skin does dry up very quickly.  At this point I had my daily dosage reduced to 1500iu Vit D and 400mg Ibuprofen all year round.  One advantage I had found at this point was that I could now use any make-up, cleansing and moisturising products with no adverse effects, previously I was very limited in what I could use without causing a reaction or bleeding.



3 years.  Still pretty clear on the face although I do have the odd spot of Guttate on my body.  Mainly because I've reduced my dosage to 1000iu Vit D and 200mg Ibuprofen for the last month.  This is on the advice of my doc cos my skin is making more Vit D on its own now, and we had a lot of sun there a few weeks back and because my doc isnt too happy with me taking 400mg of Ibuprofen on a daily basis, so he'd like to get it down.  My skin still reacts to things, if i get upset I can be red all the next day, if I forget to take my tablets I can be red and/or dry for a few days but its so much more managable that it ever has been.  Excuse the bad pic here :D I took it a few moments ago with my webcam cos i can't find a recent pic on this pc.



I'd like to point out that in all these pics.. its still me.. my skin may have changed the way it looks but i'm still the same person in all of them!

For anyone who is thinking of giving this a go then I'd definitely recommend it, my face has never responded to any treatments before now and as you can see, its sustainable over a period of time and is really very cheap to do, works out about 10p-20p a day depending on where you get your Vit D and how much you buy at once.  Its cheaper to buy in bulk!

Sorry for the very long posts and lots of pics but wanted to share my success story with you all and my many many thanks to BJ for all his hard work and dedication and everyone on this thread who helped me in the beginning.




You can't walk on water if you don't get out of the boat....

Offline Chappers_27

Re: vitamin d/ibuprofen treatment
« Reply #4247 on: July 19, 2010, 06:54:37 PM »
wow!! you look like a different person. Well done! Wonder if not being with your ex helped? My psoriasis got really bad when I was married!!!!!  ;D ;D ;D ;D

Offline babyblue

Re: vitamin d/ibuprofen treatment
« Reply #4248 on: July 19, 2010, 07:10:15 PM »
Many congrats to you Anita, am delighted to read your success story. 

Thank you for your diary with photos - its true what they say - a picture does paint a thousand words.

I have never taken the ibuprofen as altho I take anti-inflammatories combined with painkillers quite regularly, I felt I shouldn't add any others in there.  But having viewed your success and now noticing some small patches reappear following successful treatment via nbuvb which finished in May, I'll speak to my doc about it.

You're a star - terrific post - am really really pleased for you.  Thank you for sharing.

Hugs
BB
A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.  - Herm Albright

Offline cavetroll_79

Re: vitamin d/ibuprofen treatment
« Reply #4249 on: July 19, 2010, 07:12:39 PM »
thanks for the advice, i have indeed been told to stay out of the sun, or if i have to be out in it to treat myself like a child and slap on the factor 50! will speak to my derm and see what she says about using supplements. xxx and anita, what can i say, wow! great of you to share your pics.